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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. trev343

    Low ferritin (5) despite IV Iron

    Hey those are both valid points but sadly, I have ruled those to out as causes. Its been 24 months now, my gut is working great. Test showed no bleeding. I could get an endoscopy to double check for blood. Thanks anyways though!
  2. trev343

    Low ferritin (5) despite IV Iron

    I am seeing a ton of specialists, the thing is, they are stumped as to what is going on. Sometimes I find really smart people on sites like this who brainstorm. I forgot the dose, but it was the highest she could safely go. More than enough to get it into the 70's at the very least she stated...
  3. trev343

    Low ferritin (5) despite IV Iron

    Testing came back negative and i'm not a fan of the whole Chronic Lyme thing anymore. Its a serious problem for a lot of people, but for most its the case.
  4. trev343

    Low ferritin (5) despite IV Iron

    Hey everyone! 2 years later and I'm still sick. Most of my issues at first were very much CFS/ME with fatigue so bad I couldn't stand up in a shower etc. I have gotten much better over the past year to where I can play basketball... but other symptoms have gotten worse. I just have a general...
  5. trev343

    The Undetectable Infection

    @Elph68 What proof do you have that these bacteria enter our lymphatic system? Doesn't that mean that we have Sepsis? I have a Strep overgrowth and actually found out I do better with low sulfur foods, because less H2S is produced. I will be taking Neomycin and Rifaxmin before getting 1...
  6. trev343

    Detection of Mycotoxins in Patients with CFS

    Im in some pretty good MOLDY Facebook groups if anyone wants in.
  7. trev343

    Chronic Kidney Disease and ME/CFS

    @Valentijn don't you find it peculiar that Mycotoxins specifically Ochratoxin A (found in 83% of CFS patients by Dr. Brewer) causes renal damage? I think the link to mold illness is getting stronger.
  8. trev343

    Detection of Mycotoxins in Patients with CFS

    In 2006 Shoemaker still had a lot to learn with his protocol, are you sure you didnt have Marcons or something else hindering you?
  9. trev343

    Detection of Mycotoxins in Patients with CFS

    My girlfriend has lived with me for the past two years, we are in college. She has noticed: low energy, weird lightning bolt pains in stomach once a day and she has some numbness on her chin. I'm thinking this may be mold or the energy could be from coming off of birth control shot "depo...
  10. trev343

    Detection of Mycotoxins in Patients with CFS

    @Skiii great post. Has anyone had experience taking this test? https://www.chronicneurotoxins.com/prod_services/vcs_cardtest.cfm (shoemaker's paid test) compared to http://vcstest.com/ I heard the free one is much easier to pass. Shoemakers statsistics show that mold cases fail 96% compared...
  11. trev343

    Detection of Mycotoxins in Patients with CFS

    Is it normal to have good and bad days with Mold or is that more indicative of Lyme?
  12. trev343

    Detection of Mycotoxins in Patients with CFS

    I just had an appointment with Dr Rapaport a LLMD that also is certified for mold by Shoemaker. She seems awesome so far. All my lab markers are elevated for mold (although those same markers get elevated for lyme), and I had exposure to 2 WDB before and after I got sick 1.5 years ago. My...
  13. trev343

    Detection of Mycotoxins in Patients with CFS

    Just to play devils advocate (I really like the theory and think its the cause of my issues) What if people with CFS immune system is overburdened and can't detoxify so that they are exposed to minute sources of mold like everyone else except they can't detoxify as well?
  14. trev343

    My mold genetics? Help?

    I have just read Dr. Shoemakers book Mold Warriors and he said people with mutations in HLA-DR have a harder time detoxing mold. On my report I saw two HLA categories (MTHFR SUPPORT) HLA rs7775228 (–) HLA rs2155219 (++) http://www.snpedia.com/index.php/Rs1063355 this site says this is the one...
  15. trev343

    Fecal Transplant study: 58-70% response rate

    how does this only have 4 pages, do people not want to get better?
  16. trev343

    Need some opinions?

    barbarb Iron Infusion didn't even help me, so they told me nothing I could do. I am using T3 only to clear RT3 right now, I am in week 10, hoping all of this could be due to that.
  17. trev343

    Need some opinions?

    In Janunary of 2013 I had a tooth infection and upper respiratory infection. I was on Penicillin which took care of the tooth. The first antibiotic didn't work for the upper respiratory infection so I was then given Levaquin. Following that I had diarrhea and was given 3 round of flagyl for...
  18. trev343

    Hair loss and CFS? Help

    @TigerLilea my anemia was mild but my ferritin was very low.. a 5.... got iron infusion and I can only get it up to 22... thoughts? thanks for any help guys <3
  19. trev343

    Hair loss and CFS? Help

    guys im not trying to stop my hair loss... I just want to know if its a CFS symptom?
  20. trev343

    Hair loss and CFS? Help

    Hey guys, thanks a lot for your replies. To be honest, the purpose of this post was to hope that hypothyroidism and anemia are causing my symptoms... and NOT the dreaded CFS.. tbh I could care less about hair loss.. I just wanted to wake up with energy, mental clarity and happiness again.... I...
  21. trev343

    Hair loss and CFS? Help

    My hair loss started right as my CFS symptoms started last October. I was found to be hypothyroid and anemic. Both are now perfectly in range and I don't feel any better.... Does hairloss exclude CFS? (i'm 23 btw) Thoughs and Ideas?
  22. trev343

    Please help with 23andMe results

    got Chron's in March after heavy antibiotic use and Aldara Cream a few months prior.. energy still felt great until october... started going downhill, by January couldn't get out of bed much.. sore muscles, brainfog, fatigue, hairloss, depression... was hypotyhroid... found out I have high...
  23. trev343

    Please help with 23andMe results

    @Valentijn so where do I go from here? ;(
  24. trev343

    Please help with 23andMe results

    Really, thats good news I suppose... although that doesn't give me much guide to fixing my symptoms... I was reading this http://www.vsan.org/rok-az/methylation/Genetic_Analysis_Report_summary_sheet_1.pdf and http://www.heartfixer.com/AMRI-Nutrigenomics.htm#COMT: Catechol–O–Methyl Transferase...
  25. trev343

    Please help with 23andMe results

    @Valentijn :)
  26. trev343

    Methylation Pathway Analysis results

    Valentijn I was also from the Netherlands.. raised in Leeuwarden! Anyway you can check my thread and help me out as well?
  27. trev343

    Please help with 23andMe results

    Homogenous Results CBS C699T ++ VDR Taq ++ MAO A R297R ++ MTHFR A1298C++ Heterogenous Results COMT V158M +- COMT H62H +- MTHFR 03 P39P +- MTRR K350A +- MTRR A664A +- BHMT-02 +- BHMT-08 +- CBS A360A +- Please help me with a protocol and plan to help me. I have been recently diagnosed with...