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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. E

    Sympathetic stuck on 'on?'

    6 week update on Apollo Neuro Device. I've been using the device for upto 6 hours a day and also some nights. As stated previously, my nervous system is in a state of fight or flight often - it's very difficult to come out of that state of alertness and find that true space of relaxation and...
  2. E

    Sympathetic stuck on 'on?'

    Thank you Kanga Sue for the details. I just got my Apollo (60 day trial) today and turned it on for the first time minutes ago. I will give this a go for 2 months then take it from there (it would have to see definite results to keep it). I like having a back up plan for delivering...
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    Sympathetic stuck on 'on?'

    Can you give me more details? Brand, etc? How do you use it (in the non-"personal" ways )? I really think that holding a vibrating object would calm my body. Thank you.
  4. E

    Sympathetic stuck on 'on?'

    The vibrating stuffed animal that one holds during a neurofeedback session is part of the system - the vibrating element responds to the changes in brainstate. The vibration is so calming to my body but unfortunately, I have been unable to find a vibrating stuffed animal online. Someone...
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    Sympathetic stuck on 'on?'

    Regarding neurofeedback, I've had 9 sessions. I watch Moving Art (it's on Netflix) as I do my session - nature and music. Early on, I felt present in love and immersion with beauty - parasympathetic states that are difficult to access. At this point, I can't say there is any concrete...
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    Sympathetic stuck on 'on?'

    Also....I just ordered an Apollo Neuro. There is a 60 day money back guarentee so there is no risk in trying it (have to pay shipping cost).
  7. E

    Sympathetic stuck on 'on?'

    I hold a vibrating stuffed animal at during my neurofeedback session and it brings me into my body and calms my system down - I find it very comforting and relaxing (and this highly charged system struggles to feel relaxed). I see mention of bullet vibrators and I see one can buy Build-a-Bear...
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    Anyone have a copy of Gupta or DNRS they'ed like to sell?

    Hi. A good place for support and also the possibility of buying (or being gifted) a used copy of either brain retraining program, is Planet Thrive website. It is a very positive, uplifting site! I wish you the best. Onward and upward! p.s. I have the program guide from the Optimum Health...
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    Phoenix Rising: The Gift That Keeps on Giving All Year Long

    Thank you Jody! It is somehow reassuring to hear others describe my experience. It allows me to let go a little bit and feel into this larger community I am a part of. May we all feel grounded, safe and supported as we continue our separate but united journeys toward health.
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    Are seizures related to ME?

    Hello All, I'm new here. I wanted to share my experience with sensory storms/seizure like activity. Two years ago I came across the term "sensory storm" in the CFS Treatment guide. It was the first reference I found to what I have been experiencing for four years now. I call them "attacks"...
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    Whats FINALLY worked for me.