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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. MimiLoves

    Download for Rare SNP Analysis

    Hi Valentijn, Yes I was a little surprised about the Cohen's marker. I have a feeling that it may have been what a great great uncle of mine in the late 1800's had. Judging by photographs and the information passed down. The albinism of course, I have had since birth (I know you cannot tell by...
  2. MimiLoves

    Download for Rare SNP Analysis

    Here are my rare alleles. I have Albinism, Cystic Fibrosis, Long QT Syndrome, Fuchs Corneal Dystrophy, and Ehlers-Danlos Syndrome. I hit the genetic jackpot! Seriously though, in spite of it all, I am relatively healthy. Some of them cause no real problems daily, such as Long QT and...
  3. MimiLoves

    Download for Rare SNP Analysis

    Hello. Sorry to crash this post, especially as I see that no one has posted on it since May and it is now August. I finally signed up for this site, because for the last 2 years when I have been googling my rare alleles, there are a couple of you which I share these rare alleles with. So I think...