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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Cozi

    Excess acetylcholine & methylation

    Just wondering what people's thoughts are on niacinamide for providing niacin? I think I may be a bit low and tried taking the proper flushing stuff yesterday. Actually want to use it for anxiety and depression, so I took 50mg with food. Mistake. The flush was immense, my knees and elbows (the...
  2. Cozi

    Turpentine for healing

    This is an old thread and maybe this is a bit off topic but just wondering about terpenes being off gassed inside in log cabins? I went to view one last week, my mum said it had a very strong wood smell but I didn't notice - and I have a bloodhound's MCS! Just wondering if I should risk a 12...
  3. Cozi

    Thinking of getting a dog or a cat. Your experience?

    My two cents worth.... My parents have a dog (Axel, the puppy in my avatar!) and he is without a doubt the greatest joy in my life. However I look after him twice a week and it is enough - he is nearly 2 now but just as exhausting, and it really upsets me that I can't do more for him, walk him...
  4. Cozi

    Nystatin - Herxing or what? HELP!!!!

    @bertiedog That's interesting that the Nystatin affected your head and gave you migraines (and horrible, sorry you are getting them!) I came on here to ask if anyone experienced a similar reaction to me - I was prescribed the powder a year or so ago and told to start with half a teaspoon in...
  5. Cozi

    Free Supplements

    Ok last few supps to go - up for grabs or they go in the bin. Taurine 500mg - Holland and Barratt, full bottle (I only took one or two) Methyl B12 Jarrow (sublingual) 500mcg (2/3 full bottle) NAG Jarrow, 700 mg (same)
  6. Cozi

    Free Supplements

    I just wanted to post this as it's related to supplements. If you're in the UK (they might ship abroad, I don't know) I've discovered two supp manufacturers who I think are worth recommending: Cytoplan - they sell 'wholefood/food state' vitamins, which are apparently much easier to absorb...
  7. Cozi

    Nystatin timing - before or after food?

    Sorry, don't want to worry anyone! And thank you for the replies. My doc is away so I can't see him for a fortnight, but things have got better. I took the dosage down to 1/16th of a tsp and manage to have a couple of sips a day. I'm hoping to be able to up it soon. Can't say I've felt any...
  8. Cozi

    Nystatin timing - before or after food?

    I was told to take it on an empty stomach before meals but it totally goes to my head - I get dizzy and a huge headache. The first dose (one sip of half a teaspoon in a full glass of water) made me pass out. A week later and I'm down to1/8 of a tsp in a glass of water, one sip a day and I still...
  9. Cozi

    Free Supplements

    Hi Elderberry, thanks for the interesting post and please excuse my lateness in getting back! I see you've changed your mind about the Jarrow R.R, and I don't have any anyway. Have heard good things about it though. Good luck in your struggle x
  10. Cozi

    has anyone seen Dr Stewart in Sussex (UK)?

    @wiltedflower77 sorry again for the late reply! No problem - Haven't any results yet but I had blood tests for: DNA Adducts, metallothionein, toxic metals, plasma element profile (minerals) and something called Body Blood Bio test. I also had fat taken from my bum (shame they couldn't've taken...
  11. Cozi

    has anyone seen Dr Stewart in Sussex (UK)?

    Can I also do a shameless plug for my other thread here http://forums.phoenixrising.me/index.php?threads/free-supplements.43613/ It's for swapping supplements no longer needed/tolerated! Worth checking of there's something you wanna try for free or get rid of :-)
  12. Cozi

    Free Supplements

    B Complex Plus - Seeking Health, this is the Ben Lynch one WITH mb12 (and adeno12) and folate Jarrow Methyl B12, 500mcg sublingual cherry flavour Literally a full bottle minus one or two of both of these up for grabs. Apparently I can't tolerate methyl donors. Should've just looked at my gene...
  13. Cozi

    has anyone seen Dr Stewart in Sussex (UK)?

    @wiltedflower77 - sorry it's taken so long to report back on my experience at the Burghwood Clinic. Have to say I was impressed, I saw a guy called Dr Appelles Econs (may have spelled that wrong). He was very understanding, said he loved it when patients were well read on their condition, with...
  14. Cozi

    Coffee,, yes or no

    Heartfixer has this to say if of any interest? I have no opinion as I drink the chicory coffee substitute and like the taste of it better :-) Caffeine increases catecholamine production. Caffeine intolerant individuals are typically COMT +. When caffeine intolerance develops anew, we look for...
  15. Cozi

    has anyone seen Dr Stewart in Sussex (UK)?

    I've had similar experiences - and would also be grateful to know if anyone can suggest a good doc in the Brighton area. Dr Stewart is a really nice man. But aside from adrenal fatigue he also doesn't 'believe' in candida, pyroluria, kickstarting methylation or heavy metal toxicity, unless...
  16. Cozi

    Free Supplements

    Some Nature's Best stuff (UK) Kelp Extract - 150ug Iodine, expires March '17, almost a full tub Peppermint Oil Caps - 50mg, expires April '17. About 100 caps left Probably also have some acidophilus somewhere from the same company. PM if interested
  17. Cozi

    Free Supplements

    Great idea :-) It's nice to know my unwanted stuff can hopefully benefit someone else
  18. Cozi

    Free Supplements

    Hey people, I'm guessing most of us have cupboards full of supplements that we've only taken one or two pills due to them not working/agreeing with us. My store is now stretched to breaking point and I'd rather give stuff away to people who want to try something than bin it. So here's my list...
  19. Cozi

    Metal Toxicity Specialists south east UK?

    Thanks for your replies everyone, much appreciated, will do some reading :-)
  20. Cozi

    Metal Toxicity Specialists south east UK?

    Hey everyone This post is on behalf of my Mum. She's had CFS since 2002 and was also recently diagnosed with osteoporosis. She has a mouth full of mercury amalgam fillings (like, more fillings than teeth!) and is in the process of getting them removed. My feeling is that a lot of her symptoms...
  21. Cozi

    Sulfite/sulfate and ammonia questions

    Not sure if anyone is still following this thread.....? @Vegas the info you've provided is AMAZING. I wanted to report some success on the Bifido yogurt making front. I make mine with a litre of pasteurized organic whole milk, heated to boiling then cooled to around 40 degrees c, add 7 grams of...
  22. Cozi

    Zinc and Histamine Question

    Thanks so much for your responses guys! I will do some research and try out a few things :-)
  23. Cozi

    Zinc and Histamine Question

    Nope, no outward signs of zinc deficiency - acne etc. Just 30% deficiency according to blood test
  24. Cozi

    Zinc and Histamine Question

    Hi everyone - this is only my second post though I've been a 'lurker' for a while now :-) I wondered if anyone shares my experience with zinc raising histamine levels? Apparently I am zinc deficient and have been told to take 30mg daily. I can manage 15mg and all is fine for a few days but...
  25. Cozi

    has anyone seen Dr Stewart in Sussex (UK)?

    Hey Uno, I'm a Newbie on here (literally today) I'd be interested to know the Dr you recommend in Brighton. Not sure how to PM....?