• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    Poll: Which name is better: Chronic Fatigue Syndrome or Systemic Exertion Intolerance Disease?

    I think that a name change to SEID would be devastating for people with ME/CFS. There has been far too many name changes as it is!! Why not just get rid of CFS, as this is the term that is belittling to the disease. I have had ME for almost 20 years and I understand the battles that have to be...