• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. G

    Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/CFS (Fluge et al., 2016)

    I'm not sure if this is of interest for anyone, some here might remember me from d-lactic acidosis discussions a few years ago. Sheedy et al had completed a study into elevated levels of d-lactic acid producing bacteria in stool samples of CFS patients, which they thought might explain some CFS...
  2. G

    Association of fecal microbiota & fecal, blood serum & urine metabolites. Chris Armstrong & co

    @ChrisArmstrong - I noticed you are also looking at d-lactic acid in CFS patients and wonder how that study is coming along? Is it still going ahead? Thanks.
  3. G

    Insomnia is driving me nuts...

    The above was an abstract, here is the full study, for those that might be interested. http://apjcn.nhri.org.tw/server/APJCN/20/2/169.pdf
  4. G

    Insomnia is driving me nuts...

    I remember a health programme on the telly a few years ago, where a woman had sleeping issues and was told to have 2 kiwi fruit an hour before bedtime, and it worked! Here is a link to a study. http://www.ncbi.nlm.nih.gov/pubmed/21669584
  5. G

    Lactic Acidosis from Probiotics

    I found this study a while back being carried in Australia. It is a follow up study on the Sheedy paper, which found higher than normal levels of d-lactate producing bacteria in the stools of CFS patients. They are looking at d-lactate in blood, stool and urine samples, in CFS patients...
  6. G

    Study: Specific Carbohydrate Diet used in Crohn's

    Hi Waverunner, I think as far as the results of this study are concerned, the authors would have wanted to state that the improvements seen in these patients could not be attributed to use of immunosuppressive medications. This would have been queried during the peer review, and would have...
  7. G

    Study: Specific Carbohydrate Diet used in Crohn's

    Hi everyone, I know some here on the PR forum use the SCD or GAPS diet, and thought this would be of interest. It is ahead of print, from the Journal of Pediatric Gastroenterology and Nutrition...
  8. G

    First Vaccine to Help Control Some Autism Symptoms?

    Yeah, my heart sank when I saw that bit. And how can they spend all this time developing this without proof that these bacteria are causing the neurological changes. I think this needs to be verified first imo. Nevertheless, I do tend to become excited when I see any gut bug/carbohydrate link...
  9. G

    First Vaccine to Help Control Some Autism Symptoms?

    Apr. 24, 2013 — A first-ever vaccine created by University of Guelph researchers for gut bacteria common in autistic children may also help control some autism symptoms. The groundbreaking study by Brittany Pequegnat and Guelph chemistry professor Mario Monteiro appears this month in the...
  10. G

    D-Lactate an HS2 Tests?

    It looks like they send it to Mayo Clinic for testing, by the looks of the address at the bottom of the link. Mayo also have the test available, if you would rather go through them direct. http://isj.testcatalog.org/show/DLAU I would imagine that both would be ok for d-lactate testing. I...
  11. G

    trial: Gut Flora in MS

    Increased d-lactic Acid intestinal bacteria in patients with chronic fatigue syndrome. Sheedy JR, Wettenhall RE, Scanlon D, Gooley PR, Lewis DP, McGregor N, Stapleton DI, Butt HL, DE Meirleir KL. Source Bio21 Institute of Biotechnology and Molecular Science, Department of Biochemistry and...
  12. G

    Fecal Transplant Banishes C. Diff and improves insulin sensitivity

    Here is an article from Science Daily about this study. ScienceDaily (Oct. 19, 2012) — A novel therapy that uses donated human stool to treat the deadly and contagious C.difficile infection is safe and highly effective, according to a Henry Ford Hospital study. Researchers found that 43 of...
  13. G

    How the Body Uses Vitamin B to Recognize Bacterial Infection

    ScienceDaily (Oct. 10, 2012) — An Australian research team has discovered how specialised immune cells recognise products of vitamin B synthesis that are unique to bacteria and yeast, triggering the body to fight infection. The finding opens up potential targets to improve treatments or to...
  14. G

    In Memory of Rich Van Konynenburg.

    How very sad. Rich was so kind, and highly thought of amongst us here. My deepest condolences to you and your family, Diana.
  15. G

    ME Research UK's Breakthrough magazine - Autumn 2012

    My favourite titbit was a small report regarding a study in Norway about gut symptoms :). I can't access the full article as it's behind a pay wall, but here is the abstract. I wonder whether they think it's the food directly, or gut bacteria/toxins? causing symptoms. Functional bowel...
  16. G

    Gut Microbes Help the Body Extract More Calories from Food

    ScienceDaily (Sep. 12, 2012) — You may think you have your food all to yourself, but you're actually sharing it with a vast community of microbes waiting within your digestive tract. A new study from the University of North Carolina School of Medicine reveals some gut microbes increase the...
  17. G

    Sinusitis Linked to Microbial Diversity

    ScienceDaily (Sep. 12, 2012) — A common bacteria ever-present on the human skin and previously considered harmless, may, in fact, be the culprit behind chronic sinusitis, a painful, recurring swelling of the sinuses that strikes more than one in ten Americans each year, according to a study by...
  18. G

    The Autism Enigma - ABC Four Corners

    Thanks it's good to know that at last there is another study taking place. I wonder when the study results will be released. Our GI has scoffed at this notion for years, and I will take great pleasure in presenting her with these results, if they are positive. Also our paed who reckons he is an...
  19. G

    The Autism Enigma - ABC Four Corners

    Hi Alex, This study below was done 12 years ago, regarding gut bacteria and abx/autism. Guess how many follow up studies have been done since this one, 12 years ago? You'd think that a treatment that reversed some autistic traits would be pounced upon. Not! Short-term benefit from oral...
  20. G

    Breast Milk Promotes a Different Gut Flora Growth Than Infant Formulas

    ScienceDaily (Aug. 27, 2012) — The benefits of breast milk have long been appreciated, but now scientists at Duke University Medical Center have described a unique property that makes mother's milk better than infant formula in protecting infants from infections and illnesses. The finding...
  21. G

    Manipulating the Microbiome Could Help Manage Weight

    ScienceDaily (Aug. 26, 2012) — Vaccines and antibiotics may someday join caloric restriction or bariatric surgery as a way to regulate weight gain, according to a new study focused on the interactions between diet, the bacteria that live in the bowel, and the immune system. Bacteria in the...
  22. G

    The human microbiome

    Sad isn't it that it has not.
  23. G

    The human microbiome

    Thanks for this filfla4, very interesting.
  24. G

    Early Exposure to Antibiotics May Impact Development, Obesity

    ScienceDaily (Aug. 22, 2012) — Researchers at NYU School of Medicine have made a novel discovery that could have widespread clinical implications, potentially affecting everything from nutrient metabolism to obesity in children. Since the 1950's, low dose antibiotics have been widely used as...
  25. G

    Autism and CFS: personal testimony

    Thanks for this natasa, a very heart-warming story. I wish Sara all the best and continued good health.
  26. G

    Lactobacillus plantarum.. Is it d lactate free?

    Here is the one I mentioned a few posts above, regarding the boy with carb malabsorption problems who developed d-lactic acidosis. http://journals.lww.com/jpgn/Fulltext/2010/01000/D_Lactic_Acidosis___Right_Left_Disorientation__in.25.aspx
  27. G

    Lactobacillus plantarum.. Is it d lactate free?

    I have another one here where a man developed d-lactic acidosis after he had a feeding tube inserted and it was later found to be in the wrong place. If you read this one, you will see references 6 and 7 refer to another 2 case studies where the patients did not have a shortened bowel...
  28. G

    Clear Links Found Between Inflammation, Bacterial Communities and Cancer

    Thanks, I think I was editing my thread when you posted yours, must be quicker next time!
  29. G

    Common Parasite May Trigger Suicide Attempts

    I don't think they ever would. They "might" refer them on to the relevant specialist, but then again, they are not trained to recognise mental health issues as being related to an infection. And it would do their own careers the world of good if other mental health issues were the resut of an...