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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. M

    Help a lost soul with MTHFR issues in the UK?

    Oh, very interesting, thanks! I'm not a fan of FB but will make a point of seeing where she's going to be. I bet it's London though. I've just had a look on i-herb - is it this one you get? http://uk.iherb.com/Thorne-Research-B-Complex-12-60-Veggie-Caps/18126 You are right - it works out a lot...
  2. M

    Help a lost soul with MTHFR issues in the UK?

    I bought Pure Bio (Pure Encapsulations?) capsules - 1000 mcg of adenosylcobalamin and nothing else in them. Wasn't quite sure whether to get them or a liquid version from another company, but that was all I could find.
  3. M

    Help a lost soul with MTHFR issues in the UK?

    Thank you, kind people. I've ordered the L-Carnitine Fumerate (and some adenoB12). Otherwise, I'll use trial and error to find out what works for me. Today I tried upping the folate quantity, but felt worse than ever (but had already taken the usual high Methyl B12 does before I'd read these...
  4. M

    Help a lost soul with MTHFR issues in the UK?

    I am compound heterozygous for MTHFR, and have been doing the best I can to figure things out for myself; I have been unable to find any kind of practitioner near to where I live (the wilds of Yorkshire in England) who has any clue whatsoever about methylation issues. I'm at the point where I...