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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. saltgirl

    lumbar puncture?

    I have had both those tests as well. I also tested B12 Binding capacity and Folate RBC. Everything is normal or off the charts high. I am Homozygous for MTHFR C677T, Homozygous for FOLR2, and Heterozygous for FPGS. I have ASD, Narcolepsy, Ehlers Danlos Syndrome, Dysautonomia, and celiac disease...
  2. saltgirl

    lumbar puncture?

    My doctor recommended trying B12 injections, which I would like to start, but I would like to know my B12 and Folate levels before I begin. I feel very confused about my laboratory findings. Before supplementing with B vitamins, my B12 levels were always low normal (400-500 range). After I...