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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. S

    Advice needed! - Coming OFF of SSDI - upcoming hearing....

    Hi Everybody, I am posting here to see if somebody more knowledgeable than me about the whole SSDI system can give me some pointers. Basically, I was awarded SSDI a few years ago (with the great help of a Disability Advocate). About a year ago, Social Security followed up to see if my...
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    Possible Brain Biomarker for ME/CFS Found

    PM sent. (to Osisposis)
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    Possible Brain Biomarker for ME/CFS Found

    Can anybody here read/INTERPRET NeuroQuant results? I've got mine and have no idea what they imply, still have a while to wait before my next specialist appointment. IF SO, please PM me!! Thanks!
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    Shoemaker: Structural brain abnormalities in patients with inflammatory illness

    Can anybody here INTERPRET NeuroQuant results? I've got them, but still have to wait a WHILE before I can talk to my mold specialist... If so, please PM me!!!! It might really help -- things are going badly lately. Thanks.
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    HLA-DR test results interpretation -- HELP?!?!

    Hi Roxie, I started this thread about 6 weeks ago - and have gotten a lot more info since then. First off, regarding HLA DR, 23andMe testing apparently does NOT cover the specific testing required. Unfortunately that is still done through a blood test. Labcorp quoted me around $600-700, but...
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    HLA-DR test results interpretation -- HELP?!?!

    Here is all the info (minus the personally identifying info.....)
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    HLA-DR test results interpretation -- HELP?!?!

    Hi, I just got back my HLA-DR results from Labcorp, and I am trying to figure out how to interpret them. I'm trying to follow Shoemaker's protocols, and specifically his "rosetta stone" for interpreting the labwork, but I am COMPLETELY confused by it!! I'm not a stupid guy, but guess what...
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    Confused about alleles...

    ALSO, I just opened up the BIG raw data file from my 23andMe results and searched for the gene. Here's how it reads: "rsid chromosome position genotype...... rs2248814 17 26100321 GG"
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    Confused about alleles...

    Hi All, I'm SURE this is a very basic question for you folks, but I'm still new to this stuff. I've looked at my 23andMe results through a few different analyses, and I've noticed some discrepancies. One is from "livewello.com" I believe, and the other analysis is the "Sterling" analysis done...
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    If "23andMe" is offline, where can we get tested?

    Just wondering about that. I've been writing a letter to my family trying to explain the little I know so far about this MTHFR stuff (I haven't sent it yet) , and now I don't even know what to tell them - "Here's where you COULD HAVE gotten affordable testing". Understandably, I see the...
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    23andMe results.... Where to even start?!?

    Hi Again! Thank you again very much for the info/suggestions! (( I AM going to P.M. you, by the way...)) To answer s few of your questions: -I've been supplementing with the better forms of magnesium for years. (It's important for lyme patients) -These tests were after a little while of...
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    23andMe results.... Where to even start?!?

    ACTUALLY, I will start by attaching the "summary" of the findings from the bloodwork. Sorry the picture isn't the greatest, but it should do. See what you think....
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    23andMe results.... Where to even start?!?

    Hi - Looking at my results, the only B- vitamin I see is a level for B12 and its actually HIGH - 1540 pg/ml (ref. is 200-1100 pg/ml.) I've had P5P in the mix for a few months at this point, as well as methylfolate AND b-12. Also about 4g of Vitamin C/day. I think I disturbed something...
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    23andMe results.... Where to even start?!?

    Hi Everybody - I am not new to trying to fix my broken down health situation, but I AM new to looking at it from a methylation viewpoint. As you know, there is a LOT to it, and I figured I would throw my info up here and see what you guys might have to say - To make a super-long story JUST...
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    Running 23andme anonymously?

    I might have thought of this earlier (but didn't) so my info could get out. My friend had your same concerns, and I found this: http://venturebeat.com/2013/09/20/how-to-use-23andme-without-giving-up-your-genetic-privacy/ Seems like it should work to me.....