• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Mike Harley

    Anyone from Newport/Gwent area?

    Hiya Running Newport Half Marathon on March 1st for Invest In ME and keen to find out if there's any patient groups I can engage with in the area. I'm aware of a South Glamorgan group but ideally looking for Gwent/Newport. I know there was one a few years back but I don't know if it's still...
  2. Mike Harley

    Truro Half Marathon - Raising M.E Awareness in Cornwall - Local patients needed

    Evening all I'm running Truro Half Marathon on Sept 15th for Invest In ME as part of my EU Marathon training. I'm from Cornwall originally and buzzing about my first ever race there. Hoping to make contact with someone in the area who would like to write a few lines about their experience with...
  3. Mike Harley

    Estonia, Cyprus, Latvia, Hungary, Romania, Portugal

    Hi all Thanks to everyone who has helped me so far in my challenge to raise awareness around Europe. I've interviewed people with M.E in around 18 different countries so far in a bid to raise awareness and bring people together in each one I've visited. Very keen to ask 6 or 7 questions to...
  4. Mike Harley

    M.E in Latvia

    Hi all I'm keen to talk to anyone living with M.E in Latvia as part of my ongoing challenge to raise awareness for the need for biomedical M.E research around Europe. If you know anyone living there with M.E who would be willing to answer 5 or 6 questions via email please drop me a line. I'll...
  5. Mike Harley

    Mikes EU Marathons for Invest In ME

    Evening all. I'm doing a little Half Mara race in Gloucester, UK on Sunday as part of my training for Cyprus (no.20) Here I am sharing the limelight with road closures.... https://www.gloucestershirelive.co....oH0Zvzl5S8eeWinqxqTarU2o85WUKc5DsaSaB01sZmkDM Thanks to Rachel, Chantelle, Donna...
  6. Mike Harley

    ME in Cyprus

    Hi all I'm keen to talk to anyone living with M.E in Cyprus as part of my ongoing challenge to raise awareness for the need for biomedical M.E research around Europe. If you know anyone who would be willing to answer 5 or 6 questions via email please drop me a line. I'll be there on March...
  7. Mike Harley

    ME in Bulgaria

    Thanks very much Cath :-)
  8. Mike Harley

    ME in Bulgaria

    Thanks for the lead, I'll chase them up now
  9. Mike Harley

    ME in Bulgaria

    No, sorry I won't be doing that.
  10. Mike Harley

    ME in Bulgaria

    Hi I'm a fundraiser for biomedical M.E research and am running a marathon in every EU country raising awareness in each country I visit www.justgiving.com/mikeseumarathons I'm running Sofia Marathon on October 14th for the charity Invest In ME (www.investinme.org) I'm keen to interview...
  11. Mike Harley

    ME in Estonia

    Hi all I'm keen to make contact with someone in Estonia with ME to hear what it's like to live there. For the last 3 years I've been interviewing people across Europe to raise awareness http://www.mikeseumarathons.eu/me-in-the-eu.html Does anyone know anyone there I can approach? Thanks for...
  12. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi all Here is my interview with the Malta ME, CFS and Fibromyalgia Alliance about life for patients there. http://www.mikeseumarathons.eu/malta.html You can find their facebook page here: https://www.facebook.com/me.cfs.fm.AllianceMalta/ I'll be working with them over the next few weeks...
  13. Mike Harley

    ME in Malta?

    Hi all Here is my interview with the Malta ME, CFS and Fibromyalgia Alliance about life for patients there. http://www.mikeseumarathons.eu/malta.html You can find their facebook page here: https://www.facebook.com/me.cfs.fm.AllianceMalta/ I'll be working with them over the next few weeks...
  14. Mike Harley

    Mikes EU Marathons for Invest In ME

    Just a quick one to say thanks for supporting me this year everyone. I hope you were able to have pleasant pain-free Christmasses and hope that 2018 is a better year. Looking forward to making more friends next year and hopefully adding to the £9.6K we have for Invest In ME's biomedical...
  15. Mike Harley

    ME in Malta?

    Hi I'm keen to talk to ME patients in Malta as part of my challenge to raise awareness across Europe. If anyone would like to answer a few short questions or tell me their story that would be brilliant. I'll be there on Feb 25th to run the marathon and am working with the ME/CFS/Fibro...
  16. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hey all Quick update on my planned races for 2018 https://m.facebook.com/story.php?story_fbid=1949308485330858&id=1509228529338858
  17. Mike Harley

    Mikes EU Marathons for Invest In ME

    Thanks @Joh that's really kind of you! I'll find out if I've made it through the ballot for Berlin next week. With a bit of luck I'll be running in Germany next September :)
  18. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi all, I'm a bit behind with my posts but here's how Amsterdam Marathon went.... http://www.mikeseumarathons.eu/amsterdam-nlands-oct-2017.html Over 1000Euros in for Invest In ME from this race alone. I had an amazing weekend over there and met some fantastic people. Cheers for your...
  19. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi folks Ahead of my next race in Amsterdam, I've interviewed 3 people in the Netherlands for their take on life with ME there. http://www.mikeseumarathons.eu/netherlands.html Working on a press release for the media there and looking forward to meeting Rob Wijbenga from ME Centraal and The...
  20. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi All Number 12 of 28 is done. Race report here for anyone who is interested. Really happy with how Lithuania went with the national press coverage, patient interview and support from their Football Association and Vilnius Marathon. Over £1K in for Invest In ME's research projects too...
  21. Mike Harley

    Olli Polo (Finland) in trouble for treating PWME

    Hi Andy I can put people in touch with the Finnish ME Association if someone else hasn't done so already, just let me know. Thanks Mike
  22. Mike Harley

    Mikes EU Marathons for Invest In ME

    Evening all. Here's my interview with Aleksas, an ME sufferer in Lithuania about his life with the illness and what it's like there as a patient. http://www.mikeseumarathons.eu/lithuania.html Please all RT and generally share the hell out of it. I'd love to help him raise awareness and maybe...
  23. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi all. Quick update.... I managed to get some good exposure for ME research in Lithuania this week. An interview I did with a journalist attached to the marathon made it to Lithuania's biggest newspaper and online news site...
  24. Mike Harley

    ME in Lithuania

    Hi I'm running marathons around Europe to help raise awareness for the illness and need for biomedical research. I'm running in Lithuania in 3 weeks and very keen to interview a patient there, if you know of anyone and can put me in touch it would be massively appreciated. I had someone...
  25. Mike Harley

    Mikes EU Marathons for Invest In ME

    hi folks Luxembourg (Number 11) was pretty brutal but got around in the end... http://www.mikeseumarathons.eu/luxembourg.html Over £700 raised from this one and now it's on to Vilnius (Lithuania) for the next race on Sept 10th. I'll be doing a rare UK race next Sunday in Frome. It's a hilly...
  26. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi All. My next race (number 11 of 28) is in Luxembourg on May 27th. I've interviewed a lady called Katja who is one of an estimated 2000 people with ME living there. Here's what she told me..... http://www.mikeseumarathons.eu/luxembourg.html It's a tough read, she's had an awful time but...
  27. Mike Harley

    Mikes EU Marathons for Invest In ME

    The lovely runner folk over at UKRunchat featured my challenge and Invest In ME this week on their 'Charity Focus' They posted on Instagram (10,000 followers) and 3 times today on Twitter (50,000 followers), that's a decent bit of awareness and I've had some nice messages from runners with...
  28. Mike Harley

    Mikes EU Marathons for Invest In ME

    Hi everyone. So Barcelona went well and I've now ticked off 10 out of the 28 marathons! Here's my report from last weekend: http://www.mikeseumarathons.eu/barcelona-spain-march-2017.html We raised £1K on this race for Invest In ME. The ME in Spain blog had over 6,000 views and we met with...
  29. Mike Harley

    ME in Poland

    Hi We're actively trying to grow our Polish ME Support Group (currently 53 members) and have produced an information flyer (attached) which we hope will reach more patients. The idea is that any Polish speakers can print off and distribute them in doctors waiting rooms and other public...
  30. Mike Harley

    Mikes EU Marathons for Invest In ME

    Ah thanks! Not had a beer in 2017 yet so very gratefully received :)