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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. frchli

    My story & methylation protocol (+some questions)

    Hey @Nana86, may I ask which doctors you are seeing? I live in Berlin and didn't know methylation experts even exist in Germany! (Tried hard to find one...) Also, hope you are doing better now?! Alles Gute, Frchli
  2. frchli

    Is methylation without a doctor impractical?

    @caledonia, thanks SO much for your advice on this, really. Just the fact that you are giving me some kind of feedback on what I'm doing here is making me feel so much better — let alone that I think it is very knowledgeable feedback... :) Dankeschön from Germany! :balloons:
  3. frchli

    Is methylation without a doctor impractical?

    @caledonia and @ahmo, Thank you so much for sharing your experience! Sorry it is taking me a while to reply (— I've not been well at all). I often flush from even just a crumb of a pure encaps. B-Complex containing Niacinamid (Vit. B3) 100 mg / Inositol Hexaniacinat (Vit. B3) 10 mg. So I...
  4. frchli

    Doc /Practitioner specialised in methylation / detox issues?

    Hello @Tashy32 ! I was wondering of you ever found a good practitioner for methylation/solution to this problem as I have the exact issues you describe with Freddd's protocol. Also, what liver detox test did you do? I think that's my main issue too! Thanks a lot for your help on this!
  5. frchli

    Is methylation without a doctor impractical?

    @ahmo, what did you do when you got overmethylated/a histamine response? I started the Freddd protocol 1.5 weeks ago on Saturday. For the first couple of days I felt good: increased energy, decreased MCS but not nervous/anxious/ADD-like like I do when I have a mast cell/histamine response...
  6. frchli

    Methylation causing flushed face

    "Edema causes swelling and puffiness in the face, feet, ankles, and abdomen. It also causes sudden changes in mental state, shortness of breath, and muscle ache. According to the Acu-Cell Nutrition, edema is also a symptom of potassium deficiency." from...
  7. frchli

    Methylation causing flushed face

    Yes, definitely also the face, @ahmo!! The difference is rather scary! Also, I seem to need to pee a LOT (as in 2 litres [!!!] at once after I returned from the doctor where I went on the scales and noticed the sudden weight gain) and also at night. My kidneys are absolutely fine according to...
  8. frchli

    Really nasty cold after starting methylation supps

    Thanks for your really useful reply, @whodathunkit! I have had ultrasound scans quite a few times. It all looks great in there, apparently! Only my small intestine was hypomotile at some point. I still had SIBO at the time so maybe that was the reason?! Though I have never had an ultrasound...
  9. frchli

    Methylation causing flushed face

    Thanks, @ahmo! I thought the same, @ahmo! It makes sense as well as I have a diagnosed mastocytosis. Plus, when I took only the B Complex or only the MB12, I got REALLY bad mast cell reactions (as in ones that I should definitely be avoiding with my mastocytosis...) Though B Complex and MB12...
  10. frchli

    Methylation causing flushed face

    Thanks for your insight, @ahmo! I read in another thread that you were saying that QUOTE="ahmo, post: 643644, member: 5434"]p5p 25mg from the B comp: I'd been taking extra p5p until beginning of this year, when it became clear tyhat it was adding to my ammonia/peroxynitrite burden (I stopped...
  11. frchli

    Really nasty cold after starting methylation supps

    Thanks for the insight, @Tammy! I was wondering because the amounts of B Complex I had were as tiny as possible... Plus, it occurred 3 hrs after taking the supplements whereas Niacin is supposed to start giving you a flush within half and hour or so. So thanks for your thoughts on this! You...
  12. frchli

    Methylation causing flushed face

    @beachy, I was wondering if the zinc/P5P made any difference for your daughter's flushing as I have the same issues on the methylation protocol? Also, doctors found that my porphobilinogen deaminase is significantly decreased in the blood and hence its enzymatic activity is largely inhibited...
  13. frchli

    Really nasty cold after starting methylation supps

    @silverseas2014, @whodathunkit and @Tammy—it's so interesting to hear your stories! What I find puzzling, for example, is that at least 3 out of us seem to have gall bladder problems despite that not being the actual reason we started writing in this post. I am so curious how this is all...
  14. frchli

    Really nasty cold after starting methylation supps

    Thank you, @silverseas2014! I have now found this http://forums.phoenixrising.me/index.php?entries/my-understanding-of-freddds-protocol.1697/ by @sheclimber and additional material here http://forums.phoenixrising.me/index.php?entries/a-guide-to-freddds-protocol.1618/ by @ahmo on Fred's...
  15. frchli

    Really nasty cold after starting methylation supps

    Hello and thanks so much for the valuable insights to all three of you! :tulip: Hearing your experiences made me think that I'll just have to experiment what my body needs and it might work after all :) That's encouraging! I'm just about to order the LCF—hoping that it won't give me gastritis...
  16. frchli

    Really nasty cold after starting methylation supps

    Thanks a lot for sharing your experience, @whodathunkit. That sounds tough but at the same time it is reassuring that you found that it will get better eventually! Our response seems to be so alike! With mast cell activation I mean facial flush, increased heart rate, allergy response and bowel...
  17. frchli

    Really nasty cold after starting methylation supps

    Hello @whodathunkit, @silverseas2014 and @Star-Anise! I experience similar cold-like symptoms to you guys. However, I have experienced them while I was on Pure Encapsulations B Complex (even tiny portions of the capsule) alone and sublingual Methylb12 200 µg alone. I was going to start...
  18. frchli

    Weird reactions to MB12 as well as B-Complex—is methylation not for me?

    Hello everyone, despite being very puzzled about my seemingly contradictory results/symptoms (as you can see here http://forums.phoenixrising.me/index.php?threads/completely-stuck-methylation-protocol-vs-lab-results-vs-systemic-response.39156/#post-627200 ), I have been trying to get my head...
  19. frchli

    Completely stuck: Methylation Protocol vs. Lab Results vs. Systemic Response

    Thanks for your reply, ahmo! :) May I ask if you know whether the LDN can be taken sporadically only i.e. when inflammation occurs? Have a nice Sunday!!
  20. frchli

    Completely stuck: Methylation Protocol vs. Lab Results vs. Systemic Response

    Dear ahmo, Thanks a lot for your helpful reply! I have had a look at Martin Pall's page at some point in the past but I shall have a closer look again. What puzzles me with the supposed lack of BH4, however, is the fact that I have read in various sources that it is supposed to deplete...
  21. frchli

    Completely stuck: Methylation Protocol vs. Lab Results vs. Systemic Response

    Hello everyone, I received my 23andme results 2 months ago and have tried to work out a treatment myself by reading posts in the forum, http://mthfrliving.com/ and on http://www.heartfixer.com/. I have had some success: Low sulfur/vegan diet: => ALAT/ASAT back to normal range of 30 U/l after...