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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Esther Crawley TEDxBristol Disrupting Your View Of ME

    Someone earlier mentioned a thunderclap, here is the link https://www.thunderclap.it/projects/64068-tedx-energy-metabolism-me
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    MEGA Questions and Answers: Latest Petition update

    "Patients with CFS/ME will be identified by clinicians in the NHS clinics." This is hugely concerning. I am not in the UK and have no personal experience of NHS CFS Clinics but have followed a wide variety of Facebook ME/Cfs groups for many years now. The general gist of comments about these...
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    Counter petition to the MEGA petition, brainstorming stage

    There doesn't seem to be any avenue for asking questions or expressing concerns, which is worrying in itself.
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    MEGA research for M.E./CFS: White & Crawley listed as involved

    Thanks very much for the welcome. I read the discussion on this. What I mean is a weak criteria like that of the PACE trial. I think that it depends on who they purport to be studying and how the final conclusions will be presented. I would be worried that a broad criteria would then be spun at...
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    ME/CFS Grand Challenge (MEGA)

    I can see how this study can be exciting in it's scope but I question the involvement of the BPS crew and how far their influence, and the influence of vested interests can extend. I would feel far more comfortable if they weren't there. It would be interesting to know if there is some way for...
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    MEGA research for M.E./CFS: White & Crawley listed as involved

    I think that there are more crucial nuggets that need to be known before an informed decision to support or not can be made. A very important one is what is the patient selection criteria? Action for M.E have stated on their Facebook page that this is yet to be decided. A weak criteria will make...