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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. F

    Managing Potassium Deficiency - Share your experience

    As I titrated methylfolate I had a lot of stomach problems and that turned out to be the first symptom for me of too little potassium. I titrated to get the daily dose what works for me with food. and supplements as needed. Potatoes for instance have a lot of potassium.
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    Managing Potassium Deficiency - Share your experience

    oops, it is CFS/FMS, not MFS, above where I goofed, and no edit possible.
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    REFEEDING SYNDROME - The clues to healing via induced deficiencies

    Oh yes. I have continued small doses of a boron mineral. It made very noticeable changes very quickly when I was deficient of it.
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    Dang those Vitamin D3 levels

    I haven't eaten milk or cheese and such things for more than 20 years as it causes continuous diarrhea.
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    Dang those Vitamin D3 levels

    I have some blood tests quarterly for years which show the vitamin D level. It goes much lower each fall and winter. Now it doesn't. It stays consistently higher. Thankyou. I do take magnesium and many others minerals. A couple of years ago I went way low in Boron and caused tooth decay...
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    Dang those Vitamin D3 levels

    If lack of vitamin D was changed to sufficiency, then the next insufficient vitamin, like methylfolate perhaps, could or would cause those symptoms.
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    Dang those Vitamin D3 levels

    Many people can eat something with vitamin D and have it work. It doesn't work for me. Also 23andme test run through an interpreter indicated I had non-working oral vitamin D receptors. I did a trial and sure enough, it doesn't help me. So I bought a UVB light. Wow! I felt within 2 hours...
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    Dang those Vitamin D3 levels

    I use a UVB lamp. I don't absorb vitamin D orally because of genetic problems with the receptors. UVB works well.
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    glutathione, b12 and lithium

    I have posted much of everything over the years often here. Also, it must be understood. I have a genetic disease called CBLC disease. I need to take both MeCbl and AdoCbl. and methylfolate. I also take a multivitamin with small amounts of methylfolate and MeCbl. It turns out I needed 5...
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    Dang those Vitamin D3 levels

    I needed to buy a UVB lamp for making D in my skin. It works very well for me. However, when they took me off testosterone, I stopped making vitamin D. So I have a testosterone prescription. I can't absorb any vitamin D orally because of genetic problems with the receptors.
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    glutathione, b12 and lithium

    It can take years of cell making to grow enough TCR-Li as far as I experienced and have observed in others . B12 was identified in 1948 and the 1950's studies had no idea about the lithium TCR-Li as to how fluoride can disable B12. They started researching with no understanding of fluoride...
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    Dang those Vitamin D3 levels

    In the year since I started the UVB light and the 7 years of use lithium orotate my body has become much more "normal". With the TCR-Li being grown for 7 years my body is stable and my need for B12 and methylfolate has become stable and with the lithium for the TCR-Li I have a stable working...
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    Dang those Vitamin D3 levels

    A while after T=0 my skin cell making was failing and the differences were visible started days after that. My body doesn't make enough hormones to keep me alive. I have to take testosterone or estrogen or maybe DHEA or pregnenolone in suitable amount. That supplies all the downstream...
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    Dang those Vitamin D3 levels

    No, the hormone goes like this- low density cholesterol> pregnenolone > DHEA> Testosterone > ,estrogen>.more hormones> Antidiuretic hormone> more hormones > Vitamin D precursors for making vit D with UVB.
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    Dang those Vitamin D3 levels

    One has to have the precursors in the body in order for UVB to make D3 in the skin. When my doctor took me off testosterone, when I reached 0.0x ng/ml or whatever, essentially none, I could not make any D with a UVB light.
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    Dang those Vitamin D3 levels

    i felt the change for the first 5 of 3-minute one side dose of UVB and I could feel it change starting 2 hours later. And after that no more time or new changes have been felt beyond my veins, big and small. that has healed since last December is those tangles of capillaries, I used to have...
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    Managing Potassium Deficiency - Share your experience

    CFS/MFS but neither active currently. I'm keeping my MeCbl and methylfolate (and potassium) high enough. I don't have any Franconi symptoms. However, my first shot over the bow on low potassium is stomach pain and IBS I have had crystals in eye occasionally all my life/. I have low...
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    Managing Potassium Deficiency - Share your experience

    Interesting. I'm put it up here as meat is an important source of potassium and could solve a lot of puzzles for some of us. Be well.
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    Managing Potassium Deficiency - Share your experience

    This alpha-gal syndrome can also be set off in some people eating beef at least and is in the same animal foods as contains B12.
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    Managing Potassium Deficiency - Share your experience

    I just learned about alpha-gal syndrome, and I am having a guest for dinner with it. I never heard of it before last week. EXPLORE FURTHER Alpha-gal Syndrome – Symptoms, Diagnosis & Treatment lymedisease.org A Checklist for the Newly Diagnosed - Alpha-gal Information alphagalinformation.org...
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    Lithium Orotate

    I'm here and will respond. So let me know by responding to this.
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    Lithium Orotate

    You increased b6 if that caused more symptoms, those are telling you for more nutrients, usually methylfolate and/or potassium about 90% of the time. Usually the correct nutriment added will affect it's deficiency symptoms within hours.
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    Active B12 Protocol Basics

    The reactions to take methylfolate are a mix of some symptoms that are fixed by methylfolate but also some get can get worse4 because either more methylfolate needed or they are OTHER nutrients, most often potassium though for a while it was copper. The one other obvious one was BORON when I...
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    Active B12 Protocol Basics

    "Might that help the bloat?"- When I started carnitine it started enabling energy made very intentionally by carrying the fat to the mitochondria. I lost 45 pounds of water in a month when I started it. The other cause also for 45 pounds in a month was methylfolate getting rid of water.
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    Active B12 Protocol Basics

    Since 2007 I had copper insufficiency for 14 years until 6th-7th year of Lithium and suddenly I had 24 hour b12 serum half life after injection as compared with 20-50 minutes, same as research indicated before I took the lithium. I also got to midrange copper quite quickly since then. Also, the...
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    Active B12 Protocol Basics

    Glutathione causes massive "CATESTROPHIC" B12 DEFICIENCY in a day or two. It is dangerous. As I have decent B12 system now after 7 years of lithium making TCR-Li I have a very well working B12 system with a 24 hour half-life estimated. instead of the 20-50 minutes after an injection without a...
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    Active B12 Protocol Basics

    My experience with glutathione uis that it causes a catastrophic B12 d3efice4ncy in a day or two. It went from slightly visible in urine to strong red with the glutathione for a day and get rid of all the non protected B12. It was a disaster waiting to happen, very quickly. I tried about 10...
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    Active B12 Protocol Basics

    I put several hundred of potassium GLYCINE in a pint of water which I drink with vitamins and other minerals while eating. don't do potassium chloride, as it can go against the stomach tissue and concentrate making an acid and do damage. Time release pellets all separated however is fine, Be...
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    Active B12 Protocol Basics

    I always injected 10 mg mecbl 3x per day for 20 years until I got it working well with lithium making TCR-Li and WOW. Now I have a lot of my B12 in TCR-Li that protects from all sorts of chemical insult. I never had a problem with N2O but have read a lot about it. I spent 30+ years consulting...
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    Active B12 Protocol Basics

    You need to take ALL the vitamins titrated to working in the right order otherwise you will have things that work for a day or two and then stop with different symptoms. This includes things like l0-carnitine and TMP for the send part of the formula, and b-complex and minerals