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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. 2

    XMRV Vip Inconclusive

    Kim, you have nothing to apologize for. You spoke for us out of the most sincere concern. Your good intentions will not lead you to Hell.... <Mod Edit> I am proud of their work but even they "secretly" know they might have went too far, too soon. John Coffin's attitude is really the best...
  2. 2

    News of replication of WPI XMRV study...

    Crazy thought here... Take an immunosuppressant with beneficial medications that over-stimulate the immune system. I know it goes against what we think is good but it might work under some circumstances. Of course, under the supervision of a skilled immunologist. Thoughts ?
  3. 2

    XMRV Vip Inconclusive

    This is very upsetting, to say the least. We have at least 2 confirmed people that are being "re-tested". That would fall into the margin of error but their descriptions of VIP reaction does not support that. I'm thinking of a couple things here. Worst case scenario... 1. Their "real...