• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. angee111

    AUGUST 2016 UPDATE: Still in Remission, now studying FULL-TIME and applying to med school

    I'm very sorry for my extremely late update on my health. I remember when I was much more ill that people on this site would say something along the lines of "if they haven't posted in a while, they've either gotten better or deteriorated to the point of no return." Luckily for me, it was the...
  2. angee111

    Comment by 'angee111' in 'Remission: completed 1st university semester with minimal struggle and top grades'

    thank you @ahmo , @Kathevans and @hellytheelephant! @Riman I think it was a combination. I definitely began feeling solid improvement after beginning these supplements but it was furthered by my strict adherence to diet. I can't say I'm paleo as I do eat rice occasionally (always with protein...
    • angee111
    • Blog entry comment
  3. angee111

    Remission: completed 1st university semester with minimal struggle and top grades

    The 2nd half of 2015 has gone very smoothly with relatively few setbacks. I've been taking a mitochondrial support protocol including acetyl L carnitine, alpha lipoid acid, coQ10, NAC & vitamin E. I have also been eating a sugar free, mostly vegetable and organ meat rich diet as well as taking...
  4. angee111

    Why can't we treat mental illness by fixing the brain?

    @WoolPippi of course! Sometimes I write things in a rush a don't consider how easy to read they are, oops :P Hope Vit D3 and Zinc keep working their magic ;)
  5. angee111

    oxygen/Co2 ratio in blood and energy?

    @Theodore I thought so, but I don't think it's offered for me/cfs patients in Australia /: have you tried oxygen therapy/know of people who have benefitted?
  6. angee111

    oxygen/Co2 ratio in blood and energy?

    Due to the fatigue associated with having this illness, I often don't have sufficient energy to even muster up a chuckle when I find something amusing. However when I do laugh, I often find myself having improved energy for around the next 10 minutes or so until it wears off. I also notice I...
  7. angee111

    Carnitine + lipoic acid

    I take 1000mg of acetyl L carnitine, twice a day. I also take 300mg x 2 daily. It's one of the only supplements I've found to be noticeably effective in energy/motivation. It's not long lasting, but it helps enough for me to be able to cope with university studies.
  8. angee111

    Why can't we treat mental illness by fixing the brain?

    Even if people don't have underlying gut problems/dysfunctioning hormones etc... the unique thought process that people have is initially not under their conscious control. It's more like, our brain subconsciously interprets an event and tries to make sense of it, then creates a reaction in our...
  9. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    I found cleaning up my diet and fixing up my adrenal issues helped a lot. I don't eat ANY processed sugar, dairy or gluten. I can tolerate some foods in small amounts (like cheese) but it helps to steer clear from most of them. Also, try finding a doctor that is knowledgable in adrenal issues...
  10. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    @Chadwick that is terrible /: I've had this issue for years as well.. it is damn awful and hampers your ability to function and completely diminishes your ability to appear like at least a somewhat intelligent human being. I have had the same thing happen to me! Good luck on your journey :)
  11. angee111

    Comment by 'angee111' in 'University entry offer'

    Thank you Vasha and Snow Leopard! I will be planning to use video lectures as much as possible. I haven't made an appointment with the DLO, but I am going to first thing tomorrow morning. I wasn't sure I would get in, so I didn't bother making an appointment as I was really doubting myself. I...
    • angee111
    • Blog entry comment
  12. angee111

    Comment by 'angee111' in 'University entry offer'

    Thank-you Hutan! I am so incredibly grateful I have been able to achieve this. It gives me great hope and reason to look forward with anticipation and not dread.
    • angee111
    • Blog entry comment
  13. angee111

    University entry offer

    So, a couple of weeks back I had completed an aptitude test for entry into uni. As I had little sleep the night before paired with the beginnings of a cold on top of my CFS/ME, my doubts about my performance were strongly justified. However just a week ago, I received a letter giving me my test...
  14. angee111

    Comment by 'angee111' in 'Effects of ME/CFS on mathematical ability'

    Thank you so much guys for the reassuring comments! @vasha I actually did ask for more time, about 40 minutes extra. However, as I had just caught a cold the day before and was unable to sleep properly.. I was feeling twice as exhausted as usual. After 2 hours, I could not concentrate anymore. I...
    • angee111
    • Blog entry comment
  15. angee111

    angee111

    • angee111
    • Blog
    • Blog entries: 4
  16. angee111

    Effects of ME/CFS on mathematical ability

    So I did an aptitude test 2 days ago for mature aged students university entry, which was supposed to test my verbal and quantitative reasoning skills. Although I managed to answer most of the verbal reasoning questions with minimal difficulty, I found it particularly challenging to understand...
  17. angee111

    Cfs/me/pots from vaccine

    Hm.. it's not uncommon for people to have adverse reactions to vaccines and be permanently affected by them. I remember reading that it stimulates a part of the immune system not associated normally with a reaction to natural viruses/bacteria. The binders included in the vaccine may also be a...
  18. angee111

    Lyme disease in Australia

    Thank you everyone for your replies! I think the best route for me to take would be to be tested for a broad range of bacteria antibodies, as although I do live in Australia I have been overseas multiple times.. and can specifically recall the worsening of my symptoms to one particular trip I...
  19. angee111

    Lyme disease in Australia

    It's something I have contemplated occasionally, as apparently people can be infected in Australia, regardless of whether they've been overseas or not. As many symptoms overlap, it's pretty hard to assess whether you have ME/CFS or lyme and co-infections. Many doctors here in Australia disregard...
  20. angee111

    Realistically there is no cure?

    Honestly, I would be completely content with effective treatment that significantly improved my quality of life and allowed me to at least live like a semi-normal person. Sure, never having to worry about taking my medication or making sure I eat well 100% of the time and making sure I get...
  21. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    The only thing I've been doing different is going to bed later (normal bedtime is 11:30, been going to bed at around 2am) and sleeping more. Though today I feel like all the activity I've done in the past few days has hit me.. can't stop yawning and it hurts to try and reach things in high...
  22. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    update: Had the same thing occur to me 2 days in a row!! Granted, I've been able to sleep a full 10-12 hours the past couple of nights but I've been reasonably functional (being able to complete assessment tasks for my course and walk to get groceries) with minimal brain fog and fatigue. I was...
  23. angee111

    Book published this week in UK referring to ME as psychosomatic

    aqkldsbdjshdn !!! I am flabbergasted that this is a real thing. In 2015. In a supposedly "modern" country. Why exactly should we trust that the medical establishment has our best interests in mind, when they are spending so much time and energy publishing nonsense rather than much more fruitful...
  24. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    Nicotine.. that is.. interesting! Were your side effects from the patch worse than usual PEM crash?? I wonder how exactly nicotine (if in fact it was nicotine) alleviated your symptoms. Extra self experimentation would be in order, only if the side effects weren't overly terrible tho /:
  25. angee111

    Hypothyroid, adrenal fatigue and EBV

    If you're not having any neurological, cardiac or flu like symptoms it is highly unlikely you have CFS/ME. However I would encourage you to visit an endocrinologist that has interest or specialises in hashimoto's, and to see a doctor that has an interest in EBV and has treated patients who have...
  26. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    hmm... that's interesting! Have you had any hormone tests done? I remember my GP saying this was pretty common when your cortisol levels are out of whack, especially if it happens regularly. eeeee!! :s blurry vision is definitely something I have never had a problem with. So are you saying the...
  27. angee111

    1 hour remission, random occurrence of apparent shift in brain chemistry

    So yesterday I was up pretty late.. about 2 hours past my bed time when all of a sudden I felt the tingly feeling in my brain subside along with the pressure, mental exhaustion and anxiety that usually accompany it. There was no apparent reason for this, other than my staying up past my bedtime...
  28. angee111

    MRI technology reveals deep brain pathway in unprecedented detail

    that would explain things perfectly!
  29. angee111

    MRI technology reveals deep brain pathway in unprecedented detail

    ufff, hopefully these magic machines will begin to be used in trials and begin to be widely available sooner than that!!
  30. angee111

    How do you live?

    atm, I essentially live off my mother and benefits I receive from social welfare, which I am currently receiving as a part-time student with significant impairment. Most people with ME/CFS who are unable to work even part time will either be having family members look after them (most often...