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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Lacey

    Figuring out this crash

    Haha, sorry :) I live in New Zealand...putting something made of vinyl out in the sun here would result in bad things ;)
  2. Lacey

    Figuring out this crash

    np :) I often have difficulty following instructions too...in fact I had to re-read that fix I posted and had to edit my post several times when I first tried to explain it to you until it actually read as they said to do :cat: ...and still managed to make it more confusing :whistle: I suggest...
  3. Lacey

    Figuring out this crash

    Haha :3 The very first post I made has a numbered list of what to do...but here goes :hug: 1) Pick up the stool, take it outside on a warm, dry, windy day. Leave the stool outside for several hours - somewhere in the shade where the breeze will get it. 2) NOW make the baking soda mix, and...
  4. Lacey

    Figuring out this crash

    I would mix up the baking soda, apply it while somewhere you feel comfortable (if that's indoors then apply it indoors), then take it back outside (somewhere breezy but under cover). I think the only time you really need to leave it outside (but under cover, not in the sun) is at the start...
  5. Lacey

    Vitamin D sensitivity

    I find I'm sensitive to it as well, glad to know others have noticed this as well, because I wasn't sure if it was the Vit D supplements, all I knew was it made me feel ill after taking it.
  6. Lacey

    Figuring out this crash

    I did a quick google for you and found this: Instructions 1 Place the item outdoors in the shade on a dry, windy day to help dissipate the strong odor as much as possible. Leave the item outside for several hours. If you are attempting to remove the vinyl smell from the inside of your car...
  7. Lacey

    Finding an Open-Minded Local Doctor

    Having been to a few terrible doctors in search of a decent one (and having to do this again, for my "every day needs" GP, though this matters less than the specialist doc treats CFS etc but has now just moved overseas and also can't get me funded meds, but I still need a GP), I'd like to see a...
  8. Lacey

    flu and low appetite

    Ah okay. I've never experimented with allergy foods so had no idea. Doesn't seem to hurt me at all, for me it's a recovery food as I posted. Isn't rice pudding then bad for people too? Or milk? Or even toast?
  9. Lacey

    Improvement in NERVE PAIN!

    I use that as well for my pain (in my country it's sold as Buprenorphine). It works really well for the pain, though when I get my migraines they're now hard to detect as the pain isn't exactly there, but all the other symptoms still are (like nausea, hallucinations, aversion to light, and need...
  10. Lacey

    flu and low appetite

    I eat marmite on toast and drink sweet milky tea when I get ill (lose appetite or recovering from nausea). It's a really nice combo and the marmite is really good for you (it's rich in B vitamins). I live in NZ so have the NZ version of marmite, don't know what the British version is like...
  11. Lacey

    Recording symptoms: What do you keep track of and how do you measure trends ?

    I use an app on my phone for my period cycle to write down what's going on for the day (as it has tons of room to write up notes). It's called Period Diary Pro. I looked around a bit to find one that works for me (space to write stuff). Would be better if we could type in our own symptoms for...
  12. Lacey

    Burning skin - does anyone have something similar?

    I get patches of "burnt" feeling skin as well, flaring up now hugely which is why I googled the symptom and found this thread. It's not caused by contact with anything, as most of the areas flaring up right now weren't under any items of clothing (on parts of my arms, and on the palm of one...
  13. Lacey

    Desperate for answers; Girlfriend getting sick

    In my experience doctors just want to prescribe panadol and send you on your way :rolleyes: Just have to keep switching doctors till you can find one who actually wants to do some work that day.
  14. Lacey

    Viral symptoms back - is it due to vitamin D?

    Really? Vitamin D causes issues? Just asking because I've been put on that along with thyroxine for my hypothyroid, and I've felt even worse than before (flu-like sore throat non-stop, nauseous every day, suddenly have a painful, stiff neck which is a new issue). On top of all the muscle aches...
  15. Lacey

    Should I get a copper IUD while I have M.E.?

    A copper IUD is good, I've had no problems with mine.
  16. Lacey

    Death Contract? ME/CFS Experts and Advocates Unite to Oppose US 'Case Definition' Contract

    Yarbles. All I know is I feel real pain, and need someone to fix it.
  17. Lacey

    Panic Attack On Waking

    I wake frequently also with heart pounding (at times) or fluttering (other times). Came here looking for answers, still confused as to what causes this, but I wish it'd stop. Now 5am ish, woke just after 3am.
  18. Lacey

    Which CFS Symptom Do You Hate the Most?

    The muscle pain, which causes sleep problems (hurts to sleep, hurts to stay awake), and migraines. And the tiredness/lack of energy soon as I wake. The way good days make me want to do things then I get cut down immediately and need to rest. Makes me feel like 80 some days.
  19. Lacey

    Does anyone NOT have flu-like malaise?

    Possibly the virus didn't want you, same as World War Z's zombie virus wouldn't infect a body that already had disease :snigger: