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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. kisekishiawase

    Regional(spinal/epidural)anesthesia for palpitation patient?

    i was wondering if anyone has any experience on regional anesthesia effect on patient who has palpitation, tachycardia issues? because i read from many sites/literature that lidocaine and bupivacaine cause increase in HR. and even arrhythmia but i read lidocaine could be a treatment for...
  2. kisekishiawase

    Quest Diagnostic result? (VGCC AB)

    i just read the VGKC AB result and its abnormal as well :( i dont understand how come? i hope the test is wrong but i cant get restest at other lab although im still pursueing it it makes me more scared of surgery due to the complication cause having more rare conditions :cry:and doctor is...
  3. kisekishiawase

    Quest Diagnostic result? (VGCC AB)

    @Gingergrrl Thank you for your answers :) im considering MRI but without contrst for lung but i dont know if its affective or will xray effective cause cr scan give high radiation and i already get HRCT 2019 ive had breathing test in 2019 and it said some obstructive. they say my breathing...
  4. kisekishiawase

    Quest Diagnostic result? (VGCC AB)

    Thank you. i will try to pursue it. but isnt it the same as Quest too? 1 thing i dont understand why its written the test isnt cleared&approved by FDA? and its developed by quest lab. @Gingergrrl actually my inspiration for fighting to get the test. people here dismissed rare conditions since...
  5. kisekishiawase

    Quest Diagnostic result? (VGCC AB)

    Hello again and Thank you for replying:thumbsup: I see..Were you other results also dont have the unit measurement(liter, milliliter, etc)? also before they send the result they ask about my symptoms/diagnosis. is it normal? the only top lab in my country that i know send lab test to US have...
  6. kisekishiawase

    Quest Diagnostic result? (VGCC AB)

    This is the first time i tested on Quest Diagnostic. Someone ever see their test result and could explain if what i have is the right result or the test is failed? i wonder why theres no unit measurement pmol/L like in reference range? i thought 72 H is 72 hours...? heres the photo: i try...
  7. kisekishiawase

    (HELP)Covid treatment&connection with tachycardia

    Please help. Im really desperate. :( the hospital is collapse. ive already have many health issues but my biggest symptoms is tachycardia palpitation. Many sensitivities. (i Also have autoimmune) But now im worried about covid. for 3-4 days i have a few symptoms(fever, itchy throat)but It...
  8. kisekishiawase

    Heart beat feeling like it is pounding very hard...feeling and hearing each beat

    i see. so theres a cause to it right? its not something that being there from the start/since born? or is it inheretent? because i read it could be genetic influence or something but theres usually multifactor and should be other triggers. i also notice i wasnt like this before even my earlier...
  9. kisekishiawase

    Can dysautonomia be reversed?

    im already introduced to beta blocker since 15 years ago but it only reduce heart pounding to some degree, it cant still make me normal/still cant do normal activities, i still got issues (cant depend on it much for too long as it got side effects which isnt good) im interested in testing the...
  10. kisekishiawase

    Can dysautonomia be reversed?

    but gut dysbiosis isnt connected to it? as far as i know... did you cure it by supplementing? which supplement? because from what i know theres no test to confirm leaky gut mitochondrial function. i already improve diet, etc but symptoms still exist. also at earlier times i didnt experience...
  11. kisekishiawase

    Can dysautonomia be reversed?

    hello.. i remember talking to you months ago about celltrend test(i think i remember correctly but im not sure if my brain is correct lol) i still dont know whats the culprit of my issue. i plan to do the celltrend test but then the corona pandemic hits. so i cant :( ive been going to...
  12. kisekishiawase

    Dysautonomia: "The finger wrinkling test can be used as a screening test before tilt table testing"

    may i know why you take prednisone? im confused cause you said its for arrythmia. anyway, i have ANS issues/symptoms but my skin reaction has been so sensitive usually from washing hands/disease my fingers got wrinkles, patches and looks bad. i thought the wrinkles isnt normal cause other...
  13. kisekishiawase

    Can dysautonomia be reversed?

    is the heart pounding randomly during sleep from autonomic? i have this issue since years ago but im not sure if its because of ANS? is there some research/explanation? wasnt sleeping should be the most relax state... ive been searching for answer for long time :( also what you do to stop the...
  14. kisekishiawase

    Heart beat feeling like it is pounding very hard...feeling and hearing each beat

    do you ever get pounding heart during sleep? eating is common issue with palpitation. but theres an explanation to that. what i dont get is outside from eating. if theres no known culprit. and the heart is acting up. if you get palpitation constantly isnt it not normal? can you notice when...
  15. kisekishiawase

    Heart beat feeling like it is pounding very hard...feeling and hearing each beat

    @goxus @sb4 @Jwarrior77 @Stretched welcome to the club... may i ask who get palpitation almost so often/constantly/can be all day can last for days? i often get palpitation all day where i always feel the heartbeat/where it beating harder/strong. (even when its not fast)its so weird i wonder...
  16. kisekishiawase

    Reacting to literally anything I ingest

    isnt that more of a abdominal issue instead of heart? i also intolerant to many foods(heart pounding) but theres only a few food that i can eat. but my symptoms appear around 20-50 minutes after eating. @Jwarrior77 yours start immediately after ingesting food? thats odd because theres should...
  17. kisekishiawase

    Research on chinese medicine, practice?

    I have read a lot on this matter but it is still unclear and controversial. Im still curious.. Are western science based researchers/doctors do many research on this matter? i usually see papers produed by traditional health practitioners. So i cant find. Because of covid19 TCM becomes more...
  18. kisekishiawase

    Crowdmed(detective)/online consultation(doctor)?

    Does anyone know any experience/knowledge of crowdmed(medical detective)or other doctor online consultation service? Im so desperate&lost cause the med system around me.(southeast asia. I need to find POTS, EDS, CFS, MCAS specialist. And connected diseases/syndromes, since i have symptoms...
  19. kisekishiawase

    Autoantibodies and ANAs

    I just read about mast cell and people experience palpitation, stomach upset, anxiety after eating. Its similiar to me. But im still unsure(i thought its because of gut issue) I guess AI and MCAS can be connected its from immune system, right? I guess people with high allergy, autoimmune are...
  20. kisekishiawase

    Autoantibodies and ANAs

    Did you mean your heart issue resolved from the neck issue?(heart issue caused by neck problem?) How did you suspect the neck issue? Anyway glad to hear you finally found good treatments.
  21. kisekishiawase

    Autoantibodies and ANAs

    This screams like autoimmunity im confused why it didnt get detected. Some experience are similiar with me, also the bad doctor part. I also got the yellow spots on white part of eye. But doctor says its nothing. Also since last year got blinking light upon waking sometimes. But doctor check and...
  22. kisekishiawase

    Autoantibodies and ANAs

    Hello again. I still have a missing puzzle here. May i know more detail about the heart symptoms? And other symptoms that may related tp the beta adrenergic, muscarinic antibody? Im still not really similiar with it. Such as, do all symptoms have to happen and constantly. Also do your heart...
  23. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    @Sushi Hello and thank you for asking your doctor i really appreciate it. :angel::thumbsup: I think i have tried email them before but they said they dont know about POTS specialist. I might have to check that again or ask again. Hopefully there is. Sorry again and thank you for both of you...
  24. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    Yes and thank you. i have been trying to find if theres a specialist there who can help me identified the culprit of my issues :( Yes he said the 2d echo isnt really clear only 1 side.
  25. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    I just read this. I see.. its great if she would know if theres a specialist who treat pots in singapore/malaysia?anyway it seems cfs still unknown in singapore too it seems? I dont know how to find. I actually still confused what i have since i have this many symptoms but its still a mystery...
  26. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    mostly when i asleep many times but randomly. but i notice i sometimes hold my breath even when awake/if i focus on something. My teacher used to say that to me too. I dont know if it means something? I have 1 sleep study but i didnt sleep/hard to sleep cause its not comfortable and im nervous...
  27. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    Hello thanks for replying again. Its surgery for endometriosis cyst 8cm+. Its sudden. I still wish theres other way to reduce it other than surgery. :( So far what they say is 2 option: Cut open stomach took the ovarium out or laparoscopy(use gas to fill stomach, tilt down head)Im still unsure...
  28. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    @Gingergrrl i havent got surgery since i got sick. (Last appendix surgery i was 6 y.o) I didnt follow up the ASD suspicion cause other doctor said different thing so im confused. I have apnea too(randomly)CNS, OSA, breathing issues air hunger, tightness, weakness, happened many times before...
  29. kisekishiawase

    Anesthesia for heart issue(palpitation, tachycardia, pots, etc)

    How are you now ? Are you doing well/better now? Well i got many issues but most of it didnt get addressed. The surgery is from sudden new issue. Endometriosis cyst 8cm+ :( i want to search other option besides surgery that could help reduce like sclerotherapy, etc but havent found. :( Years...
  30. kisekishiawase

    My very, very worst symptom is back :-(

    Hello thank you for the links/attachment. Yes i do remember on other thread discussion with @Gingergrrl too I feel suspicious with the autoimmune and heart issue since i have AutoImmune too but other antibody. But what gets me down is the test hard to achieve and conventional doctors dont...