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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. T

    What does Stevia actually do?

    Hi all, I wanted to get to the bottom of the stevia mystery and researching myself has not been fruitful :) I think it may have caused chronic stomach inflammation when I was using it a lot (1-2 packets a day, sweet leaf brand), but then it may have been coincidental. I really like using it...
  2. T

    Construction dust reaction - looking for ideas and solutions

    Hi all, I was doing well and was in a building for about 5 min that had a wall torn down (because of a leak I think) and so many fans aimed at it to prevent the leak from forming mold. It smelled like vacuum cleaners smell but a little stronger and I didn't expect anything to come of it, but I...
  3. T

    How to undo biotin

    Hi there, I was thinking someone on this forum might know how to undo biotin as I think it started to cause symptoms. I obviously stopped taking it but was taking 1125 mcg for a week and then 2500 mcg for about a week. Digestion is off and fatigue increased, possibly some fungal growth as...
  4. T

    New mystery illness after mosquitos, pesticide and travel. Would appreciate ID/opinions :)

    So, this got so much better over the winter and I'm mostly back to normal :) I didn't go through scans because I could tell I was improving, but I'd say it was something in the guillain barre realm (I did have that briefly as a toddler after a vaccine) but not sure what set my immune system off...
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    Not catching Covid/viruses properly

    @Booble thank you :) ... I am back with family because of a health flare plus the impact of covid on my work opportunities and safety. My parents and grandma rely on the news, on tv, and don't know as much about what covid is because they don't read online. I'm saving up to get back on my own...
  6. T

    Not catching Covid/viruses properly

    Oh, I wasn't saying that immune system problems have me or others protected, just speaking about my personal experiences with other coronaviruses. I'm still super afraid of covid 19 especially because of long haul, considering that I already have a form of long haul from other causes and...
  7. T

    Not catching Covid/viruses properly

    I have also noticed that when I have severe chronic problems I do not get normal colds or viruses at all. When I've made great strides in my overall health recovery, I do get them. I've had super high antibodies for ebv but never had the symptoms of it. I've been wondering what my reaction to...
  8. T

    Low CO2, acidity and how to fix it

    @Springbok1988 thank you :) What’s crazy is, searching low CO2 levels in blood brings up a variety of reputable sources, reflecting both of these opposing views. Some say it is acidosis, others say alkalosis… I’m not sure how this info could be inconsistent? Thanks for bringing my attention to...
  9. T

    Low CO2, acidity and how to fix it

    Hi, I recently got a lab back that showed low CO2 (19 mmol/L. Range was 20-32). My doctor said it means I'm acidic and suggested alka seltzer gold or tri salts to alkalize, but minerals are a big risk for my sensitivities (I can take some supplements, but vitamins and minerals don't typically go...
  10. T

    New mystery illness after mosquitos, pesticide and travel. Would appreciate ID/opinions :)

    Good Afternoon, I was hoping to get some insight from others as I've found myself with a new mystery illness yet again :/ I do have a lyme doctor, am starting with a new MCAS doctor and have conventional people on deck too, but sometimes patients know more :) I spent a month in Wilmington...
  11. T

    Tundrex Probiotic

    Good Morning :) I don't know if anyone watched Dr. Galland's videos on covid (on his website), but no matter what complex illness you're treating, I think it's pretty interesting.. Anyways, one probiotic that he suggested for long haul is called Tundrex. I've never heard of it. He said it's...
  12. T

    Tooth Enamel

    @Learner1 As of February, I was a little deficient in A and D. Like I was saying though, I was really stuck inside for months, due to winter, covid semi lockdown and a sprained ankle, in a house without the greatest light. Lately, I've been outside for an hour or two a day and it's been in the...
  13. T

    Hydroxyapatite Toothpastes for Dentin

    Hi, I wanted to know if anyone has looked into the different types of hydroxyapatite toothpastes. I have had some transparent marks in my front teeth for about a year now (the dentin inside is the issue... it's not erosion on the outside). I also have ezcema, asthma sometimes, fatigue, reactions...
  14. T

    Tooth Enamel

    @Learner1 I was just a bit deficient in Vitamin D when I was tested in Feb, and that was after a couple months of being stuck indoors and with very little light because of the winter, but I've been in the sun a lot since so I don't think I need D now... I was a little deficient in Vitamin A as...
  15. T

    Tooth Enamel

    Hi, I wanted to follow up on this thread because I'm looking into the types of hydroxyapatite toothpastes and trying to figure out what to get. I have had some transparent marks in my front teeth for about a year now (the dentin inside is the issue... it's not erosion). I also have ezcema...
  16. T

    What has helped you with sleep/insomnia - post links

    Holy Basil, Olive Leaf Extract, Palo Santo oil (used topically)...
  17. T

    "Dyshidrosis" (small blisters on hands and/or feet) anyone?

    I have this as well but sadly do not have the explanation. My other issues are sort of allergic in nature and if I was eating gluten I'd definitely suspect that... or post viral/infection reaction.
  18. T

    Re-infection with lyme disease

    What are your symptoms/co infections? I like Klinghardt's protocols in general which are all published on his website. I unfortunately would struggle to tolerate them right now but wish I could :) I'm trying the Microbe Formulas products now and like them a lot so far.
  19. T

    Hypercoagulation + Low Blood Pressure

    I'm taking olive leaf, oregano, probiotics, quercetin, ashwaganda and mimosa pudica now. I can take turmeric and tolerate it, makes me a bit tired. I plan to add niacinamide for cholesterol and my skin and because it has been some help in the past. But very concerned about trying boluke...
  20. T

    Hypercoagulation + Low Blood Pressure

    Good Morning All, I am concerned about my latest lab findings because I do generally have low blood pressure and a tendency to pass out easily (average bp is 90/62), but I was told that I also have hypercoagulation issues and need to take blood thinners such as lumbrokinase or natto. Garlic and...
  21. T

    Problems Converting Beta Carotene to Vitamin A

    Hi all, I've been reading the forums looking for info on converting Beta Carotene to Vitamin A. I had excess Beta Carotene on my last lab and have routinely had low Vitamin A in times of severe illness, which presented as symptoms of Vitamin A deficiency. I was not taking any supplements at all...
  22. T

    Which allergy meds are suggested for Mast Cell control in Lyme or Covid?

    Hi all, I've been having a flare of symptoms that keep leading me to look into mast cell treatments, honestly not sure if caused by lyme/bartonella or covid, but I am not able to see a mast cell specialist at this time. I wanted to know if anyone has anecdotal info or experience with common otc...
  23. T

    Hazards of 5G technology

    Does anyone know specifics about 5G- such as how best to avoid it? Should I distance myself from devices that are connected to it, or from the router/modem? I've never been very sensitive to EMF's, but I read some scary things about 5G. I live with roommates and in apartment buildings so it's a...
  24. T

    vertigo

    Thanks for this info @Archie ! I was wondering about how much K1 to take in proportion to K2 and the actual amounts of each. So this is good to have the reference of the supplement data. It looks like they are almost equal in this one. I've been seeing a lot of vitamin D being sold with K2 only...
  25. T

    vertigo

    Hi @Archie I also have problems with vertigo, but found this thread specifically searching for info on proper dosages of vitamins K1 and K2. I have seen drastically different amounts in different vitamin D formulations. Does anyone know what amounts of each are best? Thanks!
  26. T

    Deficient in A, but not tolerating it well

    Thank you @pamojja for this detailed, helpful info. My doctor never brought up boron, so I'm very ignorant... will read up on it. I also found the article very interesting. I know that I have problems with oxidative stress, but it can be confusing because I've read that high dose C, if too high...
  27. T

    Deficient in A, but not tolerating it well

    Hello, I wanted to get some anecdotal opinions on supplementing Vitamin A and D. My data for reference: Vitamin A Serum - Low - 11.6 on a range of 30-75 ug/dL Vitamin D - 38 on a range of 32-100 ng/ml So my doctor suggested 10,000 IU's of A and 5000 IU's of D with Vitamin K1 & K2 (550). The...