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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. musicchick581

    Bill Walsh Finally Explains Over-Methylation In A Way I Can Understand

    Nila, you can take a different form of b12. Generally, folate is avoided with Undermethylators And taken for overmethylation.
  2. musicchick581

    I HAVE ANSWERS! YAY!

    Leaky gut won't cause the disorder...it's hereditary but leaky gut can be another issue to deal with. We are going to try Nystatin soon to deal with possible yeast in the gut. I get bloated after eating grains and dairy even with enzymes. My OAT test showed high yeast.
  3. musicchick581

    I HAVE ANSWERS! YAY!

    It's all genetic and supplementation must last my entire life. I'm seeing Dr Mensah and Bowman from Mensah Medical in Illinois. I'm on the east coast so in March they have an outreach clinic here and I will be retested. stress raises kryptopyroles in PD people. You want to test when you're stressed.
  4. musicchick581

    I HAVE ANSWERS! YAY!

    I'm,sorry, I don't know why it posted so many times. I'm on my phone..
  5. musicchick581

    I HAVE ANSWERS! YAY!

    Here is what I'm taking. I just yesterday made It to full dose on the compound supplements but I'm probably going to drop the PM back down to 4 caps. I'm nervous about all that zinc. I've been titrating up. I'm not taking cal mag because the glycinate didn't agree with me and I'm,not taking the...
  6. musicchick581

    I HAVE ANSWERS! YAY!

    I'm take a very high dose of zinc but my test isn't till March or April.
  7. musicchick581

    Start Up symptoms from Mag, B6 and Zinc?

    I'm being treated for pyroluria as well.
  8. musicchick581

    I HAVE ANSWERS! YAY!

    Kryptopyrroles were 21.55. Optimal is below 10. Free copper is at 46%, optimal is under 25% and copper/zinc ratio is 1.45, optimal range is .7-1.0 Do you have PD? Is HPL histamine?
  9. musicchick581

    I HAVE ANSWERS! YAY!

    After all this time, I have answers. Pyroluria. Imbalance of copper and zinc, excessive kryptopyroles which flush zinc and b6 out of the body. Excessive free copper. I begin supplement and vitamin treatment soon. YAY! Hopefully this can help someone!
  10. musicchick581

    MAO A advice or experiences?

    Some people think MAO homozygous is an upregulation and others think it's a downregulation. The aggression "gene" is COMT in some studies and MAO in others. It manifests differently in men than women though. Plus it was my understanding that 23 and me didn't report on the Warrior gene stuff.
  11. musicchick581

    Interesting COMT Variations

    In haplotype 2, I have all of those but I have heterozygous risk alleles, ex. rs4680, you say G is a slower COMT, well I have AG. I have that pattern for all of those under haplotype 2. Does this mean I don't have the 58 fold reduction? Do they have to be homozygous?
  12. musicchick581

    Anxiety disorder - can 23andme results guide treatment strategy?

    @kakrpa I have the same kind of OCD/anxiety issues and panic disorder. What have you done to treat it since 2013, your last post? What has worked?
  13. musicchick581

    Yasko-what has been debunked?

    Hmm...I wonder why the discrepancy?
  14. musicchick581

    MAO A advice or experiences?

    Is MAO A an upregulation or downregulation? I've seen both. What is a reputable site since Yasko obviously isnt?
  15. musicchick581

    Yasko-what has been debunked?

    Thank you. I have an appointment out at Mensah Medical (specialists in MTHFR and methylation) and they studied with Dr. Walsh, a lead researcher. I posted here because I've done SO much research that it's overwhelming now and I don't want to go to the appointment with the wrong information and...
  16. musicchick581

    Yasko-what has been debunked?

    What has been debunked from Amy Yasko's research? I'd like to know what is accurate and what is not. If there are threads on here about it, can you post the threads?
  17. musicchick581

    Compound Heterozygous C677T & A1298C

    @sueami ...our snps are almost identical I think...wow
  18. musicchick581

    MAO A advice or experiences?

    I have MAO A ++ and have moodswings, irritability, random sadness, and have had panic attacks daily and anxiety for 7 years. I'm honestly not sure what to do anymore. I've been on 5htp, macuna, evening primrose oil, lithium orotate 5 mg, and other things that my doc has used to stabalize my...
  19. musicchick581

    Methylfolate and mercury detoxing

    Also, if you are detoxing, can that raise hair heavy metal levels? And what is the order of heavy metals that you detox? I have high aluminum and have for years. Silica in Fiji water is supposed to help but after a couple months on it, my hair levels were still very high. Also have mercury...
  20. musicchick581

    Methylfolate and mercury detoxing

    What is the link with low potassium and MTHFR? I just found out my blood levels are good but the lowest end of good.
  21. musicchick581

    Amino Acid urine test results help!

    I just received my amino acid results and almost everything is low: Methionine Lysine Threonine Leucine Isoleucine Tryptophan Histidine Alanine Aspartate Asparginine Glutamine Cystine Tyrosine Serine Alpha-Aminoadipate Phosphoethanolamine Cystathionine Ammonia is in the yellow high but not the...
  22. musicchick581

    Help with amino acid results (urine)

    I just received my amino acid results and almost everything is low: Methionine Lysine Threonine Leucine Isoleucine Tryptophan Histidine Alanine Aspartate Asparginine Glutamine Cystine Tyrosine Serine Alpha-Aminoadipate Phosphoethanolamine Cystathionine Ammonia is in the yellow high but not the...
  23. musicchick581

    Help, my neurotransmitters are very low.

    I read that having a urine neurotransmitter test is not conclusive unless you have been previously supplementing with amino acids. So it's a test I'd avoid. I actually have had several done over many years because I was supplementing with 5htp and other neurotransmitter support supplements. We...
  24. musicchick581

    Dairy free Probiotics (Culturelle), OAT test question

    thanks..any idea why probiotics are a no? Are they a cause of sulfur? I ordered Culturelle.
  25. musicchick581

    Dairy free Probiotics (Culturelle), OAT test question

    I'm on a low thiol diet to reduce urine sulfAtes but my sulfItes are normal. My OAT urine test came back with a few things off but my doctor wasn't convinced I have candida or any issues there. (Hippuric, HPHPA and arabinose are high). I'd like to be sure though and treat the HPHPA...
  26. musicchick581

    Warrior/worrier on mao a and comt?

    This video is fantastic. I recommend you guys watch it.
  27. musicchick581

    Warrior/worrier on mao a and comt?

    One study said mao a is responsible for warrior gene and others say comt is responsible. Does anyone know which? Also, what does 2R, 3R, 4R, or 5R mean in relation to MAO A and warrior/worrier genes? I read that T means lower activity and G means higher activity. With men, warrior means...
  28. musicchick581

    Organic Acid and Amino Acid urine test help please

    I just received my tests back. Can someone help me with the results? I'm on a low thiol, low acid (for reflux) and low histamine diet, and cut out grains and dairy and all processed foods months ago. Basically been on 10 foods for the last 3 months. Does urine test long term or short term in...
  29. musicchick581

    Urine sulfites low but sulfates high. Why?

    Ok, that makes sense. So how would I go about testing my sulfites? Are the sulfate strips designed for urine and accurate?
  30. musicchick581

    blood results after strong B12 and Folate supplemention on heterozygote C677T and A1298C

    @sueami and @recorte I was wondering because I have both and have been suffering with panic/anxiety for years now (daily and very often). I get bloating and have lpr reflux and quite a few sensitivities. I am looking for a solution as well. As far as I can tell, the anxiety and panic is related...