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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. O

    In Belgium to see KDM

    Sebby - he treats more than just Lyme. For me, he also found gut inflammation/ infection, and chlamydia pneumonia - another nasty bacterial infection. I don't know about the success rates, all I know is that I am in the right doctor's office.
  2. O

    In Belgium to see KDM

    It took 7 weeks to get the test results...
  3. O

    In Belgium to see KDM

    The Netherlands. I am not expecting the tests to be reimbursed...will try though. So, probably yes to the 80 euro consultation, no to the thousands euros of tests!
  4. O

    In Belgium to see KDM

    Sebby - looks like my health insurance covers the consultations because of the EU regulations. Not sure yet about the medications....
  5. O

    In Belgium to see KDM

    Hi everyone- I got my results and diagnosis last week: late stage Lyme disease. KDM told me my case wasn't a 'twijfeldossier', a case in which he had any doubt whatsoever. My PCR was positive for Lyme, so was the LTT, but only slightly positive indicating that as he said: it had been in my...
  6. O

    In Belgium to see KDM

    Szenn - from what I have heard KDM does use biofilm breakers in some people, but not all... Sebby - from what I have heard he uses mega doses of probiotics...
  7. O

    In Belgium to see KDM

    I get my results Tuesday - will keep you updated
  8. O

    In Belgium to see KDM

    I am very glad to have KDM as a doctor. I don't think any doctor in NL would have suggested or tested me for Lyme and co. seen that my symptoms are not 'standard'. I am also a scared - there is no way to know that his approach will work. Szenn - I so agree with you on being objective about...
  9. O

    In Belgium to see KDM

    I'm so sorry szenn... :( ((szenn))
  10. O

    In Belgium to see KDM

    Yes - I spent some terrible weeks googling too much stuff. It would be funny if it wasn't so serious. I am trying to wrap my head round the enormous gaps in knowledge when it comes to Lyme and Bartonella. I have studied the official guidelines they use in Holland to treat chronic Lyme, and...
  11. O

    In Belgium to see KDM

    I have the same question Szenn. I have heard stories of people getting well again after being very severely ill with Lyme. If that's cure or remission I don't know. But if KDM claims an 88% success rate in treating Lyme (and he gets the difficult cases!), that sounds encouraging. It would be...
  12. O

    In Belgium to see KDM

    Seems there's quite a few of us! It's comforting to be able to connect with other KDM people being treated for Lyme and co.
  13. O

    In Belgium to see KDM

    Szenn - I'm from the Netherlands, but with roots in the UK (Dutch mum, English dad)
  14. O

    In Belgium to see KDM

    Hi Szenn - I just wanted to wish you good luck with treatment, and do let us know how it is going! I am in the same boat - have an appointment with KDM in two weeks when all my test results are in. He suspected Bartonella. I find the whole Lyme circus to be quite bewildering and frightening...