• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Cureme94

    NIH announcement and ME/CFS voices and stories heard

    I hesitated and debated sharing, and then decided it was beneficial for all to understand this message that is coming from the top .
  2. Cureme94

    NIH announcement and ME/CFS voices and stories heard

    I happened to send NIH Director Collins another email Wednesday October 28th, and I received this email on Thursday October 29th morning: (to be read, but not copied or posted elsewhere): Yesterday's NIH announcement was a dramatic shift, and I thank all who have advocated for the ME/CFS...