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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    Dysautonomia patients: have you had your thyroid panel and adrenal levels checked?

    I am curious if there are dysautonomia patients who have never had their thyroid or adrenal levels checked. Would you consider looking into it if you never have?
  2. K

    Most effective remedies for Chronic frontal sinus issues

    Im going to look further into my thyroid. Have been reading stop the thyroid madness website and ordered their book. I am hypothyroid but i always thought nothing more of it due to being on medication already. So my two focuses now.. udate my glasses maybe look further into head pressure.. and...
  3. K

    Most effective remedies for Chronic frontal sinus issues

    Ent told me my sinuses are clear even though to me they feel inflamed
  4. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    I have been reading 'stop the thyroid madness' website and ordered their book
  5. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    How do you recommend i find out if there is current infection or overgrowth?
  6. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    And im on a single parent benefit.. budget tight as it is.
  7. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    Yes you have a point. I had bacterial infections such as an overgrowth of staohylococcus in my nose which is now moderate which they consider normal of no concern. I had over growth if lactobacillus in vaginal area which is now moderate growth and of no concern. I also had candida which is...
  8. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    What is the best most effective alternative to levothyroxine? A change does interest me. I have read about various alternatives but unsure which to use.. armour is mentioned often.. so is natural thyroid.. as well as thyroid gold or S. Altho unsure if you can pair natural iodine and selenium...
  9. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    Ive lost 5 kg in 6 or so months Currently 78kg so no inability to lose weight. Keen to know which way to go. Take matters into my own hands OR try to find someone who knows their stuff and will help. Have spent hundreds already!
  10. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    All of these things interest me! Can i try making changes on my own or do i really need to find someone who WILL monitor my progress? Ive been getting hot flushes. Dizziness. Low blood pressure. Low heart rate. Feeling of unsteady when walking. Have had near fainting spells. Headaches and...
  11. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    Im not sure which way to turn. I have seen doctors and specialists who have been of no help. And an endocrinologist wont see me.. instead theyre just sending a letter of care in the post which i feel is insufficient.
  12. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    Im trying this. My anti thyroglobulin is high range above 300iu/ml .. i have also read natural iodine and selenium can bring it down. Im prepared to try anything as ive been very unwell again last 6mths with dizziness..hot flushes and all sorts of body out of whack symptoms. No idea what is...
  13. K

    Fluoridation Linked to ADHD, Hypothyroid - newsweek article

    Flouride into water needs to be stopped!
  14. K

    Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

    Can high range anti thyroid levels make you sick?
  15. K

    Underactive thyroid

    Hi. I am from NZ. I am hypothyroid. Underactive since giving birth dec 2011. Although was not diagnosed til march 2012. Did not start medication til august 2012. During that time had aweful fatigue and brain fog. I was on Euroxsyth something like that then changed to levothyroxine 50mcg in 2014...
  16. K

    Most effective remedies for Chronic frontal sinus issues

    Has anyone ever had sinus symptoms but had ent tell their sinuses are clear?
  17. K

    Most effective remedies for Chronic frontal sinus issues

    I need help and dont know what to do next... I saw opthamologist a week ago about my eyes he thinks the pressure ill go away with ongoing specwear BUT i have pressure in my forehead still.. So i saw the ent 3 days ago and he said my sinuses are clear...when he looked at my ct scan i had 3 or...
  18. K

    Most effective remedies for Chronic frontal sinus issues

    I have pressure and pain and headaches forehead area.. been through hell with being debilitatingly unwell these past 6 months. I feel and hope that this is the last part to solve and am researching things that DO get rid of it when all else fails.. have tried various antibiotics but we all know...
  19. K

    Who has autonomic dysfunction?

    So i just logged back in to share. I dont believe I have pots or autonomic function as doctors and gps had thought. One gp also thought i had excess fluid on the brain also false. Ya know what.. all it was were bacterial infections that went undetected or untested for so long.. including sinus...
  20. K

    How do you prevent 'night terrors'?

    Been a couple weeks now since I have had any of these scary night terror things. Although have felt a little anxious when waking but nothing compared to before. Although i better not speak too soon lol. So i just logged back in to share. I also dont have pots or autonomic function as doctors...
  21. K

    How do you prevent 'night terrors'?

    And as nice as it is to talk to people who can relate I am going to log out seeing as account deletion is not possible. But only for the reason that I am trying to minimise anxiety.. This site is excellent for information when needed most.
  22. K

    How do you prevent 'night terrors'?

    And I wish to add a dream I had lastnight... handgliding and doing tricks high in the air while another person guided me along. I was feeling super confident in my dream doing tricks of air rolly polies and hanging upside down. Not sure if any meaning behind it or maybe that I just wish to be...
  23. K

    How do you prevent 'night terrors'?

    But then it might be because I've taken a step back from doing all the things that increase anxiety such as measuring my pulse.. google researching everything under the sun and i've not come on Pheonix Rising as often. I feel like doing these things peaked the anxiety which in turn heightens...
  24. K

    How do you prevent 'night terrors'?

    Have taken to side sleeping only lately just in case. Hasnt happened in a week
  25. K

    Who has autonomic dysfunction?

    Thank you for sharing lots of info. Where do I go next?
  26. K

    Who has autonomic dysfunction?

    Which avenues? I have an appointment next month with cardiologist. Ent next month. An eye specialist in couple weeks.
  27. K

    Who has autonomic dysfunction?

    I think its safe to say i can rule out p.o.t.s! About to do chest xray at hospital now. Finally a process of elimination.
  28. K

    Who has autonomic dysfunction?

    Saw physio today who says I have BPPV in left ear. Am now at hospital talking to them anout my concerns about my heart.
  29. K

    In memory of Silvia ( Spain )

    Very well stated. Sometimes I wonder how I battle on through the worst and think why bother but my fear of death keeps me going. Even when its our time to go I still hope theres something more and better than what cards we are given in this life.
  30. K

    How do you prevent 'night terrors'?

    Had trouble getting to sleep lastnight. Up too late talking online and then I lay there a few hours worrying about my heart and scared to sleep in case i had the night terror again. At one point i got up for the toilet and on the way down the hallway i had to stop and lean on a wall as i got...