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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. eljay

    Samento - 7 drops too far?

    Last Wednesday (over a week ago), my ENT put me on 10 days of Augmentin. My belly didn't feel great on it, but I kept taking it. A friend recommended Samento to me, and I ordered it and started one drop on Thursday night. Friday morning I woke up nauseous with diarrhea. I did not take my...
  2. eljay

    What's your CD4/CD8 ratio?

    I will look into that. Might be worthwhile. Thanks!
  3. eljay

    What's your CD4/CD8 ratio?

    Still curious about this... my primary doctor really acted like my blood test results didn't matter... like there is nothing wrong with me (yes, I am looking for a new primary doctor). This isn't my only high/low result, but he really just discounted them all. I wasn't in his office asking for...
  4. eljay

    What's your CD4/CD8 ratio?

    My ratio is high. I think I requested the test based in someone's recommendation, so my primary had no idea what it meant (and didn't care) and my specialist doesn't seem to know what to make of it. My stats: T & B lymphocyte/Nat Killer % CD 4 Pos. lymph. 70.0 high (Range: 30.8 -58.5) % CD 8...
  5. eljay

    MARCoNS spray

    I went ahead and did one spray in each nostril for days 1-3 (in the evening). Seems okay so far. I'm not sure what side effects might hit. I might add a spray in each nostril in the morning tomorrow. Anyone else try the MARCoNS spray? It's got 2 more ingredients than BEG spray. Ingredients: 20...
  6. eljay

    MARCoNS spray

    Hi Everyone, I just got the MARCoNS spray from Infuserve and have questions about how much to use. Instructions are to spray in each nostril 3 x a day (total: 6 sprays per day). My doctor told me her patients get sick from that, so her instructions were: 1 spray in one nostril for 3 days...