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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. T

    High methionine & taurine levels - what does this mean?

    Hi, I have just had the test results back from an Organic acids test (urinary). I wanted to check if i have any methylation issues (which i believe i do have). All my vitamin markers were normally (including B12 and folic acid) but i have a few amino acid's which were out of the normal range...
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    Does KdM also treat CFS-related methylation issues??

    Ok thanks, but to determine whether someone needs extra B12 shots / folate or has a methylation block, does he run any specific tests for this other than a standard blood test?
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    Help needed to interpret Metabolic Analysis results

    Hi, I did this test a while back (1 year ago) and have recently been looking at the results again, but struggling to identify where to start. Obviously the deficiencies in B6, B2 and B9 are clear and i have been taking Biocare's B-Complex (without B12) for several months now to address this...
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    Does KdM also treat CFS-related methylation issues??

    I posted a message on this forum last week enquiring whether anyone could recommend a doctor / practitioner (in Europe) who specialises in CFS-related methylation issues? Am surprised no-one has chipped in with any suggestions! I have read about Dr Kenny De Meirlier and his work with CFS...
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    Best functional methylation test?

    Thanks, I see from their website that a doctor needs to order this test. Do you know if it needs to be a fully medically trained doctor or can an alternative practitioner order this too?
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    Best functional methylation test?

    Hi, Following on from my earlier post today, i wanted to quickly ask whether anyone could advise me on the best functional methylation test? I have done Yasko's test but not found it overly helpful and quite complex to understand. I am based in Europe and therefore also assume i can't do the...
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    Doc /Practitioner specialised in methylation / detox issues?

    Hi, I got diagnosed with CFS a year ago and am convinced that i have methylation issues (recent Yasko testing revealed several double mutations (CBS / A360A, MTRR / A66G, MAO A / R297R). A recent liver detox test also revealed that i have a sluggish Phase 2 and a few years back i did the...
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    Doc / Practitioner specialised in methylation / detox issues?

    Hi, I got diagnosed with CFS a year ago and am convinced that i have methylation issues (recent Yasko testing revealed several double mutations (CBS / A360A, MTRR / A66G, MAO A / R297R). A recent liver detox test also revealed that i have a sluggish Phase 2 and a few years back i did the...
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    Acne - sign of methylation problems or hormone imbalance?

    Hi, I mentioned this problem in another post on this forum (in connection with my methylation problems - i have the CBS A360A and MTRR / A66G mutations) but have never really gotten to the bottom of why so many things cause my skin to break out. Just about anything these days gives me acne -...
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    Tired of trying to solve methylation probs

    I am not aware of the research which shows that MeCbl is more effective than HyCbl, all i do know is that many people on this forum have stated that they can't tolerate MeCbl and have found had greater success with HyCbl. I am undecided about muscle testing, I agree that it is clearly not very...
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    Tired of trying to solve methylation probs

    Al Klein: Many thanks for offering to send the sulphate strips. I have just sent you my address :) Germany is so much more progressive i think. Do you order from a particular website? I visited the Austrian Mayr clinic (www.viva-mayr.com) last year and felt amazing after spending 10 days...
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    Tired of trying to solve methylation probs

    Thanks so much everyone for all your helpful responses! On the Metabolic Analysis Test it simply stated that my B12 levels were borderline and my folic Acid was severely deficient. Al Klein: Where can i source the self inject HydroxoB12? I dont particularly like the sound of self injecting...
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    Tired of trying to solve methylation probs

    Yes i should get my homocysteine levels checked as if i am right about being an over methylator then i should have quite low levels. Thanks for the link to the UK doctor, surprising isnt it that there aren't more people who focus on this given that in 50% of CFS cases methylation is a real...
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    Tired of trying to solve methylation probs

    Hi, I am having real difficulties getting to the bottom of my methylation problems and have not been able to find a doctor anywhere (in the UK) who knows anything much about epigenetics or methylation issues (tried Sarah Myhill but she isnt taking patients anymore). The Yasko methylation...