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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ianorourko

    Petition: Opposing MEGA

    I second that request. Perhaps you could post the actual email exchange in the morning - in the interest of transparency. It's pretty quick and simple to do and I'm quite sure that everybody would appreciate it a lot! Thanks!
  2. ianorourko

    Petition: Opposing MEGA

    Wow, what you're proposing there is pretty obviously flawed. Of course wider public opinion ( ignorance ), in knowing little about ME politics and taking MEGA on face value ( especially since MEA so enthusiastically promotes/supports it ) would shift towards a pro MEGA tone. Of course people's...
  3. ianorourko

    How much will MEGA cost? And an alternative proposal.

    Thanks guys, really good points on the financial feasibilities of this study. I think that this line of thought needs to be put out there more because, by itself, it pretty much shows how tainted and unrealistically ambitious MEGA probably is ( or would be if what they are proposing is actually...
  4. ianorourko

    Petition: Opposing MEGA

    Simon, sounds almost too good to be true, doesn't it? One thing that not many people have touched on yet is the financial feasibility of this study. When we begin to look at it, as Trishrhyrmes and others have done in the thread posted below, it really doesn't appear all that realistic at all to...