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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    Did KDM's treatment help you or did you get worse?

    I was patient of De Meirleir between February and December 2010. If I would have done every test he ordered and taken every drug and supplement he prescribed and bought them using the form provided it would have cost me over €7000 for 3 sets of test and 7 months of treatment (I live in Belgium...
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    Article: A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No

    There is a Spanish study on GET and CBT for MECFS patients based on the Fukuda criteria: "Health-related quality of life in patients with chronic fatigue syndrome: group cognitive behavioural therapy and graded exercise versus usual treatment. A randomised controlled trial with 1 year of...
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    Article: A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No

    Thank you Cort for writing this article. You saved me a lot of time. I support the idea of ridicule or laughter instead anger, frustration, or outrage. We haven't tried that tactic yet, to my knowledge. Imagine a headline "Patients debunk x million $ government study" or "Government continues to...