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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Sazco

    New here and very sick. Please help:)

    Sounds like a great plan. Thanks for the links!!!
  2. Sazco

    New here and very sick. Please help:)

    Thank you. That makes perfect sense. It's high because it's not going where it needs to to be used!? I ordered some hydroxy off of amazon after the suggestions. Thank you! How long should I wait before knowing if it is helping or not?
  3. Sazco

    New here and very sick. Please help:)

    Thank you all so much. Ok attempting Jernigan protocol. My friend has a dr in Atlanta who gave her teasel root for lyme. Heard of that? I had my b12 checked and it was twice the normal amount...it was 1900 I believe. I have not had folate or homocysteine checked. I am on nature throid which...
  4. Sazco

    New here and very sick. Please help:)

    This is all so overwhelming!! appreciate the warnings!! I usually juice kale, spinach, carrot, and apple. I have a local organic farm that delivers organic fruits and veggies to my door once a week. That has been so helpful! I also use green vibrance. Is this bad with my mutations? So sounds...
  5. Sazco

    New here and very sick. Please help:)

    Thanks!! Yes I was having a ton of neuro issues and irregular heart beat in antibiotics. I will look into herbals, thanks! I have been gluten free for about 9 months. I did eat gluten over the holidays for a week but then cut it out again. I did notice that juicing seemed to make me feel worse...
  6. Sazco

    New here and very sick. Please help:)

    Thank you. What is Fred's protocol? I was on antibiotics for a few months but I felt awful. I know you're supposed to feel worse if they are killing the lyme but I don't think I can detox enough to get rid of all of the meds and toxins so I stopped taking everything:/
  7. Sazco

    New here and very sick. Please help:)

    Thank you so much for the info. Funny you mention the overmethylate easily. I wonder if that's what happened to me. My friend told me to start taking methyl b12 and I got severe anxiety around that same time a year ago. I was only taking 1000. I still have a small amount of methyl in my...
  8. Sazco

    New here and very sick. Please help:)

    Hi. Sorry about that! I edited it into smaller sections. I am in Georgia.
  9. Sazco

    New here and very sick. Please help:)

    Hi everyone. A year ago I became severely ill. I tested positive for Lyme disease with a cd-57 ofonly 20 and c4a of 8,000. I've had reflux, gastritis, daily migraines, vestibular issues(vertigo, no balance), sensitive to light and sound, ringing in ears, head pressure, sore neck, muscle...