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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. elphiemcdork

    Upset by pain clinic appt - need advice?

    Yeah, it's going to be GET and CBT. I realised that there's probably no point in getting referred there anyway as I doubt they'll be much help. I actually found someone's blog who'd just done the M.E. course and had scanned and uploaded everything so I got a look at what they do. At the moment...
  2. elphiemcdork

    Good GP in or near Forest of Dean, Glos (UK)

    Are you now? I will message you, save taking over the thread
  3. elphiemcdork

    Good GP in or near Forest of Dean, Glos (UK)

    Seconding wanting to know who this M.E. specialist is because I'm not holding out too much hope for Bristol. Plus it's nice to know there are other people on here from the same part of the world as I am :thumbsup:
  4. elphiemcdork

    Upset by pain clinic appt - need advice?

    I went to the pain clinic at Southmead hospital in Bristol. I wanted a referral to their M.E. clinic based at the same place, she said no but said I could have a referral to the pain management course which apparently is the same thing (??I literally have no idea??) However the reason I wanted...
  5. elphiemcdork

    Upset by pain clinic appt - need advice?

    Thanks so much for your replies :) I'm going to wait for the letter from the clinic which will have the write-up of the appt and see what that says. I'm hoping the pain management course will be helpful at least. I'm going to practice some good self-care for the next few days - being...
  6. elphiemcdork

    Upset by pain clinic appt - need advice?

    Hey so I've no idea if this is the right place to put this but I'm feeling angry and upset and I just need some advice. (I'm in the UK, by the way!) I've been waiting for four months for my pain clinic appt to come around. I already have a diagnosis of fibromyalgia and I planned on asking for...