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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    ME caused by squeezed nerve?

    Thank you. I will have a look but unless I can get an NHS doctor to actually listen, believe and act on what I have been saying to them for years there is nothing I can do.
  2. J

    Science Media Centre briefing on new Hornig, Lipkin et al. immune study

    “Journalism is printing what someone else does not want printed: everything else is public relations.” George Orwell
  3. J

    Psychology Today Opinion piece regarding the IOM release

    But the present lot go back and make the connection as well (and get it wrong) - that's where all the rest of it has come from including the new ICD codings and all the crap that went down with the APA about Bodily Distress Disorder etc..
  4. J

    Psychology Today Opinion piece regarding the IOM release

    Well - maybe a 'lot' was overstating it - I think the idea of the 'unconscious' has become more prominent as a reasonable idea recently - I do agree he largely nicked that one though. You clearly have a loathing for the guy. I don't hate him quite that much in terms of some of his general...
  5. J

    Psychology Today Opinion piece regarding the IOM release

    Indeed - especially those 'displayed' to an audience at the Sapeltriere by Charcot. There is a distinction to be made between the term 'mass hysteria' and 'hysteria' though which further complicates what these idiot biopsychosocialist/somatisation nuts are banging on about when they use it. I...
  6. J

    Psychology Today Opinion piece regarding the IOM release

    I know. But if you look back at the history and case histories the presentation of hysteria is mentioned as 'florid' - the women are manic and attention seeking they have spasms and dance around etc. ME/CFS has never been spoken of in this way - writings on neurasthenia, on the other hand talk...
  7. J

    Psychology Today Opinion piece regarding the IOM release

    I can't see one - even last night it was impossible to comment because the box you typed confirmation letters in to kept coming and going. It also kept referring me to a 'spam' reporting site so it may be that it just collapsed? Or maybe he took it down?
  8. J

    Psychology Today Opinion piece regarding the IOM release

    Yes - it is true - at least according to Masson's book which relied heavily on letters between Freud and his best mate Fliess. This particular response lead to the creation of the Oedipal Theory which replace his original concept that childhood 'seduction' was causative for hysteria. Of course...
  9. J

    Psychology Today Opinion piece regarding the IOM release

    Freud and Fleiss nearly killed a woman called Emma Eckstein when the operated on her nose to stop her masturbating and, thus, cure her of hysteria. She nearly bled to death. Really - they really did do that! Jeffrey Mason wrote a fab and troubling account of it in his book 'The Assault on...
  10. J

    During a crash cant fall asleep. keep startling awake all nite

    I find it interesting you have the 'jerking awake' thing. I have never heard anyone else mention it apart from in the report of the Royal Free epidemic and myself. When first ill, as I said, I couldn't sleep. Every time I dropped off it felt like my body tried to stop it because I would die. By...
  11. J

    During a crash cant fall asleep. keep startling awake all nite

    No idea - I spent the first two years of ME unable to sleep at all - was hospitalised because of it and they couldn't help either. I have zopiclone now for when I need it but I still only manage a few hours before waking again. Living without any sleep is hell - these days I just try to enjoy...
  12. J

    List of drugs which cause mitochondrial damage

    Since I have to take Aspirin for Essential Thrombocythaemia (bone marrow makes aberrant stem cells that make too many platelets) and Diazepam (Valium) for muscle spasm caused by spinal problems there's nothing much I can do about it. I was on Diclofenac for years but GP has recently said I...
  13. J

    Psychology Today Opinion piece regarding the IOM release

    Does anyone know if they have removed it entirely or just made it 'log in' only? Thanks to those who captured and saved it.
  14. J

    Psychology Today Opinion piece regarding the IOM release

    Thanks - I sorted it - think it was the name I used - to generic.
  15. J

    Psychology Today Opinion piece regarding the IOM release

    Did you get a message saying your post has been flagged as spam when trying to reply to the piece?
  16. J

    Psychology Today Opinion piece regarding the IOM release

    Having just spent a week largely in bed in a dark room feeling unwell in ways I cannot find words for I'm ashamed to say that really got to me - I cried, then I felt impotent rage and then I thought - I bet he has connections with Simon - so thanks for checking so I don't have to put myself back...
  17. J

    Discussion of full IOM report

    I would have preferred 'slerp dysfunction' or 'disordered sleep. ? Not 'unrefreshibg sleep'.
  18. J

    BENECOL YOGURT SAFETY ADVICE

    There is some info on here about saftey and mention of affects on immune markers: http://www.patient.co.uk/doctor/cholesterol-lowering-sterols-and-stanols
  19. J

    What do you think of the IOM's new name for ME/CFS? VOTE!

    I think it would have been better to use the money on research. I long for the day when someone decides to check say, about 500, patients some who meet the most stringent criteria and some who meet only the more lax ones and then run every test that has ever shown any evidence of biomedical...
  20. J

    What do you think the IOM report missed? (Poll)

    The fact that some people have M.E. I mean some people, on autopsy, have been shown to have the 'itis' bit and have complained of muscle pain and, therefore, literally had M.E. and we don't know how many people who are not yet dead do in fact have M.E.
  21. J

    Release of the IOM report - live webcast-2/10/2015

    It is a little concerning that Simon is somewhat on board.
  22. J

    Release of the IOM report - live webcast-2/10/2015

    http://www.newscientist.com/article/dn26945-chronic-fatigue-syndrome-gets-yet-another-name.html#.VNpXfC6AmSo
  23. J

    Release of the IOM report - live webcast-2/10/2015

    Thanks to the person who put the full BMJ article up.
  24. J

    Release of the IOM report - live webcast-2/10/2015

    I don't understand the USA process for adopting recommendations. Who decides whetherto adopt this not?
  25. J

    Release of the IOM report - live webcast-2/10/2015

    British Medical Journal: http://www.bmj.com/content/350/bmj.h775 US panel proposes new name and diagnostic criteria for chronic fatigue syndrome
  26. J

    Release of the IOM report - live webcast-2/10/2015

    Get 404 error for link to Annuls of Internal Medicine?
  27. J

    ME caused by squeezed nerve?

    I haven't read this entire thread - not well enough - but the stuff about atlas subluxation makes complete sense to me at least fro some of my symptoms. I have looked in to it quite a lot in the past but can't travel to where I can see someone to try and help with it and, as mentioned above, I...
  28. J

    Science at the UK CMRC Conference, 1-2 Sept 2014

    Does that mean that a bad case of chicken pox in early adult life can cause ganglionitis? Sorry for my idocy in this respect - not up to the concentration thing.
  29. J

    pressure in head

    Do you have any orthopaedicproblems with your spine? I have disc bulges and bone growing where t shouldn't be. Also had to have spinal surgery to prevent paralysis. Although I had the ME diagnosis first I suspect that the problems were already there and may cause at least some of the wierder...
  30. J

    pressure in head

    For me I think the heavy pressure and concussed feelings are related to my upper cervical spine where my head joins my neck. Strangely I find the sleeping pill Zopiclone is the only thing that really helps. If I don't fall asleep with it my head clears and feels less crushed and under pressure...