• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    Can anyone recommend a qualified ME-aware disability lawyer in Portland, OR area?

    Thanks, Judee! I checked into Kantor, but they only do LTD, not SSDI. I have some local names I'm trying. Anyone else know of a Portland, OR area SSDI lawyer (initial phase, haven't applied yet or gotten rejected)
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    Can anyone recommend a qualified ME-aware disability lawyer in Portland, OR area?

    This is RWP, PWR's husband (borrowing her account!) I recevied SSD & SSI back in 1990, using a local lawyer (not ME-focused, but competent). Not sure if he's still in practice, but since I may have to apply now (I've been able to work part-time for much of the intervening period), I would...
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    Prayer Requests & Praises for Nov/Dec

    Hi all, A quick praise to the Lord and request. My back was seriously going out due to failing box spring (only 4 years old). We got a better foundation, and it seems to be helping. Please pray for recovery/relief for my back. PWR
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    My CFS/ME was GHD

    @awkwardlymodern, I'm also glad you've found help. I'm wondering if anyone else on PR has found GHD (for me, a significant part of my ME/CFS, not my entire illness) a major player??? I saw a ME/CFS Dr. who followed Dr. Paul Cheney's program with Exercise/Bicycle testing, measuring GH before...
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    Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individua

    @Jonathan Edwards, @jimells Thank you for your keen response. I was aware that many have been puzzled by this one but I thought it was worth asking, just in case anyone had figured it out, since it was recent. I will look up the Purple Booklet you mentioned. @jimells has put up the link...
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    Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individua

    I have written on another thread, asking for advice on articles to help my (bascially understanding but underinformed) Dr. understand my extreme limitations with moving by body to exercise much. Here's the link...
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    Please help me prove dangers of (very much) exercise to my Dr.

    Hi All, This is a duplicate of a new thread I began on the members section. I have a basically understanding N.D. who is managing all my care since my ME/CFS specialist discontinued his practice. She knows I'm ill and sees me lying down at each appt. I am mostly bedridden, except for 1/2...
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    I'm new here; I'm posting GG methylation profile, esp. B12 (double whammy) and low ferritin

    To all, I just got back recent Thyroid tests (TSH, Free T3 and T4) and they were worse than 6 months ago, even though I have maintained the same dose of Armour Thyroid and been extremely consistent. Thus, my N.D. upped my dose from 1/2 grain (30 mg) to 3/4 grain (45 mg). I forgot to mention...
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    I'm new here; I'm posting GG methylation profile, esp. B12 (double whammy) and low ferritin

    @stridor, Don't be so sure that the info is incorrect, maybe just unconfirmed. I only have a minute but I wanted to mention that there could be a very logical/medical reason why you were able to help your friend with her iron by suggesting B12. If she needed help with methylation, then the...
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    I'm new here; I'm posting GG methylation profile, esp. B12 (double whammy) and low ferritin

    @stridor, @Changexpert, @WillowJ, @Gondwanaland,@Helen Thank you all for your responses. I will try to separate these out individually but I want to make sure you know it's coming, whether I get to it in this post or the next! @Helen, you said in '13 I have been looking but have been unable...
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    I'm new here; I'm posting GG methylation profile, esp. B12 (double whammy) and low ferritin

    @Helen, @stridor I'm going to reply to you two first because I partially got the idea to ask this question by reading a post (I will try to add in later this link) from '13 where you both were involved. Thank you. In that post, Helen said "A low ferritin might be caused by a vit B12...
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    I'm new here; I'm posting GG methylation profile, esp. B12 (double whammy) and low ferritin

    I'm new here. I will upload my (and my husband's) GG methyl. profile obtained through 23andme testing. I have very low ferritin now (9 mg/dL). I have iron-deficiency anemia and have recently been low in hemoglobin, though not now. My iron is now 118, and my hemoglobin is now 13-14. I am...