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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R

    My journey to heal from CFS - diary

    Here are a few important notes: - I think Omega 3 from Krill oil was helping me tremendously. I need to find a reliable, effective but affordable brand ASAP. I am currently looking for other inflammation modulators to help. - I think that CDS was very helpful for me, back in March and April...
  2. R

    Anti inflammatory supplements

    Hi there, I believe I need to do way more in terms of anti-inflammatory / inflammation modulation. When my Krill oil ended 2 months ago, I didn't reorder. I regret that now. So, I will be restarting Krill oil soon (about 800mg EPA and DHA). Do you know any affordable but good brand? I am...
  3. R

    Do you ever think about your financial future?

    I am so lucky that I have a research grant and I can "work" from home. When that grant is up, I think I will have saved enough money to survive off the dividends that money generates (about $750 per month). I understand that I am very very fortunate, I think that a lot of people eventually die...
  4. R

    Mutaflor versus chelation

    Hi @Tuskentank I am mercury, lead, cadmium and arsenic toxic. I am HEAVILY toxic, and that is the cause of 60% of my CFS, I am sure. How is your methylation? Have you tested your genes? Best
  5. R

    My journey to heal from CFS - diary

    @Learner1 Stick around for another little while, please. :) Could you please point me to good and basic reads on methylation? This is something I haven't studied yet. I came across the concept several times, but never found easy reads on this. Yes, I know the concept of metal redistribution by...
  6. R

    My journey to heal from CFS - diary

    @Learner1 I live in Portugal. Heavy metals is not a big problem here. This country is very clean, if we compare it to the US. Even tap water is OK (I filter it though). I feel I know more about health than my naturopath, which is a fucked up feeling. I simply don't have the experience of...
  7. R

    My journey to heal from CFS - diary

    OK. I've been really making some progress as far as "getting to the bottom of my condition", and here's my take: 1 - There is no such thing as CFS. CFS is a condition - or a group of symptoms - that many people arrive at, through different paths. It may be Lyme, heavy toxicity, a virus or a...
  8. R

    My journey to heal from CFS - diary

    hi y'all I've been doing very bad lately, especially today. However, I did bet better for a long while. I've recently (last 45 days) been feeling really bad (ups and downs), with more symptoms, such as head pressure, swollen head and eyes, impaired ability to focus or concentrate, sensation my...
  9. R

    My journey to heal from CFS - diary

    What symptoms exactly?
  10. R

    My journey to heal from CFS - diary

    I didn't ask how to do the ascorbic acid, did I? ;-) Or do you think that this is what I meant with "a plan in action that will activate the detox pathways by removing all the garbage that is in my body and slowly rebinding it." This has nothing to do with vit C. I mean, vitamin C will be a...
  11. R

    My journey to heal from CFS - diary

    This is awesome! Congrats on the detail. I hope you're feeling better. I am on my way to stabilize, I think. I haven't been feeling so awful in the past days, but I still seem to have a lot of symptoms from this setback, including: - Swollen head, face and eyes, especially when I wake up. -...
  12. R

    My journey to heal from CFS - diary

    Just leaving some pointers, as this will be useful in the future... I know what I want to do, as the protocol is ready to go. I am simply finishing the CDS cycle and then I will start my grand plan. Either way, these are things I want to explore either during the plan or after if I have no...
  13. R

    My journey to heal from CFS - diary

    Did you do it like in the video? Soy lecithin + ascorbic acid in the ultrasonic cleaner? You mean the liposomal it didn't increase your bowel movements? How much were you taking? I plan to take it as pure ascorbic acid, liposomal or both. Perhaps a few capsules here and there, but not as a...
  14. R

    My journey to heal from CFS - diary

    Dear @pamojja, Thanks a lot for this comment. Yes, once I am done with CDS, I will slowly increase my C to 6-8g/day, taken throughout the day w/ magnesium (different forms). Regarding the form of C, what form and brand do you take? I will take either buffered C or liposomal C (I will...
  15. R

    My journey to heal from CFS - diary

    I am writing this here so that I can come back to it and appreciate feeling better. I am on total crash, feeling exhausted, super dizzy, my head hurts a lot, nausea, etc. This is by far the worst status of the past 90 days. I believe this happened due to a combination of factors such as: - The...
  16. R

    My journey to heal from CFS - diary

    OK, this food poisoning episode brought me down like fuck. I was better 2 and 3 days after the episode, and when I thought I was going full speed towards recovery... These days have been bad, very bad. I feel very weak and dizzy (the latter the entire day), not to mention this sense of feeling...
  17. R

    My journey to heal from CFS - diary

    Hi y'all, I decided to take 5 days off and head to the beach side. The first days were amazing, but then I have got food poisoning, which was extremely hard to handle: my dizziness broke loose like never before and I honestly wanted to die... At first I thought it was actually the dizziness...
  18. R

    My journey to heal from CFS - diary

    Hi y'all, Since April 28th, I've been feeling like shit. Honestly, I can't connect the dots. I new that eating more cashews and a small bite of dark chocolate would cause dizziness to appear, but this went too south too fast. This was not a crash, this was a total meltdown. I've been trying to...
  19. R

    Drinking baking soda (sodium bicarbonate) may treat autoimmune disease

    I thought this was standard practice among people with CFS... I do this every single day...
  20. R

    My journey to heal from CFS - diary

    I just read my messages from February, and realized I am WAY better than before. This is great news. I am actually so caught up in this bubble that I tend to have problems seeing the forest... I can only see the tree. Today is a very bad day (the worst of the last 30 or so, by far), but I know...
  21. R

    My journey to heal from CFS - diary

    Could you please lay the foundation for this answer? This goes opposite to everything I know about eggs. Thanks
  22. R

    My journey to heal from CFS - diary

    I see Brenda, thats a good point. However, I've been tweaking my diet and trying out different foods, while watching out for changes in the symptoms. I realized that fat (good fats, that is - I don't consume bad fats) TEND TO cause the problem. This is true for highly concentrated fats such as...
  23. R

    My journey to heal from CFS - diary

    Thanks for the reply Brenda. I haven't, but will do soon (I will be traveling and I won't take supplements with me). Other than that, no fast. I am thinner than ever and I only weight about 150 pounds (I use to weight 190), given that my diet is ultra clean. I am actually afraid if I fast...
  24. R

    My journey to heal from CFS - diary

    The patterns are the same: I get better for 10 days, I relapse for 3-5 days. Anyways, I am getting better overall, so I will continue to do what I've been doing. I think I will reduce animal protein to 1-2 servings per day, though. Not for now, but maybe "soon". I am not 100% regular yet, but...
  25. R

    Huge energy today with Grapefruit and Ubiquinol (Coenzyme Q10). We'll see about tomorrow.

    Has someone tried grapefruit seed extract instead of grapefruit juice?
  26. R

    My journey to heal from CFS - diary

    Thanks Sundancer, but when I do eggs I do 4 whole eggs, so there is a lotta fat in there (smtg like 20g-25g)!
  27. R

    My journey to heal from CFS - diary

    Hi y'all, The 30 days before April 10th were the best I've had since October. The dizziness was 95% gone in that period, I had enough energy to work from home and my emotional state got up, as a result. In the past 5 days, I've had another relapse, and I am dizzy again. The day I got worse...
  28. R

    My journey to heal from CFS - diary

    Thanks a lot for the comment, but no alcool in my system. :-)
  29. R

    My journey to heal from CFS - diary

    Hi y'all, 1) I am getting more and more regular (seem to fail 2 days every 10 days). What helps: some low GI fruits, 1 espresso after breakfast (I am still on my egg-free 30 day journey, not sure whether this impacts the result). I am still not on point, so this is my priority still. I feel...
  30. R

    My journey to heal from CFS - diary

    Supplementation regime update Empty stomach: Ionic minerals (30 drops) and Turmeric+Bromelain* (300mg + 150mg respectively) BF - Vitamin D 4.000IU - Fish Oil 2g - Krill Oil 1 cap (about 400mg EPA/DHA) - Cats claw 500mg - Vitamin A 4.000IU (will start soon) - 5HTP (will start soon) - Essential...