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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Sleeping Giant

    Sudden headache when standing up

    FWIW, I have been diagnosed with ME/CFS and POTS for 3+ years and just started getting very similar sounding headaches occasionally after standing up from a sitting position in the past few days. First sounds began to pulsate, then a sudden splitting headache that only lasted a few minutes, then...