• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    Update on Complaint to the MRC in Light of the ME/CFS Retroviral Research

    I hope to be able to speak to Peter Spence in Sept , if I am well enough, to put this point to him, and where do AFME stand in the light of the new research? And does AFME seriously support LP for children with ME? and I shall have to bang on about the ethics of Ester Crawley's study. As far...
  2. J

    Come in the UK's media,your time has come !

    Seriously To the music of "The sound of music" How do we treat a boy like Wayne Kerr" I have had serious thoughts on this, hand cuffing myself to the Westminster railings naked, but then the police have guns and Wessley's just up the road and I would have been committed to the Maudsley hosp...