• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. Martial

    Re-infection with lyme disease

    Interesting never heard of that herb before I'll check it out thanks! I'm doing a lot better already after re introducing the buhner herbal protocol again.
  2. Martial

    I seem to be in remission (ME/CFS moderate since 2007)

    Glad to hear of your recovery! Couple things stood out to me. The connective tissue pain and inflammation along with other symptoms is very suspect of lyme and co infections, and CCI is something that can cause the full array of ME/CFS symptoms. If you ever become sick or relapse again there is...
  3. Martial

    MRI: White Matter Lesions?!

    Something that happens with lyme disease as well. I had some brain changes when I had an MRI or CAT scan but I can't remember what exactly it was for myself since it was so long ago.
  4. Martial

    I'm going crazy when I see more LLMD! Absolutely different opinions of experts...

    With the buhner herbal protocol they can reach all stages of infection and life cycles, bio film isn't something that is really a problem with it. Thousands of people have recovered with core protocol adding additional herbs recommended based on certain symptoms or co infections. Usually people...
  5. Martial

    High IgA Anyone?

    Infections and autoimmune issues can cause it, as well as liver issues among some other things.
  6. Martial

    I'm going crazy when I see more LLMD! Absolutely different opinions of experts...

    If it's going to help you'll notice between 3 months and 6 months of being on it, especially as you work your way up to max dosages you can tolerate. For people that it helps they start to notice some positive changes then and have a gradual up and down process of recovery there after. For...
  7. Martial

    Bizarre random 1 day "remission"

    Have you ever looked into CCI or Chiari? If it's a mechanical issue in nature like that then there could be random periods of sudden remission due to de pressurization of brain stem.
  8. Martial

    I'm going crazy when I see more LLMD! Absolutely different opinions of experts...

    Lyme disease can take a very long time to treat adequately if it's gone a while without proper diagnosis but you can fully recover using the buhner healing lyme disease protocol which is purely herbal and is what I did to put my old Lyme disease to remission. I was severely sick for years. It's...
  9. Martial

    From zero to hero thread

    A lot of M.E. CFS patients have CCI, Chiari issues which can immediately resolve all symptoms and cure them if this is an underlying issue for them. And it can happen from EDS, injury, or infectious diseases. Might be worth looking into for yourself. Although this in particular wouldn't cause...
  10. Martial

    Question regarding differential diagnosis

    Lyme disease and co infections, as well as any other chronic stealth infections. This is a big thing a lot of people miss because it's so hard to get proper diagnosis and tests can be very hit or miss. The longer you're sick or more severely the less chance you'll have antibodies that show up...
  11. Martial

    Wondering if I have CFS?

    I would investigate Chiari/CCI, EDS syndrome, and lyme disease and co infections with a Lyme disease specialist doctor. Someone mentioned narcolepsy but what you're describing sounds more like hypersomnia which can be idiopathic or from an underlying cause like CCI, Lyme disease, chronic stealth...
  12. Martial

    Do you worry about your cardiac health from minimal exercise?

    Diet is going to a huge assistance when exercising isn't as feasible. If you have an impeccable diet then you can easier get away with less exercise. I think it's important to also be sure not to cause yourself a crash by over expending energy limits too because the crashes set you back longer...
  13. Martial

    From zero to hero thread

    You could have some gut dysbiosis or SIBO. Dysbiosis is very common with illness. Lots of things can affect the gut and a big part of the immune system is in the gut. I'd try getting on some strong probiotics and upping your prebiotic fiber intake. Also if you're taking those buhner herbs you...
  14. Martial

    85% recovered

    I'm extremely thrilled for you! Thanks for sharing your story and I'm so glad you held through 💙
  15. Martial

    Me/cfs and metabolism,gut

    Theres a lot of serotonin receptors in your gut that is probably why it's helpful, although I don't expect it would be anti microbial just help symptoms from dysbiosis
  16. Martial

    Hyperpigmentation/ do I have ME?

    It sounds like whatever you have going on is primarily centered around your nervous system. I would just make sure to rule out infectious diseses before going down the auto immune route. As those medications if you take immunosuppresents will make chronic infections worse. Whatever is going on...
  17. Martial

    Re-infection with lyme disease

    Interesting if he's that close ill have to try and book an appointment. For now my symptoms are very typical lyne stuff. Some tendon pains and generalized fatigue, muscle pains a bit, some strange neuro symptoms. I believe I had bartonella co infection last time but I resolved every symptoms I...
  18. Martial

    Help needed - MRI (scoliosis?, slight chiari?)

    To my understanding Jeff was mentioning on normal exams it's hard to even catch it at all. So the fact this wasn't the type of test looking for it directly and you didn't do the extension version etc and it still showed means it could be worse than what is seen here. Worse meaning that it could...
  19. Martial

    Help needed - MRI (scoliosis?, slight chiari?)

    If you have a slight chiari malformation show on a regular exam you should look into speaking with a specialist and getting more specific testing for CCI, Chiari, tethered chord. There was a guy here named Jeff I believe who completely recovered from his M.E. after finding out he had that...
  20. Martial

    Me/cfs and metabolism,gut

    You can have symptoms of hypothyroidism without abnormal blood test levels, from sub clinical deficiency. Supplemental iodine drops usually helps this for a lot of people. I remember reading about it before thqt reference range of "normal" isn't everyone's "normal". It's important to do a very...
  21. Martial

    Re-infection with lyme disease

    Klinghardt has some great suggestions and stuff for treatment. His suggestion of using resistance rlexefcise when well enough to help oxygenate tissue in the body and raise core temperate to kill the Lyme really helped me a lot in my initial recovery. The buhner herbs have been the best herbal...
  22. Martial

    Re-infection with lyme disease

    Interesting I don't know the strain but I got the new infection in New Jersey in the north east part of the United States. Bee venom therapy was always something that interested me in the past but I have no idea where to get that done. The buhner herbs work very well for all the co infections...
  23. Martial

    Re-infection with lyme disease

    Interesting thanks so much for the suggestions. I'll have to try that with the garlic. I find the buhner herbs to be extremely effective and they worked great for me before when I had for more issues going on. I don't believe that someone cannot get reinfected though. Your body only produces...
  24. Martial

    Re-infection with lyme disease

    Yes this can be a big help for some lyme patients. I feel for certain individuals they are a lot more susceptible to mold problems due to certain genetics that make it harder for them to clear out mycotoxins from their system and etc. None the less I try and practice good mold avoidance. It's...
  25. Martial

    Re-infection with lyme disease

    I got re infected by a new tick bite in New Jersey over the summer. I felt better than ever before after I recovered from my lyme disease and had no long term issues or symptoms after. It was a really lengthy process of recovery due to me not properly treating it the way that you should with the...
  26. Martial

    What are some good natural pathogen removers?

    Check out Stephen buhners books for herbal anti viral and antibiotics, to give you a start japanese knotweed, cyrptolepis, sida acuta, cats claw, andrographis, houttuynia, Chinese skullcap, and alchornea all have potent activity as antimicrobial for either viruses, parasites or bacteria. But...
  27. Martial

    Re-infection with lyme disease

    Okay I gotcha, I definitely agree it'd important to use common sense and discernment. I only have used treatments that have a lot of evidence and successful cases attached. As per the case with the Buhner protocol for example. Where as there were other lyme treatments I came across suggested...
  28. Martial

    Re-infection with lyme disease

    Thank you for sharing this! If I were to ever use antibiotics I think I would try to use it In a similar fashion as this! To really decrease the over all burden on my gut and system from the antibiotics and be more targeted with the application of it. Too many llmds push for major dosing of long...
  29. Martial

    Re-infection with lyme disease

    I appreciate your words and trying to watch out for me, I think the link that was shared by Judee is something I find quite unique but I'm not really trying to use antibiotics. I don't think the person sharing the protocol is trying to scam people though since they aren't directly making money...
  30. Martial

    Sick for the long haul: One third of COVID-19 patients have symptoms for eight months [Australian research]

    I heard one in every 7 people in the Uk have developed long covid as well.