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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    Anyone get tooth pain on antivirals?

    Tolerate seems to be the best word describing 'living' with this condition - if you can call it that. I do have to say that either the Valcyte, NT factor, or S-acetyl-glutathione did something - I got my energy back. Now I'm trying to play catch-up with all the things that have been left...
  2. S

    Anyone get tooth pain on antivirals?

    Did you ever find out what was causing it? The illness? I've tried remineralizing toothpaste, but I think it's beyond that - there is something systemic going on. My parents didn't take care of my teeth when I was growing up - but this tooth throbbing just started a few weeks ago. I've been...
  3. S

    Anyone get tooth pain on antivirals?

    I was on Famvir and my fibro doc switched me to Valcyte. Something worked because my energy is better than it's been in 8 years. I'm getting severe - I mean severe - neuropathy in every tooth that has ever had a filling as well as caps. I searched online and could only find a few instances of...
  4. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    During my research travels online - that is exactly what I read happens to docs who speak out. Ostracized, called a quack, persecuted... It's pretty despicable. I spoke with someone on the phone (origin I will not reveal due to the above) and they were so cautious speaking with me and said...
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    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I can't find the place where someone posted: John McCain the pro torture (who got tortured supposedly), pro war, pro taxes, pro immigration, pro drone strikes senator? I don't follow politics, so I am not the best person to recommend a politician with a sympathetic ear (if there are any). I...
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    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    John McCain contact: http://www.mccain.senate.gov/public/index.cfm/contact-form "The only thing necessary for evil to prosper is for good men to do nothing…"
  7. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    Came across this enlightening article. I hope everyone finds a way to back-up & support these free-thinking docs - who really may be the last hope for those of us ill with these disorders - if mycoplasma is indeed behind the illness. We should all contact representative - I don't know much...
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    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I'm really sorry! I should have proofread before I posted to see how it might be interpreted by someone reading it. I also thought of something else - someone asked how they treat mycoplasma - and I gave the info on treating Lyme (which may have mycoplasma involvement) - Samento, banderol...
  9. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    Okay - I read through it & my mind gets overloaded with so much info. I should have re-phrased it - it looks as if I meant that Prof N. doesn't use antibiotics in late-stage lyme - I meant that I read -somewhere- that if you are misdiagnosed you become late-stage lyme. I wonder if he can test...
  10. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    That's good. I can't imagine taking them for life. I know cipro has fluoride - don't know if others do. Plus - the stress on the liver.
  11. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    11 years! That's crazy! I wonder if she has gut issues. Or liver issues. That's interesting that Lipkin is working with ticks.
  12. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I had the mono as well - and EBV came up in my blood work. But I don't know if Lyme or mycoplasma may have knocked my immune system down and then it set the ball rolling. I read that these bacteria and/or Lyme (I hope I get it right - it's early) do something to adrenals & thyroid - which...
  13. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I've read - that - at least in later stages lyme, the natural therapies work - although I think Doc Nicolson advises antibiotics.
  14. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    Interesting. We watched "American Greed" - one show was about Pfizer marketing a known dangerous drug. It was an eye-opener to see how they pressure their sales force to push the products, entertain doctors lavishly - with absolutely no regard to the people they are injuring. When they were...
  15. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    And also a detoxifier - like pectin or clay...
  16. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I don't recall what Dr. Lo said, but the link I gave earlier states his theories, or knowledge. I found another article, but it's buried in my multitude of paperwork - on a number of diseases caused by mycoplasma/ viruses etc. It shocked me. Often, people - doctors - who come out with a new...
  17. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    Most seem to follow Doctor Cowden's protocol: Samento, Banderol, something to break biofilm (I'm trying Wobenzym) You can look it up online. Some also use artemesin (Doc Cheney interestingly, uses artesenuate - a derivate of artemesia - expensive though)
  18. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    ps - fyi - on the Nutramedix website - you can find Banderol - which says it kills mycoplasma. *I do not work for Nutramedix/ am not affiliated with anyone. Just a seeking soul looking to get better. I think you have to be an independent thinker - I used to dismiss the idea that I could have...
  19. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    I didn't know that - I only read about Dr. Lo in that article. Maybe that's the reason he sang like a bird. I emaied Prof. Nicolson, as I read that he was highly knowledgeable about mycoplasma. He emailed me right back (which was very generous of him - I think that shows a good heart). He...
  20. S

    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    He may have - look at the people coming back with 'Gulf War'. You can research and find out if it targets collagen. I read so much my memory gets fuzzy - but I read something about them eating cholesterol. Interesting - I found the same information on the Nutramedix website - that sells...
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    Mycoplasma/Stealth pathogens behind CFS/FMS other things...

    Was going through old paperwork & found article by Leslie Taylor, ND : Mycoplasmas are a specific and unique species of bacteria - the smallest free-living organism known on the planet.... They are parasitic in nature...can grow in tissue fluids (blood, joint, heart, chest, spinal fluids)...
  22. S

    U.S. Government admits Lymes is a Bioweapon...

    I've been researching Lyme extensively - and in my online travels Plum Island popped up. The more I research, the more I happen across information saying it is a bioweapon. If you look at the map (don't have link handy, but someone could locate doing a search) you can see that most of the...
  23. S

    U.S. Government admits Lymes is a Bioweapon...

    I bought the pills and went by the dosing instructions on the bottle. I have to research that more about the Cumanda and locate a dosing protocol. I feel terrible today - my neck - which is usually where I have the most pain - is killing me. Besides that, I'm hurting all over. I'm concerned...
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    U.S. Government admits Lymes is a Bioweapon...

    Do you take anything to try to 'dissolve' the fibrin surrounding the potential spirochete? I can't take serrapeptidase or nattokinase. I read you can use bromelain.
  25. S

    U.S. Government admits Lymes is a Bioweapon...

    Barb - No - it's more of a 'memory' and 'feeling-lousy' problem! I don't spell check unless I'm writing more professionally. Energy deficits make you cut corners...
  26. S

    U.S. Government admits Lymes is a Bioweapon...

    Sushi - Thanks for the link! Can you tell me how long you've been taking the Samento & Banderol? Is it working for you? Have you had any bad reactions like I'm getting: headache, sweats and then chills, achy all over? I would really like to bounce off of someone else taking it. I had lost...
  27. S

    U.S. Government admits Lymes is a Bioweapon...

    Thanks for the advice. I didn't know anyone here was taking Samento. I'm also getting sweats from it & feel generally horrible. I can't vouch for what information is provided in the link. I am in the midst of researching it now, and you can read it yourself to determine whether you believe...
  28. S

    U.S. Government admits Lymes is a Bioweapon...

    So do I... Just took some ribose too...
  29. S

    U.S. Government admits Lymes is a Bioweapon...

    Plus - I didn't have my coffee...
  30. S

    U.S. Government admits Lymes is a Bioweapon...

    Okay - forgive my grammatical error. It was too early in the morning and I felt horrible - still do. I'm trialing the Samento. Got bad headache and all-over ache. Now don't know if it's an allergic reaction, or it's killing the Lyme (I should make your day! I was grammatically correct! Are...