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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R

    Active B12 Protocol Basics

    Violeta, Thank you very much for your post. We are honestly willing to research and try anything at this point--well, anything other than botox, immune suppressors, and opiates. The Wikipedia post on GABA is interesting, and I am adding it to my spreadsheet of things to try. Thank you
  2. R

    Active B12 Protocol Basics

    Thank you very much, Fred, for your response. Yes, on the L-methylfolate--he takes 800mcgs when he wakes up with his thyroid, and then waits an hour before breakfast. L-carnatine fumarate-- we can increase this as a test. SAMe - this was my pathway to the site. I had tried giving him SAMe...
  3. R

    Active B12 Protocol Basics

    Good evening, everyone! I am eager to ask if anyone has heard of a B12 deficiency causing a headache without any other signs of CFS. My brother, currently 21, has had a non-stop, 24/7 headache for the past 11 years. We have been to countless neurologists, including the most prestigious ones...