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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. AlexM100

    High b12 levels and my story - Not sure where to post this, sorry!

    Hi Mary - Thanks for the reply. Yes, the potassium is normal. I have the blood work and they did a full blood profile. It's fine within the normal range. I haven't heard about folate. I will look into that now.
  2. AlexM100

    High b12 levels and my story - Not sure where to post this, sorry!

    Hi - not sure if any one checks this recently but I am experiencing similar symptoms and doctors don't know what it is. They include constant muscle twitching in legs for last 3 months, over 2000 B12 level (high), sweating on legs at night and extreme fatigue. When I am lying down flat more than...