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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. soxfan

    Fatigue still haunts me …

    Heading to the doctor next week. I have been treated before so I am hoping he has some New ideas! Thanks all. Will keep you updated !
  2. soxfan

    Fatigue still haunts me …

    No there haven’t been any antennas installed here. I am figuring it’s from rash or just having some bad weeks again…who ever knows with this illness.
  3. soxfan

    Fatigue still haunts me …

    That’s what my doctor thinks it is as well…I sent him the photo. Thank you!
  4. soxfan

    Fatigue still haunts me …

    It’s been a while since I have posted. It’s not that I am better but have been managing the best I can. I took up nature photography because it helped with the stress of having this illness. I enjoy it and gets me out in nature which is calming. Most mornings I still wake somewhat unrefreshed...
  5. soxfan

    Anyone else: Main Symptom mental fatigue?

    @chger - Yes emotions or emotional stress will totally wipe me out. Even if it’s a good mental stress I will still have awful fatigue and PEM. Mine is usually immediately but someday linger into the following day. It’s always been this way for me...
  6. soxfan

    Anyone else: Main Symptom mental fatigue?

    @chger - Your symptoms are mine exactly. I do have a bunch of others but the ones you listed are the debilitating ones. I can deal with the others but the mental fatigue I get is the worse. Mine can be caused by social...shopping...noise... crowds...television...computer or just by my brain not...
  7. soxfan

    Well...I wasn’t diagnosed with depression

    @CFS_for_19_years ...Thank you! I printed it and will bring to my next appointment which will be with a LCSW...why a social worker I have no clue. At this point I am doing what they want in the hopes someone will wake up and send me to someone who understands this illness. @nyanko_the_sane...
  8. soxfan

    Well...I wasn’t diagnosed with depression

    @Shoshana ...I agree about the appointments. I have waited anywhere from a month to 3 months for an appointment. Most of them end up being disappointing. I also feel if we can keep going we need to. I always think what if they had an answer and I didn’t go. Yes they are hard and tiring...the one...
  9. soxfan

    Well...I wasn’t diagnosed with depression

    It seems like I just get pushed from one doctor to the next because none of them want to deal with me. It is utterly frustrating mostly because none of them knew me when I wasn’t sick so they have no idea how active I was. I don’t know how psychotherapy is going to make the fatigue magically...
  10. soxfan

    Well...I wasn’t diagnosed with depression

    I finally after a ten week wait had my appointment with the Psychiatrist. I handed her my very detailed symptom List with a description of each one and how they make me feel. She spent most of the hour going over my medications I have taken in the past. She came to the conclusion that I am...
  11. soxfan

    Depression/CFS

    @Rufous McKinney ....I am considering going to a sleep specialist but I have to get through the appointment in June first. I went to one a long time ago and he tried to give me a medication they give to Alzheimer’s patients. I don’t remember the name. I had the prescription filled but never took...
  12. soxfan

    Depression/CFS

    @Hope4 ...I have several sensitivity issues. They include noise...bright lights in stores..medications...so specifically I can’t go to the movies...malls...noisy restaurants...be around a large group of people...socializing etc. computer and television are also rough for me. Riding in the car (...
  13. soxfan

    Depression/CFS

    @Rufous McKinney ....YES...My sleep became horrible during menopause and the even worse with Lyme. Coincidentally I got Lyme a year before my periods became irregular. Oh gosh I use to have the best sleep ...I would lay down and be out within minutes and sleep a full nine hours. How I long for...
  14. soxfan

    Depression/CFS

    @Rufous McKinney ...I took 0.25 mg Klonopin to sleep for five years. It worked great and I was actually able to keep working part time. I can’t say my sleep was refreshing but I could function. I would still be on it but my PCP told me because of my age she wouldn’t give it to me much longer...
  15. soxfan

    Depression/CFS

    @Rufous McKinney ...I was seeing a functional medicine doctor for a year. She had me on an elimination diet to figure out if any foods were causing the fatigue. After months nothing had changed but that doesn’t mean something else isn’t causing inflammation. I agree I don’t have...
  16. soxfan

    Depression/CFS

    @Rufous McKinney ...I just can’t except the diagnosis of Depression. I don’t behave like I am depressed at all. Plus the fact that I can’t tolerate anti depressants anyway so even if I theoretically was I can’t treat with medications. I am not sure how I remembered my Lyme doctor telling me...
  17. soxfan

    Depression/CFS

    Okay...so a few days ago I messaged my former Lyme doctor in N.H.. I told him that I had been diagnosed with depression and actually didn’t feel that was a proper diagnosis. I had some of my old records but not all. I asked if anywhere in his notes he had written depression...( he was my doctor...
  18. soxfan

    Depression/CFS

    @BeADocToGoTo1 ...Thank You for the great advice. I think I am going to start by typing on my IPad and print it out. For me it’s much easier than writing it down. It is a 60 minute appointment so I will be totally fried by the time it is over. My head will be spinning and I expect to crash when...
  19. soxfan

    Depression/CFS

    @Rufous McKinney ....Yes agreed ...I am also exhausted thinking about telling my long story to the psychiatrist as I know she won’t understand it. Even I don’t understand it. I have a couple friends here who have chronic illness’s but they both can do way more than I can so it’s hard for them...
  20. soxfan

    Depression/CFS

    @Float ...Before we moved to NC five years ago I was working part time. My boss was very understanding and always made a schedule that I could handle. So no I wasn’t always a on the go person...well I was way long ago when raising my boys but they are all grown with families. Before illness I...
  21. soxfan

    Depression/CFS

    @Shoshana ....Thanks for the nice post. I truly understand what you are saying. I know there are so many others here who have much worse symptoms than me and I actually feel guilty complaining about mine. I have been dealing with this for so long now and I don’t understand it. I don’t really...
  22. soxfan

    Depression/CFS

    @Mary ...That is my problem...I honestly feel there is no hope and I will feel like this for the rest of my life. I have been searching for answers and things that help for over 14 years and I can say I have found nothing to help with the fatigue. I know how to prevent myself from becoming...
  23. soxfan

    Depression/CFS

    @Mary ...PS Yes I have had the NutraEval testing done...
  24. soxfan

    Depression/CFS

    @Mary ...I am certain I was labeled with depression is because of the questionnaire I answered in the doctor office. I was a 16 and she said someone not depressed is a 6. I am just trying to figure out this fatigue. The reason being is that I don’t have any of the major CFS symptoms. Sure I...
  25. soxfan

    Depression/CFS

    I had to cancel my appointment with the counselor because she isn’t in my network and I would have to pay out of pocket $300 a visit. I had to reschedule with an in network MD who is also a therapist but can’t get in till June... It’s fine because I can’t take medication anyway so it actually...
  26. soxfan

    Depression/CFS

    @BeADocToGoTo1 -I appreciate all your suggestions. I have my thyroid checked twice a year and an ultrasound every other. I take Levothyroxine but have tried NP Thyroid Andrew it didn’t make a difference. I hardly take any supplements now. I was taking quite a few in the past year that the...
  27. soxfan

    Depression/CFS

    A few more thoughts. Just tell me if I should stop. How is your sleep hygiene? Have you checked the area where you sleep for noise, air quality, high EMF, LED or other sources of lights, temperature, etc.? No food a few hours before bed, no electronic screen blue light a while before, no tv...
  28. soxfan

    Depression/CFS

    @MTpockets ....I have had them all checked. I have been taking Vitamin D for 10 years and Vitamin B12 for about 5. Everything else is in the high normal range. I did manage tor raise both D and B12 immensely and really don’t need them anymore but continue on them so I don’t go backwards. I...
  29. soxfan

    Depression/CFS

    @BeADocToGoTo1 - I had the comprehensive stool test from Genova and everything was great. She actually said my gut was one of the healthiest she had ever seen. She did a saliva test for hormones and cortisol....everything was fine there too. I had the genetic test for which drugs would work...
  30. soxfan

    Depression/CFS

    @Shoshana ...I can say I have written many posts on the sleep forum looking for help. But if I truly have moderate depression then nothing I take will give me a refreshing sleep until that is addressed. I wake up all the time with my heart palps (acute awareness of heartbeat...not fast or...