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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Nana86

    (Inital?) worsening of Symptoms with D-Ribose/D-Galactose

    Hi everybody! I´m getting kind of methylation-/mitochondria-treatment from my doctor and some of my problems already have improved. Unfortunately I´m still having a lot of problems with circulation (dizziness, feeling weak etc.) and I don´t have so much energy. Although my energy levels have...
  2. Nana86

    Magnesium supplement - more weakness and muscle pain?

    Hi everybody, I am on my doctors methylation protocol (almost the same as RichvK´s protocol) and my health steadily improved over the past months. Until March I used to take 800mg pure Magnesium (+ around 500-600mg Magnesium from food) and when my Magnesium status got checked at that time it...
  3. Nana86

    Methylation Results - Any help appreciated

    Hi! I am also no expert, but I think since your cystathione levels are pretty low and your homocysteine is high it doesn´t really look like a CBS-upregulation. But you definitely seem to have a methylation cycle block (low reduced glutathione, high homocysteine, some folate metabolites on the...
  4. Nana86

    From hypo- to hyperthyroid on the protocol? (agitation, nervousness, rapid heart beat etc.)

    Thanks a lot everybody for your answers! :) @Violeta, how much of B3 would be recommended to slow down methylation? Unfortunately I already have very (!) high levels of histamine since my body is overproducing it plus I got bacteria in my gut that are also producing a high amount of histamine...
  5. Nana86

    From hypo- to hyperthyroid on the protocol? (agitation, nervousness, rapid heart beat etc.)

    Hi everybody! I´m on my doctor´s methylation protocol (which is close to the one of RichvK). I had severe CFS& Mitochondriopathia and was bed-ridden for a longer time. Now I am awake all day and can concentrate on things to a certain extend, which I´m really happy about. Unfortunately in the...
  6. Nana86

    Managing Potassium Deficiency - Share your experience

    Hi everybody! I was doing kind of a methylation protocol on advise of my doctor which I started around last September/ October. It gave me some improvements, but my situation changed fully when I started taking 5-MTHF, Folinic acid and omega-3-fatty acids like two weeks ago. My Fatigue and...
  7. Nana86

    Side-effects from Omega-3 Supplement: Anybody has some experiences?

    Thanks everybody for your answers! :) @zzz0r , Did you notice any positive effects from the Omega 3s after the headaches went away? Btw, I have never been on accutane treatment before, but I am taking a Vitamin A supplement (3.000IU of retinyl palmitate). Why are you asking? :) @Tillie, the...
  8. Nana86

    Side-effects from Omega-3 Supplement: Anybody has some experiences?

    Hi everybody, I am on my doctors methylation treatment and I am already doing much better. For me the largest problem at the moment are headaches, brain fog, fatigue (but no longer severe) and weak muscles. If I walk around for 1-2 hours my muscles are getting sore and painful and it takes some...
  9. Nana86

    Greetings and newbie question about potassium balancing

    Hi! At the beginning of my therapy I almost had exactely the same problems as you are experiencing now (and I am a lot better now!) :) I will try to answer your questions from what I know and experienced: I don´t really think you´re reacting on the potassium in the food, but you might have a...
  10. Nana86

    Lipid Replacement Therapy: Experiences& supplement alternatives

    Thank you everybody! :) I think I am going to give it a try and report later on if it helped :)
  11. Nana86

    Lipid Replacement Therapy: Experiences& supplement alternatives

    I just did some research again and lecithin doesn´t really seem to be an alternative...I´ve also looked up th NT factor product above and it has also Xylitol and maltodextrin in it which I´m unfortunately very sensitive to :( Is there any other product like this? Thanks a lot everybody for your...
  12. Nana86

    My story & methylation protocol (+some questions)

    @ahmo, thanks for the link and the info :) I am also having some issues with bad skin. What really has improved it was taking selenium, zinc and Vitamin A. Have you already tried that ones? Unfortunately I got some red, dry, round, itchy patches on my arms and in my face...they first got a lot...
  13. Nana86

    Lipid Replacement Therapy: Experiences& supplement alternatives

    @shah78 , Me Sci, thanks for your posts! I googled NT factor before but found something totally different...I think I´ll order that product :) @Radio, I just read your thread and it seems really worth trying it :) But I am wondering if I can get the same results from taking lecithin granulate...
  14. Nana86

    My story & methylation protocol (+some questions)

    Thanks again for your answers :) I am now on 500mcg of 5-MTHF (took me around 3 weeks to get here) and I think it´s helping me a lot (although there are also some negative side effects...). In his Simplified Methylation Protocoll RichvanK states that 200mcg of 5-MTHF should be taken. Does that...
  15. Nana86

    Lipid Replacement Therapy: Experiences& supplement alternatives

    shah78, that sounds pretty good :) I´d also like to try that glycophospholipids, but what keeps me off trying that producut is, like Little Bluestem said, that it is mixed with other elements. I´m already taking most of them and I don´t want to get too much... do you know if there´s a product...
  16. Nana86

    Lipid Replacement Therapy: Experiences& supplement alternatives

    Hi everybody! In the past days I worked through RichvK´s Simlified Methylation Protocol and saw that he is recommending to take Lecithin or even better glycophospholipids. On the internet I just found statements on glycophospholipids published by companies selling the products - they´re saying...
  17. Nana86

    My story & methylation protocol (+some questions)

    @Critterina , thanks a lot for the tip :) I´ve decided to stop the P5P or at least just take a very small amount every other day, since after taking it my kidneys start to hurt quite a bit. I´ve had that problem last summer when I started the treatment, too. When I added 5-MTHF 2 weeks ago I...
  18. Nana86

    My story & methylation protocol (+some questions)

    Thanks a lot for your answers! :) @Critterina , I have had already quit my B-Complex around 2-3 weeks ago, but it didn´t change anything. I think the headaches are coming from the zinc, but the headaches got a bit better...until I started taking 5-MTHF and stopped normal folate (my doctor told...
  19. Nana86

    My story & methylation protocol (+some questions)

    Hello everybody, I´m a 27 year-old women living in Germany. I have been very sick for the past two years and although I already got a lot better I am still having some issues (I think due to low methylation) and hope I can find some hints here This is my story in short: In the first year...