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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    UK BBC Radio 4, 9pm Tues 16 Sept: Patients setting up clinical trials

    So good to see the articulate ill taking the reins of power to make the changes to how and what research is carried out. We are all so sick and tired of the lions share of funding being for clinical trials for drugs that make huge profits for big pharma.