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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    How pandemics strengthen links between viruses and autoimmunity (journal article from "Nature")

    (NYSE American: AIM) today announced the filing of a provisional patent application for Ampligen as a potential early-onset intranasal therapy designed to enhance and expand infection-induced immunity, epitope spreading, cross-reactivity and cross-protection in patients exposed to a wide range...
  2. J

    My Airbnb Situation..

    Excellent. Airbnb reviews every quarter, so get one more guest in December, and they will review and award around mid January.
  3. J

    My Airbnb Situation..

    Most do it part time. Search for it on the airbnb site. --- more requirements than this, but basically you need 10 reviews in a 3 month period and 80% of those reviews must be 5 stars. Reviews can make or break your business - start out slow, do your best to get great reviews, learn the...
  4. J

    My Airbnb Situation..

    Very basic ID validation is done by aribnb, you are really on your own to screen your guests. I used to accept no newbies, but I hate to turn down newbies, so if they have no feedback record of staying at other airbnbs, I always engage them in an email exchange and make a judgement based on the...
  5. J

    My Airbnb Situation..

    Misfit Toy, your ground rules sound a little angry - I'd try to write it again after this last guest has been gone awhile! :) But I agree with E.man, after thinking about your situation more, I would limit your guests to women only. Be the best host you can to women, get your Super Host status...
  6. J

    My Airbnb Situation..

    Hi. I've run a couple of airbnb's out of my house for about a year and a half - but they function as separate units, and I'm a single male... so initially, we have the opposite problem, e.g. getting females comfortable with staying at our airbnbs A few thoughts. An attractive woman sharing a...
  7. J

    Update on Ampligen Availability in the US

    Lots of misinformation here. From the SEC filings and press releases: Hemispherx did have manufacturing problems, they have now been solved. They have a primary and a secondary contract manufacturers and they are both manufacturing on an accelerated basis. They are located in Washington...
  8. J

    Dining for Dollars for CII - A Fund Raising Idea

    This has now been posted on MEAction as well. http://www.meaction.net/2017/02/15/dining-for-dollars-for-cii-center-for-infection-and-immunity/
  9. J

    Fundraising for Lipkin's Monster Study

    OK, our "Dining for Dollars" fund raiser was held on Sunday and I've a topic has been created here: http://forums.phoenixrising.me/index.php?threads/dining-for-dollars-for-cii-a-fund-raising-idea.49315/
  10. J

    Dining for Dollars for CII - A Fund Raising Idea

    Hello All, This fund raising idea was the result of discussion and encouragement found here: http://forums.phoenixrising.me/index.php?threads/fundraising-for-lipkins-monster-study.46526/#post-764950 My sister (the PwME) and I held a “Dining for Dollars for CII” dinner this weekend and we...
  11. J

    Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!

    TED Talk has been released. and it's great. https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
  12. J

    Fundraising for Lipkin's Monster Study

    Aha, of course, thanks aimossy
  13. J

    Fundraising for Lipkin's Monster Study

    Yes, I'd be happy to do that. I did send an email to #meaction asking about Jen Breas Ted Talk -- as I think that will be a powerful part of the pitch prospective donors/dinner guests. @Bob What is the MDP blog? I'm blocking on the acronym. Thanks for the feedback!
  14. J

    Fundraising for Lipkin's Monster Study

    That's great aimossy! I'll submit the idea to #meaction and see if I can get a read on when Jen's Ted Talk will be. Thanks so much!
  15. J

    Fundraising for Lipkin's Monster Study

    I have been brain storming this with my sister and we are planning to start a small fund raising effort for CII. The idea is to hold dinners for people willing to kick in $50 ea.... call it "Dining for CII Dollars" - maybe we could find some webspace for us/others to post photos of dinner...
  16. J

    Ampligen in europe

    You can get it in the U.S through the AMP511. But it sounds like they are gearing up for a new trial and a new protocol. The company website says: "new protocol in development" ... and today this:
  17. J

    Hemispherx Biopharma Reviews Ampligen® Data With National Institute of Neurological Disorders and St

    Here is another article covering the same release, but angled a little differently. Hemispherx BioPharma, Inc (NYSEMKT:HEB) Reviews Ampligen Data with NINDS http://www.journaltranscript.com/2016/03/hemispherx-biopharma-inc-nysemktheb-reviews-ampligen-data-with-ninds/ Hemispherx BioPharma...
  18. J

    Hemispherx Biopharma Reviews Ampligen® Data With National Institute of Neurological Disorders and St

    http://finance.yahoo.com/news/hemispherx-biopharma-reviews-ampligen-data-133000562.html “Our recent meeting with Dr. Koroshetz and members of the Trans NIH working group allowed us to review Ampligen® studies to date and discuss how the NIH’s research may assist us in closing key questions from...
  19. J

    Hemispherx Fires Founder / Ampligen inventor William Carter

    Well, Carter is co-inventor of Ampligen and founder of the company. CEO's get fired for failing to perform - they gave Carter a very long rope. I think the delay in alferon manufacturing late last summer was the beginning of the end for Carter. It put the company in financial jeopardy, the...
  20. J

    Hemispherx Fires Founder / Ampligen inventor William Carter

    More on the shake-up today. http://finance.yahoo.com/news/hemispherx-biopharma-management-team-reflects-133000776.html
  21. J

    Hemispherx Fires Founder / Ampligen inventor William Carter

    I think it is a good thing. Apparently :) Carter has had a contentious relationship with the FDA, which has not improved over time, he has paid himself large salaries and bonuses, and has family members on the payroll. If Collins is considering an ampligen clinical trial, cleaning up the...
  22. J

    Mayo Researchers Identify New Borrelia Species that Causes Lyme Disease

    Another article on this topic: http://www.upi.com/Health_News/2016/02/09/Scientists-confirm-second-more-intense-form-of-Lyme-disease/3421455022442/
  23. J

    Solve CFS and Biovista release name of drugs for repurposing

    Laura Hillenbrand donated 250K for this. .....who knows how much total... and 4 years? bleh :( http://blogs.wsj.com/health/2012/02/23/with-help-from-author-laura-hillenbrand-drug-repurposing-comes-to-chronic-fatigue-syndrome/
  24. J

    A biomarker in low NK cell activity...

    David Strayer is Hemisphx's Medical Director. I'm not sure what age 70 has to do with anything, you're not being discriminatory are you Jonathon? (just a little joke, I'm about retirement age myself) "DAVID R. STRAYER, M.D. has acted as our Medical Director since 1986. He has served as...
  25. J

    A biomarker in low NK cell activity...

    The study and/or overview is of NK cell activity (or function) not cell count. Big difference between the two. You might want to change your topic heading. The study was done by Hemispherx in an attempt to identify a sub-group that responds to ampligen. Cort has a blog on which he 'heard'...
  26. J

    Andrew Gelman The PACE trial and the problems with discrete, yes/no thinking

    Kyla, that really is an excellent summary of the state of the PACE/GET study!
  27. J

    Tuller and Rehmeyer Trial By Error, Continued: Did PACE Really Prove that GET is safe

    It's so great seeing all of these influential bloggers hitting PACE hard for the new year! Go Tuller & company!!