• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Frank

    UTV: Northern Ireland: ME Sufferers call for help

    Video: ME sufferers call for help, kid with ME http://www.youtube.com/watch?feature=player_embedded&v=kWsaXGefm1E
  2. Frank

    What CFS cause(s) should I donate to?

    http://www.simmaronresearch.org/
  3. Frank

    my stomach swells like im 9 months pregnant..anyone else?

    To me it sounds like protein problems. H2s gas creation.
  4. Frank

    3 Things that Help the Most!!

    1.Amitryptiline for sleep and pain (massive difference) 2.Dietary changes for IBS (no diary and gluten, no aspartame, no msg, little meat, ...) 3.B12 hydroxycobalamine IM for energy 4.Pancreatic support (digestive enzymes) for better stools and digestion, for gaining weight
  5. Frank

    Amy Yasko talks about Gc-MAF and much more

    Questions about GcMAF, butyrate and other things http://vimeo.com/31810597
  6. Frank

    Chase Community Giving Contest for Small Non-profits Coming Soon--$3MM in Prize Money

    I think the belgium team is ready for voting, 230 people in private facebook group, 600+ in mailing list.
  7. Frank

    MAF 314 - All Natural GcMAF Plus Probiotics

    I will ask KDM in November about this.
  8. Frank

    Looking for an alternative or better source for Ortho Molecular Product CardioB

    merely suggestions: methyl-b12 from jarrow http://www.vitaminlife.com/product-exec/PNAME/Methyl-B-12-5000mcg/product_id/25538 b-right from jarrow http://www.vitaminlife.com/product-exec/PNAME/B-Right-Complex/product_id/25320
  9. Frank

    Making your own liposomal vitamin c

    Somewhere on this forum was info on how to make your own liposomal vitamin c and gluthatione. It involved using lecithin. Anyone able to find this post. I've lost it on my computer.
  10. Frank

    Win 100,000 for National ME/FM Action Network - just a few clicks

    Let's try, collecting votes now Ask three friends trough Facebook chat to cast a vote for the national ME/FM network trough Vivint. Dear (friends name), I want to ask you for a favor. Please vote on through the following link: http://www.vivint.com/givesbackproject/charity/855 , click on the...
  11. Frank

    Please help PANDORA in the Citgo Fueling Good Contest

    thanks for letting us know
  12. Frank

    Dan peterson starting own foundation

    I've heard De Meirleir got some funding from the Australian army for research on GWS, maybe Peterson too.
  13. Frank

    Vivint - Every 30 seconds

    A group of about 100 are sending votes from Belgium
  14. Frank

    Connection Fibromyalgia - whiplash/ car accident

    A lot of car accidents could be causing damaged/malfuctioning structures in the brain causing low cortisol levels, causing Addison's disease, causing fibromyalgia. Opinion by Dr. Francis Coucke, Belgium http://en.wikipedia.org/wiki/Addison%27s_disease
  15. Frank

    White tongue -threelac - need help

    Diflucan 50mg/ every day for 3 months and restoring the gut helped me with this problem.
  16. Frank

    The BIG CHASE: funding US ME/CFS non-profits

    The first $50 000 for ME/CFS, we're almost there!
  17. Frank

    "new enhanced Perrin technique" in Dublin

    I know the price is also enhanced :)
  18. Frank

    The BIG CHASE: funding US ME/CFS non-profits

    http://www.youtube.com/watch?v=Z0tikeIGtc4 LINK 1: http://www.facebook.com/ChaseCommunityGiving LINK 2: http://apps.facebook.com/chasecommunitygiving/ for details visit: http://chasegiving.tk
  19. Frank

    The BIG CHASE: funding US ME/CFS non-profits

    Ok hopefully we get at least WPI and CAA in contest. I'm ready to do some tutorial and website work.
  20. Frank

    The BIG CHASE: funding US ME/CFS non-profits

    I think on 4/4 it will be possible to look up all the organisations that are IN contest. So then we can first look them all up and then do a poll?
  21. Frank

    Contest: $1000 to ME/CFS, $2000 to the salvation army

    This takes one minute: -fill in the simple math question -fill in your (secondary) emailadress -Check the I agree box -and click vote http://www.melittametime.ca/videos/view/63
  22. Frank

    The BIG CHASE: funding US ME/CFS non-profits

    31th of march is a possible start-up date for a new chase giving contest! http://apps.facebook.com/chasecommunitygiving/?ref=ts
  23. Frank

    belgian national protest action on 14th march!

    Just got back from the manifestation. Probably won't change a lot but it was good to connect with other patients and to get the word out. Here is a tv-report. http://www.youtube.com/watch?v=mF4anBXiuBg
  24. Frank

    Boris a 6yr old talks about having ME?

    http://www.youtube.com/watch?v=Iz1VQcjpg7s If this is a repost please notify me
  25. Frank

    belgian national protest action on 14th march!

    I've made some banners: Life as a vegetable is no life! ME/CFS target the cause, not the patient!
  26. Frank

    Rodent Exposure Poll

    I've been bitten by a mouse and had a cat that died from an ME-like illness (cat aids the vet called it)