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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Transdermal B12 oils

    @Sherpa Thanks! Can you show me the Adb12+MEB12 too then? Sounds like it is something that is more synergistic :)
  2. M

    Low Dose Methylfolate Detrimental?

    This is fabulous info! Such a challenge we all face, @Fredd THANK YOU. I am interrupting this older thread b/c NO one else has put it all together so well. I stopped my glutathione precursors after I read this, until I can build the correct fol/b23 aden levels
  3. M

    Poisoning the Mitochondria

    Just curious if any new information has been given re using minerals to safely detox the mercury?
  4. M

    Transdermal B12 oils

    I am looking for a very good, pure-ish lol), Mb12. I am extremely sensitive and have sooo many folate and B12 blocks it is not funny. MTR MTRR MTHFD MTHFR DHFR you name it, over half are compound het. So, I do NOT want to ake a cyan methyl B12 as I have of course, mercury toxicity. Any ideas? I...
  5. M

    Rare allele data

    TY @Valentijn Soooo, I need to run that thingamajig lol, you have to show me the snps associated with the RS #'s mis sense. Where or how do I find that thing again that pulls the 1%'ers and shows me which they are: I ran the one, but I cannot seem to run the gene.rename after extraction. Isnt...
  6. M

    Uh oh, I took 4gm Folinic Acid anything i can do

    Okay all, I rode the wave! WHEEEEEEE! What a not so nice ride lol. My 2ndary reynauds came in with a roar and I was pretty dizzy for a few days but better now. Q is, and this is sort of worrisome to me, what to take now? I was told def do NOT use folinic acid (after the fact) any longer as they...
  7. M

    Uh oh, I took 4gm Folinic Acid anything i can do

    400mcg a day normally. It was dark and I thought it was my chaga. Ewww, what a gross feeling. I have been nibbling on niacin for 2 days now.:redface: I am embarrassed
  8. M

    Uh oh, I took 4gm Folinic Acid anything i can do

    Darn it! I feel like an airhead. I am weak shaky upset stomach kind of dizzy. Any idea on how to stabilize? I was doing better on the protocol too, but I did not know my tincture bottle and the folinic had been moved :( I have DHFR MTHFS and MTHFD. I hope I will be okay, any thought?
  9. M

    Rare allele data

    Thank you! I may have found a culprit with regard to the toxicity I experienced when taking the fluoroquinolone (which others may want to look at) The CYP3A5 AND rs34130495 SLC22A1. Quinines and CoQ10 (now what can I use to replace coq10!) Cross my mitochondrial cell membranes in both...
  10. M

    Rare allele data

    I DO have a nutreval too if that helps correlate. I will NOT post that here, but I can send via msg if you like
  11. M

    Rare allele data

    @Valentijn Here would be fabulous I think If it is anything truly horrible you can msg me lol. No, I like to contribute where I can. :) Sorry if I am slow in responding, brain fog has been higher than norm. I accidentally took 5gm of folinic acid 2 days ago. Interesting, that my rash is now...
  12. M

    Rare allele data

    Here is my report, I have no idea how it correlates, but if anyone does know, reply here??? PS I was told years ago have chronic fatigue, chronic mono, Epstein barr, and lyme.... but I was just tested and have mito dys and metabolic syndrome from a reaction to fluoquinolones. I have healed a...
  13. M

    Quercetin CBS/MAO-A mutation ( mast cell/leaky gut)

    TY :) I also work with others with similar issues, and lots of 'us' tend to be $$ downtrodden, from being sick, so I hate to insist on constant apps that cost 30-50 each time, am hoping this will help me get thru my detoxing and stabilizing pathways without the constant costs too. So much info...
  14. M

    Quercetin CBS/MAO-A mutation ( mast cell/leaky gut)

    I am looking for the spreadsheet tool for the genetics that was listed as being located at http://71.252.248.35/ called genetic analyzer. Anyone know where this went?