• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. A

    All my fault?

    Course you can. I don't mean to be nasty about her. In fact she's a lovely woman. Very warm and friendly. Everyone just calls her Julia. But they are the facts she told me.
  2. A

    All my fault?

    P.s. She also said that my head being wired with non stop thoughts and flashing lights when I close my eyes has nothing at all to do with m.e and I need more time with the physchologist.
  3. A

    All my fault?

    Absolutely. She told me supplements don't make any difference to m.e and dr myhill has never published any papers to prove her theory. The cresta clinic in newcastle which I am a patient consists of a physchologist, an OT and a physio. Their protocol is graded exercise and CBT. The physio is...
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    All my fault?

    Thanks I'll check out leaky gut info. Julia is my consultant. To be honest I don't really rate her. She's not interested in mitachondria. All she does is tell me to walk further and my body will get used to it. further and my body will get used to it. The latest letter she sent to my GP said...
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    All my fault?

    p.s. I can't take GABA or anything to calm neurotransmitters. I just get horrendous migraines. P.
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    All my fault?

    Hi, sorry it has taken so long to reply to your helpful email. My eyes are so weak and I wore myself out the other day on here. I've been working with a nutritionist from the OHC for past two years and take B12, NAC, melatonin for sleep, vitamin c, vitamin b complex, whey protein and veg epa...
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    All my fault?

    Thank you to all you lovely people who replied to my cry for help. Sorry I didn't get back on here sooner as my eyes are really weak and posting that short message made me ill for days. I'm still struggling with it not being all in my head although I do want to believe you all so much. The...
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    All my fault?

    I will reply tomorrow. Sorry my eyes are bad.
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    All my fault?

    No I've had the tests orthostatic hypotension with professor Julia Newton who specialises in this and I don't have it. No it didn't start with a virus. It started after a lot of stress. No sinus problems but chronic migraines for years. No blocked nose or environmental issues. My symptoms are...
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    All my fault?

    Actually it turns out I've had m.e 23 years. I was diagnosed with ms all that time ago, wrongly diagnosed and only found out two years ago when I crashed that it was m.e after injecting an ms drug called copaxone everyday. Thanks NHS. Yes I'm worrying about worrying about the m,e because...
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    All my fault?

    Yes that's what say it is, burnout. They say its like you have so many stresses in a boat and you just keep adding more (relationship worries, financial, viruses) and eventually the boat sinks but if you spend time in a healing state the ANS will relax. Alex Howard, founder of OHC had m.e for...
  12. A

    All my fault?

    Oh and Justy I forgot to add I have candida and leaky gut and I know that can cause anxiety so that won't be helping me. X
  13. A

    All my fault?

    Oh people here have been so lovely to me already. I've just had a cry. I'm so grateful to you all. I've been carrying all of this heavy load on my shoulders for years and even though I've known it's bringing me down, I didn't realise how much. It's massive. A massive part of the problem is...
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    All my fault?

    Hi Adreno it's not that I want to focus on my symptoms as I know that would be depressing. I just don't want to jump and activate fight/flight response every time I have an m.e thought which is ridiculous.
  15. A

    All my fault?

    Thanks Blue. He's a German physicist who had m.e for seven years. All I've ever known is that's its physiological so I guess it's going to take time to stop worrying every time is have an m.e thought. It's so deep rooted now. I've spent nearly £20000 on all these treatments What a waste of...
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    All my fault?

    Thanks for that Jeff I've often wished I had cancer over the years instead of m.e as at least there would be some help and it wouldn't have been all my fault because I couldn't get the techniques to work for me. It's so hard to meditate and be relaxed when your neurotransmitters are crazy and...
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    All my fault?

    Thanks Jeff th
  18. A

    All my fault?

    Thank you all for replying to my post. I feel a small sense of relief but I suppose this phobia is so deep rooted it will take time to believe it. I was told that if I got my body into a healing state then it is so intelligent it can recover itself. And I know from the OHC forums that people do...
  19. A

    All my fault?

    Hi all, I'm new here and feel pretty desperate. Not sure if Im posting at right place but here goes. I wonder if anyone can help me. Any feedback would be greatly appreciated. For the past two and a half years I have been very ill with cfs, bed bound for one year but mostly housebound now. I...