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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. I

    Why do we feel better at night?

    I would like to put forward another suggestion. Irlen syndrome. Look at the research of Leow. He concluded from a tiny study that all with me/cfs have irlen. The problem with Irlen I that symptoms are diverse ad what one has another may not. Sadly expect at the first mention of education...
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    Increased Vulnerability to Pattern-Related Visual Stress in Myalgic Encephalomyelitis

    PACE CBT/GET etc. Here we go again. I have a family of 5 with visual stress/IS 3 of which have Me/cfs Unfortunately thus research was sadly poor, the following masters worse. Even more interesting was the email conversation I had with Dr Hutchinson asking if she would take me on as supervisor to...
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    Amnesia

    I know this sounds odd , but , are any of these incidents related to brighter light or fluorescent lights? Does it happen as much if you wear sun glasses?
  4. I

    Brain fatigue?

    I have 3 in the family who have me and all of us have Irlen syndrome. A recent paper published by the university of Leicester shows a rate of 75% of me/cfs folk with Irlen.makes sense as both irlen and me/cfs are more likely to crop up in family's with autism (co-occurant). I suggest you check...
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    Body jerks in the evening?

    I agree mycolonic jerks. I have this and find both sugar and alcohol make it worse. I also feel it has got substantially better after taking b12 as per the protocols here. I have had episodes where I have ached the following day too, yes scary. Mine was like restless leg syndrome for many...
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    liver enzym CYP2C19*17 frustrates Progesteron, adrenals and MAO A

    could you please tell me what your estrogen symptoms are? I think a friend has these same genes thx
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    What Fixed/Aided Your Brain Fog?

    upps pressed the wrong button first post. What brand of yucca do you use and how much daily? Thx linda
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    What Fixed/Aided Your Brain Fog?