• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. H

    Florinef questions

    I am starting florinef tomorrow morning and feeling pretty nervous as I heard it had very bad side effects particularly regarding mental health. Anyone else had bad side effects? did you try florinef in the end?
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    O.I / Pots - more questions - is it anything to do with blood volume.

    Thank you very much for this response. I am suspecting low blood volume but when I saw an endocrine doctor this week, he said there was no way of measuring whether it was low because it is a unique thing to you and they dont know what it was before. How does it work in the US? I did ask my...
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    O.I / Pots - more questions - is it anything to do with blood volume.

    I am also chronically thirsty and find I drink more when I have been upright all day
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    O.I / Pots - more questions - is it anything to do with blood volume.

    Dianosised with CFS following 2 viral infections with mengisits type blood rash - October 2012, diagnosed april 2013 in hospital. Use to be bed bound but now recovering now back at work 2.5 days a week in a less physical job role Had winter of viruses and then had a summer with three diarhea...
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    CFS Specialist in the UK

    Has anyone seen a cfs specialist in the UK particularly around the midlands area. I am looking for someone who might know what tests to run, treatments etc. In particular my symptons are fatigue, general feeling of illness, digestive problems, nausea, thirst, muscle ache, thirst, pale, low blood...
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    visit to endocrine

    Hello, thank you so much for your replies. I never did see the actual result but it was done in hospital in the middle of the afternoon. I had had breakfast and lunch! I didn't know you were meant to fast for it either. Which secialists do you know please?
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    visit to endocrine

    Hello everyone, I'm just wandering if someone could help me. 12 months ago I was diagnosed with cfs - I was literally bed bound and very poorly for about 6 months before improvement began. Anyway, having six months of generally going up hill (though having many downs on the way) I've now gone...