• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. PrPSc

    Dysautonomia/POTS? Or is it something else?

    Stopping by to update! The specialist was not as helpful as I hoped, he really only knew about POTS and not the supine positions. He told me to keep doing what I had been doing for the POTS, replaced my Florinef with Midodrine, added in some more exercise therapy, and sent me on my way. I have...
  2. PrPSc

    Dysautonomia/POTS? Or is it something else?

    @Sushi My GP does know a bunch about ME and CFS, but not enough to help at this point. I am looking into specialists. :) I knew of DINET, not the other site. Thank you for the links! They're extremely helpful. @justy It's been mentioned - I will have to remember to mention that when seeing...
  3. PrPSc

    Dysautonomia/POTS? Or is it something else?

    @Sushi Thank you for the welcome :) I was tested for diabetes insipidus, but no dice! Thank you for the suggestion of looking for an ME specialist. I honestly wouldn't have thought of that (I have a long list of other specialists to see...). I will mention that to my GP. I have an...
  4. PrPSc

    Dysautonomia/POTS? Or is it something else?

    Hello, I just joined and saw there was a fairly active group here dedicated to dysautonomia and POTS. This has been a nearly 3 year long battle for me with my current symptoms, but I have had dysautonomia-like symptoms for most of my life (gastrointestinal problems, fatigue, OI, brain fog)...