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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Reno

    Not sure where to post a question to gatherer data.

    I want to know the Year and rough location when people started feeling paint or fatigue. Not looking for any long reply, no paragraphs or sentence, example; > 2008, 95928 < This is me and my data Looking for only major symptoms like ME /CFS and closely related issue. and want to keep...
  2. Reno

    Is this Neuropathy ?

    Mostly noticed in feet and calves after standing for about 5 min or longer. *Feet start getting hot *Vines swell up *Skin turns red/ light purple/ blueish *Pain gets worse the longer i stand and climbs my calves *Prolonged standing causes knee pain then hip and sacral pain *If limbs are...
  3. Reno

    Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation

    Breath test ok already did that, it how i know i have SIBO and why i posted the question. Wasn't sure what test lakesarecool was referring to test for Rifaximin or CFS or didn't understand that i have SIBO. Thanks for clearing it up. P.S. i have already tried Candibactin AR and...
  4. Reno

    Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation

    I appreciate all the information but don't you think you should start your own thread, none of this stuff answers my question. "Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation"
  5. Reno

    Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation

    What test?
  6. Reno

    SIBO What test will determine what specific bacteria is overgrown

    Some of your suggestions such as lemon juice & vinegar, I have to stay away from due to histamine's 'HIT' I also have FUT2 gene mutation so yes low acid and flora due to not secreting antigens. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3098274/ "UREA.- -plaque microorganisms readily...
  7. Reno

    Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation

    Can SIBO cause or mimic symptoms of HIT, Mast Cell, CFS, Neuropathy, Brain fog and Inflammation or is it just another symptom? to add to the long list.
  8. Reno

    SIBO What test will determine what specific bacteria is overgrown

    What test will determine what 'specific' bacteria is overgrown and is the data valuable for removing/ reducing it and or help with specific foods to avoid or consume that the specific bacteria feed on?
  9. Reno

    capsule cam endoscopy preliminary screening alternatives ?

    I need to have the capsule cam, endoscopy done but the GI specialist keeps wanting me to ingest things i'm allergic to or are toxic to me. The first was CT w/ barium contrast after telling him i can't ingest barium he then wanted me to take a Patency capsule that dissolves. Luckily i've...
  10. Reno

    SIBO symptoms for Methane vs Hydrogen

    Other than South's reply #2 the rest have nothing to do with my question!
  11. Reno

    Are there different symptoms for low Glutamine vs glutamic acid

    Are there different symptoms for low Glutamine vs glutamic acid And is there a simple way to verify which one i should take?
  12. Reno

    SIBO symptoms for Methane vs Hydrogen

    From my brief understanding there are two different categories of SIBO type one that produce methane and the other hydrogen. If this is correct are there different sets of symptoms that can be used to determine methane or hydrogen producing bacteria overgrowth?
  13. Reno

    Suppress ticks and cure for Lyme? Carvacrol,Nootkatone, AChE

    http://www.dtic.mil/docs/citations/ADA512887 The above link is an overview of the study regarding Carvacrol & Nootkatone use as a suppressant for ticks. [Carvacrol] is in oregano oil. [Nootkatone] is in grapefruit extract. Both of which are used in natural remedies to battle lyme...
  14. Reno

    Herb or supplement taken before blood draw ?

    Do you have any links or documents I can verify what you are saying, it's a $600 test! and would like to do everything possible to eliminate Lyme as a possibility. As for the getting the blood draw when feeling bad unfortunately?/ fortunately? i have been doing really well for almost a month...
  15. Reno

    Herb or supplement taken before blood draw ?

    Thank you Justy, I'll look into those protocols. As for antibiotics, Advanced laboratories specifically told be to stop taking them for 4 weeks if I was currently. I wish the naturopath that told me about the herbs wasn't such a flake and would send me the protocol she recommended. I...
  16. Reno

    Herb or supplement taken before blood draw ?

    Ok... Thanks for letting me know that you aren't aware..?..?
  17. Reno

    Herb or supplement taken before blood draw ?

    What Herb or supplement taken before blood draw is used to increase the chances of Lyme showing up in the Advanced labs, basic test ? And dosage/ time befor draw?
  18. Reno

    G6PD Glucose-6-phosphate dehydrogenase deficiency

    [ Why don't you go to a regular doctor? There is test for it: https://www.nlm.nih.gov/medlineplus/ency/article/003671.htm 'Allopathic' is a regular doctor. I have been going to them for 6 years and my opinion of them is very low. They are clueless and lazy so i use them as a tool to get...
  19. Reno

    G6PD Glucose-6-phosphate dehydrogenase deficiency

    Does this mean I am G6PD deficient, I certainly have symptoms of it. G6PD rs35972742 +/+ G G6PD rs5030870 +/+ C G6PD rs72554664 +/+ C GBE1 rs3821556 +/+ AA SLC37A4 rs11006 +/+ GG SLC37A4 rs56258965 -/+ AG SLC37A4 rs741811 +/+ AA If so what tests can an allopathic doctor do to confirm it is...
  20. Reno

    I made it this far but could use some help please.

    Can anyone recommend a competent doctor that will review my DNA mutations and give me a list of supplements and basics to start out with. Without having to do a person to person visit, i can't travel and the closest is about 3 hours away. Also if they are capable of writing test requests such...
  21. Reno

    I made it this far but could use some help please.

    I have eliminated most sulfur foods without even knowing the common denominator. I have been eliminating foods long before B12. I have stopped all supplements and now back at square one, the major pain is diminished and now have the usual pain. I was taking the cheap versions of B6 and B12...
  22. Reno

    I made it this far but could use some help please.

    I have never gotten so much help from a health forum before, usually i just get the old "you need to go see a Doc." BS. THank you so much. I'm in the process of moving out of the toxic valley so it may be a bit before i can sift through and respond.
  23. Reno

    I made it this far but could use some help please.

    Sorry cant figure out why the quotes didnt work
  24. Reno

    I made it this far but could use some help please.

    I've seen enough Quacks and the good advice is why i'm here. The lactic acid/ ammonia burning feeling in my muscles is usually during exercise like riding a bicycle for one minute i'll feel as if a "normal" person was riding hard for 20 min. Bad time to do a foot bath but thankyou for the...
  25. Reno

    I made it this far but could use some help please.

    Male, 40, 5'10" 140lb, Fit, (only because I never give up and try my best to muster up some energy and fight through the pain) SYMPTOMS LIST CHRONIC INFLAMMATION CHRONIC FATIGUE BRAIN FOG/ DAZE MEMORY LOSS A BURNING/ lactic acid, FATIGUE FEELING IN MUSCLES JOINT PAIN TENSION IN FACE...