• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. roller

    My CFS experience ending with BARD and ChatGPT AI

    long time ago, i read on reliable information, that viagra and other PDEs were NOT very specific. in fact, they were quite broad pde-inhibitors. viagra helped me huge time, as nothing ever before. from zombie to alive. i didnt take it for any typical viagra-applications (am female).
  2. roller

    Bloating after Doxycycline

    i got gross, lasting nausea from doxy, setting in after 5 - 7 days of intake. the doxy-nausea ended after contracting covid. with covid, i became "allergic"; means, ever since i react to pepper, onions etc or sneeze without obvious reason. from observation i believe, the doxy-nausea stems from...
  3. roller

    Question about Petechien

    https://en.wikipedia.org/wiki/Cholesterol_crystal https://en.wikipedia.org/wiki/Cholesterol_embolism
  4. roller

    Dr Chia finds 2% of ME/CFS cases are due to varicella zoster virus reactivation (shingles), and this form of ME/CFS is very treatable

    shingles may be triggered by covid, virus & vaccination. so, no surprise here anymore, why so many ppl all get so easily prescribed that gabapentin/lyrica addiction drug... its indicated for post-shingles.
  5. roller

    Dr Chia finds 2% of ME/CFS cases are due to varicella zoster virus reactivation (shingles), and this form of ME/CFS is very treatable

    it seems, one can have shingles internally. without any blisters, but infecting organs/tissue. e.g. eyes, ears, and as @Wolfcub said, the teeth-nerves https://en.wikipedia.org/wiki/Postherpetic_neuralgia
  6. roller

    Covid vaccine. Anyone not having it?

    @Jadzhia sounds, like you have more clue about molecular biology... (viruses?) thats good, i have uncountable questions... the spike protein will likely stay a "while" in the body. do you think, this (from vaccine) generated spike protein could "cling / connect" to e.g. other viruses in the...
  7. roller

    Covid vaccine. Anyone not having it?

    thats correct bill... none of the vaccine components are shed. what these guy in the german forum meant was, that the spike protein, which is GENERATED in the body, may be shed. the CDC doesnt talk about this.
  8. roller

    Covid vaccine. Anyone not having it?

    seniors (plural) reanimated - after 3rd dose in german nursing home in oberhausen updated 07.09.2021, 18:09 paywall spielverderber they are looking into it.
  9. roller

    Covid vaccine. Anyone not having it?

    the following is in relation to a german article (something like "shingles after covid"), i havent read. but there are some comments no much agreement there, but for what i understand - the vaccinated may be shedding (excreting) the spike protein. - since its precisely the spike protein which...
  10. roller

    Pain and the brain: Closing the gap between modern pain science and clinical practice

    that "perceived danger" causes or increases pain, may also work in the other direction: that perceived care soothes pain. havent we already heard about this? but to conclude that all pain originates in the head, is imo psycho. hopefully, i misunderstood the article somewhat.
  11. roller

    New study looking at oxidative stress

    in science the effects of too much h2s in animals is compared to "hibernating" h2s damages olfactory cells it slows down body functions mice intoxed with h2s get into a state thats neither wake nor hibernation. ...the mecfs-zombie?
  12. roller

    New study looking at oxidative stress

    in this context, just a "mechanism" from environmental technology... ...to just think about, if similar processes in humans are possible... (Amines are formally derivatives of ammonia, https://en.wikipedia.org/wiki/Amine) e.g. for the unexplainable exercise troubles: a) perhaps a lot of H2S...
  13. roller

    New study looking at oxidative stress

    ... didnt they mean, there is too much hydrogen sulfide ? then this protocol would be exactly counterproductive ? all life produces h2s and other gases like ammonia. if perhaps, some other pathogens create h2s/ammonia or similars, or the body cant get rid of it properly (e.g. unfortunate...
  14. roller

    You probably have an autoimmune disease...

    focus online reported, that washing with vinegar water (i think 2 tablespoons on 1 liter water) can entirely replace showering with "soaps", long term. it often helps with sensitive skin. vinegar eliminates all bacteria, and only they are cause of the smell, i understand. skin problems were...
  15. roller

    What is important to know when having an overactive immune system and whether taking vaccines?

    if one finds themselves "perfectly healthy", the vaccine CAN EASILY create a load of problems. its exactly the point, @SWAlexander the vaccine may, like other vaccines have proven in the past that they do, trigger existing conditions. on top of all, one is more vulnerable during the first...
  16. roller

    What is important to know when having an overactive immune system and whether taking vaccines?

    im clueless, im not vaccinated, and i only speak from my own & uneducated perception. i would quarantine for 4 weeks before going to the vaccination. so that your virus load is on a minimum (corona + possibly others). after the vaccination there should be a quarantine as well. as obviously...
  17. roller

    Neuroinflammation and Cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Critical Review of Research Methods

    they say: blocking IL-1 can resolve tiredness? ... and restore hearing loss ? though a lot of herbs are IL-1 blocker/antagonists and dont really fix the things.
  18. roller

    Different recovery stories

    good, but then (harmful) autoantibodies should decline too, within weeks? also should "insufficient" antibodies, mounted by the immune system disappear? (insufficient = i mean things like Antibody-dependent Enhancement)
  19. roller

    Neuroinflammation and Cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Critical Review of Research Methods

    anakinra = IL1 blocker so, this could help with tiredness and perhaps clear up the brain, somewhat?
  20. roller

    Article by Whitney Dafoe dedicated to severe and very severe ME/CFS

    https://www.mdpi.com/2227-9032/9/5/504/htm
  21. roller

    Covid vaccine. Anyone not having it?

    50% of all vaccinated have sideeffects, at best its "just" a headache for 24hours+ did ever any other vaccine report such a high number of side effects? only a very very few people have symptoms from a covid infection. 95% of them are older than 60. 2% of all infected die. some german...
  22. roller

    The Enterovirus Theory of Disease Etiology in ME/CFS: A Critical Review (O'Neal and Hanson, 2021)

    Pyrithione may contribute to clearance it doesnt show this info on wiki. it was a study. and the non-clearance had also some unbeneficial effect on nalphakappa(.?...)pathway.
  23. roller

    Is there anything that’s actually promising?

    1 german med bc007. it eliminates antibodies, i understand. or auto-antibodies? 2 new tuberculosis vaccine vpm???, has broad and beneficial effect on immune system 3 biontech multiple sclerosis vaccine, in a few years, will shut down inflammation 1 removing needless/harmful autoantibodies...
  24. roller

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Results in Sustained Symptom Improvement in Myalgic Encephalomyelitis

    its again like: a) elephant in the room b) they are pondering on how to glue the tea cup
  25. roller

    Best theory so far?

    cdv canine distemper virus in cahoots with mtb tbc tuberculosis :headslap: (but these ppl should have a strong reaction to corona covid and/or its vaccination)
  26. roller

    Stanford experimental treatment didn’t work for Whitney

    i understand, it must be an - existing - readily available drug its name isnt told, since we are idiots and would try it. whitney calls himself "community guinea pig"... who is then? :thumbsup:
  27. roller

    Anyone know about Berlin Cures BC007/cured Long Covid cases (applicable to ME/CFS)

    for what i understand... the med removes autoantibodies, then no need anymore for the much more intrusive methods like plasmapheresis. unfortunately, those autoantibodies are known to come back. but if it works, it could be very helpful for many diseases. so weird... antibodies (covid)...