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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. optimist

    Anyone discovered heavy metals were primary cause?

    From what I've read about IV, both challenge and treatment, is that some people have become zombies and even died... It sounds too scary and dangerous to me... DMSA is supposed to be effective against lead. I am quite convinced that my fungus is due to Hg, and that most of my troubles come from...
  2. optimist

    Anyone discovered heavy metals were primary cause?

    @minkeygirl What dose of DMPS could you handle?
  3. optimist

    Anyone discovered heavy metals were primary cause?

    I am wondering if anyone has done the Cutler protocol properly by reading this? I am becoming quite convinced that my own case is mainly caused by mercury, and I have studied the protocol quite a lot for some time now. (One can never know for sure though, only time will tell) For instanse, I...
  4. optimist

    Very hot at night from adrenal support

    No, fortunately - that's one thing I do not have :) I have struggled with extreme nocturnal leg cramping when I've taken calcium though, but now that has fortunately subsided :D
  5. optimist

    Very hot at night from adrenal support

    So, you believe that there's a connection between night sweats and inflammation then?! I was not aware that milk thistle is anti-inflammatory. I have just started taking it regularly as I learned the other day that I have liver enzymes over the top (73, top limit is 70).
  6. optimist

    Very hot at night from adrenal support

    Hi guys! I have had very good success with ACE, B5 and licorice root extract for adrenal support. The thing is however, that if I take it a few days, I get super hot when I go to bed, or I wake up smoking at some point... has anyone had the same experience, and better, has any a way to...
  7. optimist

    Candida is killing me...

    Hello @South! Sorry for the late reply! I also experience worsening when on too low carb diet. I need at least some (fruit)suger and fibers. Starch is a difficult issue, but what you say is sure sounding interesting!
  8. optimist

    Candida is killing me...

    I will try to get more infor about it from him. I think there is definitely something to the aminacid theory here. I ate 25 g of gelatin yesterday, and it went totally fine.... need to investigate more.
  9. optimist

    Candida is killing me...

    I had a very interesting conversation with my Functional MD today. He has a theory that it can be the be excitatory amino acids that is causing it: Aspartic acid, glutamate and cysteine. If I can find proteins that does not contain these, I can eat more of those!
  10. optimist

    Candida is killing me...

    Hi @PeterPositive! I am not 100% sure, but I react the same way when I take Nystatin, which is to me sort of proof. I have not tested directly for Candida, no. My diet is this: Avocado, minced meat (pork, becuse it is the only way I can tolerate thiamine), both types of celery, squash, appels...
  11. optimist

    Candida is killing me...

    This one: http://no.iherb.com/Y-S-Eco-Bee-Farms-Propolis-1000-90-Capsules/61991 ???
  12. optimist

    Candida is killing me...

    Thank you! I will try this tomorrow!
  13. optimist

    Candida is killing me...

    Thanks for the reply @Beyond! How high dose of propolis do you suggest? Can I take it long term? I will go and buy some Propolis tomorrow and aloe vera too. I have Chlorella, but Cutler strongly advice against it when having mercury, which seem to be the root of all my problems (I get increased...
  14. optimist

    Candida is killing me...

    I think it is because he doesn't understand what is going on, or that he does not believe me... My mistake, I meant g not mg :) Sigh! It is hard enought to be sick. Having to fight and teach the medical personel makes it a lot harder.
  15. optimist

    Candida is killing me...

    Anyway, I have asked for an apointment with my MD and my functional MD to discuss more... but, I am not sure what to expect.
  16. optimist

    Candida is killing me...

    No, I haven't... my doctor says he sees no reason to send me to one... I have kind of lost faith in doctors too, because they seem to not accept Candida, leaky gut or anything. I talked with one doctor with a specialisation in the gut (he had been working with it for 30 years) who said it was...
  17. optimist

    Candida is killing me...

    @Mary: Yes, I take 5 mg x 3 L-Glutamin a day, but I cannot say if it is of any help... I eat about 70g of coconut oil a day to be able to get some kcal. It is my main source of kcal. By far, the most helpful suplement I've found is butyrate. When I stop it it gets much worse. I also do zink...
  18. optimist

    Candida is killing me...

    Hello everyone! I am getting a bit more desperate these days as my Candida seems to be getting worse and worse. The reason for desperation is it is increasing my leaky gut to the level where I alsmost can't eat any more. My greatest problem is with proteins. I can barely eat 150 g (roughly 30g...
  19. optimist

    Tricycline for parasites, anyone?

    I have now done 3 days with metronidazol 1gx2 and 10 days with Paromomycin 500mgx2. Hope that it will have the desired effect this time. I am also almost halfway on a Rifaximin 400mgx4 for 10 days for SIBO. So far so good. My gut is getting less leaky :D
  20. optimist

    Possible sulphite issues

    Thanks! I've learned a lot. So besides Molybdenum - P5P, Choline, Benfothiamine and B12 should be helpful? Did you guys only eat food from the low section of the list, or did you just avoid the food on the high section? There are very few items on the low list that I can eat, and many of the...
  21. optimist

    Possible sulphite issues

    Thanks @ahmo! Will try to have a look at it. There was a fair amount of information in there :)
  22. optimist

    Possible sulphite issues

    So, foods not listed should be OK? Like celery root?
  23. optimist

    Possible sulphite issues

    That's a very nice answer @caledonia! My diet is already extremely limited, so I will see what I can do with it. Could you explain to me the difference between sulphur and thiol? I have been looking at this: http://www.livingnetwork.co.za/chelationnetwork/food/high-sulfur-sulphur-food-list/...
  24. optimist

    Possible sulphite issues

    I have now also purchased Riboflavin-5-Phosphate, but haven't tried it yet. Anyone who knows if this could be better tolerated?
  25. optimist

    Possible sulphite issues

    Hi! As I am getting anxiety from taking Thiamine, Riboflavin, Molybdenum and L-Taurine I've been led to believe that I have issues with sulphites. I have also noticed that I am getting headache from eating garlic which I've read is also a common issue with sulphites, and garlic being a...
  26. optimist

    Reduce anxiety during overmethylation treatment

    I got anxiety and extreme fatigue/brainfog from molybdenum... Like getting hit by a train.
  27. optimist

    Reduce anxiety during overmethylation treatment

    Sorry, but what is ALA?
  28. optimist

    Reduce anxiety during overmethylation treatment

    Oh, yes - and I also get anxiety from L-Taurine...
  29. optimist

    Reduce anxiety during overmethylation treatment

    Could CBS possibly also explain why I am getting anxiety from riboflavin (and it seems thiamine and molybdenum too...)?